Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Else Get Dh At Base Of "crack"


capecodda

Recommended Posts

capecodda Rookie

I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.

  • 4 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Mattray88

Yep....pretty much just there, or the ocasional scalp and elbow....

mtdawber Apprentice
I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.

YES! I get them on my stomach, back (all the way down to the base of my spine), hips, back of thighs, feet, arms, elbows, neck and head.... You should get them biopsied by a dermatologist or try a gluten free diet and see if things improve. Something I am noticing and others with more time in will tell you (I'm still new at this) it takes time to clear the DH.

Eliza13 Contributor

Yeah...get the DH at the base of bum. LOL.

  • 1 month later...
Granny Garbonzo Apprentice

yes

I am nearly 50yrs old and only started getting the rash at all in the last couple of years...and wouldn't you know, it is on my bumb at the crack. I don't have any kind of herpes or anything at all, and at first I thought I had touched some poison oak or ivy while peeing in the woods....but then it returned a couple more times, and I realized maybe it was DH, and I asked here on this site, and got lots of responses saying it was the DH. I don't have insurance so rarely go to doctors, but went a couple of times for the rash as I was afraid I had some horrible disease, and no doctor ever said anything about my celiac disease causing the rash.........they KNOW I have celiac disease and STILL didn't make the connection....and since I hadn't had the rash all my life, I didn't think it was DH.....butt (pun intended) here we are with this blasted rash on the behind. More incentive to stay away from any trace of gluten I guess.

casnco Enthusiast
I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.

Oh yes! I don't have GH so I was rather concerned when this started! Found an unusual topical cream. Calmoseptic. Your pharmasist must order it. Very weird, it has menthol in it. I was skeptical at first. This isnt an area I want menthol! But it helps stop the itch. Give it a try.

By the way, do have a good remedy for the itch. I know to stay away from gluten. But this is my first sign when I have been CC'd. Bummer! (pun intended)

ItchyAmber Newbie

Got it!!! the bum itch, that is. My husband of two years has picked on me constantly since we got married about my "crabs". :o .. come to find out after 5 years of this weird, horrid, itch from Hell, it's DH! (I also have it on the base of my neck in my hair line, and on my belly)

I am sorry others feel like I do. It makes me crazy sometimes. Still waiting on Celiac panel results... it's been 12 days now since the tests. ARGH.

I'm going to try that cream! I'll try anything.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wowzer Community Regular

I seem to get it in the crack along with the female area. I have been tested for herpes, etc. Over the years I've had many itchy rashes, even landed in the hospital covered from head to foot and they didn't catch it. I finally googled rashes and the more I looked at the DH rashes, it looked like many of my breakouts. I'm 52 now. I have a little sister that is a celiac, diagnosed at a year old. My blood panel came out negative. I went gluten free the first of this year. I do seem more sensitive to gluten now. My first sign is blisters on my eyelid. Then the female itching. I don't think I'm eating it, I think because my son works in a pizza place, he is leaving me a gluten trail. I have to work on him.

ravenwoodglass Mentor
I seem to get it in the crack along with the female area. I have been tested for herpes, etc. Over the years I've had many itchy rashes, even landed in the hospital covered from head to foot and they didn't catch it. I finally googled rashes and the more I looked at the DH rashes, it looked like many of my breakouts. I'm 52 now. I have a little sister that is a celiac, diagnosed at a year old. My blood panel came out negative. I went gluten free the first of this year. I do seem more sensitive to gluten now. My first sign is blisters on my eyelid. Then the female itching. I don't think I'm eating it, I think because my son works in a pizza place, he is leaving me a gluten trail. I have to work on him.

I have to say yes to this. I get that type of rash not just when I eat gluten but also when I use most panty liners. Especially the scented kind. I have had DH since childhood and interestingly enough I also have had consistently negative panels. But I was very serious ill before I knew those panels were wrong. I haven't found anything that helps with the rash unfortunately, other than time.

Granny Garbonzo Apprentice

Amber

Don't bother with the tests for celiac disease....I think the medical community is making a killing off testing and retesting...

I and my family don't have health insurance, so we "test" ourselves....we just stopped eating gluten for about 3 months, strictly. We know it is celiac disease because, first other members of the family had it and it is genetic, second we stopped having most our symptoms when we stopped eating gluten. Just makes too much sense for most people to grasp that they just don't need to spend a lot of time and money on doctors. Just educate yourself and get control of your own health...the doctors are in it for the money and their by the book following of accepted practices....they are not caring for your health, they are managing symptoms with pharmacuticals or surgery. There are no drugs or chemicals that we need for celiac disease, we just need to stop eating gluten. See a doctor when you really need one.

Sorry, I get frustrated with this doctor business. If I would have listened to doctors they would have removed my gall bladder and said I don't have celiac disease....now 20 years later, I still have my gall bladder and it is working fine, and I just stay away from gluten and all is well....same with my kids and grand kids. So there is the possibility that you may just feel better eating a gluten free diet and you don't really have celiac disease and you may have something else....but what does it hurt to try going gluten free? Easy.

heathen Apprentice

yes, i thought it was shingles. it drives me nuts. and it's so unattractive. ironically, it didn't start until after i went gluten-free.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,970
    • Most Online (within 30 mins)
      7,748

    Eliartstar
    Newest Member
    Eliartstar
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It’s great that you were finally able to see a gastroenterologist—and even luckier to get in the same day as your referral! It sounds like your GI is taking a very thorough approach, which is reassuring given your complex symptoms and history. The confusion around your different tissue transglutaminase (tTG) antibody results is understandable. The variation between your December and June labs may be due to multiple factors, including differences in the lab performing the test (Quest vs. Mayo Clinic), the specific assay used, and the amount of gluten you had been consuming before each test. Antibody levels can drop significantly when gluten is reduced or eliminated from the diet, even partially, which might explain why your recent tTG IgA was now negative and your tTG IgG was borderline high. That’s likely why your GI mentioned it was “usually the reverse”—typically, tTG IgA is more commonly elevated in confirmed celiac, not IgG alone, especially when IgA levels are sufficient, as yours are. Your gene testing confirms that you carry HLA types (DQ2.2 most likely) that are permissive for celiac disease, meaning you can develop it, but not everyone with these genes will. These genes don’t explain why your symptoms are milder or different from others with celiac—many people have so-called "silent" or atypical presentations like yours, with issues like long-term heartburn, loose stools, nutrient intolerances, or just gradually adapting to symptoms over time. It’s not uncommon to assume these symptoms are just aging, medication side effects, or lifestyle-related until someone finally connects the dots. It’s a good thing your daughter advocated for you to be tested—many cases are missed for years because they don’t follow the “textbook” presentation. As for the immunoglobulin tests, your doctor likely ordered those to ensure your immune system is functioning normally, particularly your IgA level, since a deficiency can cause false-negative celiac blood tests. Since your IgA level is normal, your tTG IgA test should be reliable (assuming adequate gluten intake), but again, if you weren't eating enough gluten, that could explain the lower antibody levels now. The comprehensive metabolic panel and negative stool parasite results are additional pieces ruling out other causes of your symptoms, like infections or organ dysfunction. The upcoming endoscopy and colonoscopy should provide more definitive answers, especially with biopsies looking for celiac disease, eosinophilic esophagitis, and microscopic colitis. It’s completely valid to feel unsure about what you’re experiencing, especially when your symptoms have been lifelong or gradually worsening without being severe. You’re not alone—many adults with celiac or gluten-related disorders report subtle or chronic symptoms they’ve normalized. You’re doing the right thing by staying on gluten now through your procedure date in August. Try not to stress about reaching the full 6-slice equivalent each day, but do increase your gluten intake as much as tolerable (e.g., a couple of pieces of bread, pasta, crackers, etc.) to give the biopsy the best chance of detecting any damage. Good luck with your upcoming procedures—you’re closer than ever to answers and a clearer direction forward.
    • Scott Adams
      I don't believe that site is updated regularly, and it may be unreliable.  You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • KimMS
      Hello! I did a brief search on this and couldn't find recent posts, but feel free to direct me to something if I missed it! I have had a difficult time confirming which thyroid medications (specifically generic forms of Levothyroxine) are gluten-free and safe for celiacs. I am pretty confident the generic manufacturer Mylan is safe, and I have been taking this for almost two years. Recently (I think b/c of a recall), Mylan has not been available at my local pharmacies. The list I typically use for gluten-free drugs (http://glutenfreedrugs.com/newlist.htm) does not list any of the other manufacturers offered by pharmacies in my area (Accord and Macleod). When I do a search, sites tend to say these brands are gluten-free but I can't fully confirm, and other sites say that only Lannett and Mylan generic brands are safely gluten free. I have called manufacturers and they say "there are no gluten ingredients" but they don't have information regarding manufacturing/cross contact. In particlar, Accord said there is gluten present in the manufacturing facilities so they can't guarantee no cross contact. What recommendations do you have for finding levothyroxine that I can mostly be assured is safe for celiacs? It is tricky b/c I found one I was confident in but now I can't seem to get that manufacturer at any pharmacy near me. I don't want to be unnecessarily overly concerned about this, but since it is a medicine I take daily, I want to be pretty certain it is safe (I have both celiac and gluten ataxia so I need to be very careful with any gluten intake and cross contact.)      
    • Wheatwacked
      Hello @CeliacNew, If you are Vegan to help you feel better, reconsider returning to omnivore.  Actually, since you are already on a very restrictive diet, transitioning to gluten free might be easier for you.  Read the ingredient labels, Particularly vitamin D and Choline require supplements for vegan diet because our primary source is sun, eggs and beef.  B12 also.
    • Wheatwacked
      Once you've completed testing and still don't have improvement, start a trial gluten free diet.  Looking for imprvement that may indicate Non Celiac Gluten Sensitivity, which is 10 times more prevalent than Celiac Disease. Deficiencies in vitamins B6, B12, D, and C can manifest as skin rashes.  Virtual guaranty you are deficient in vitamin D.
×
×
  • Create New...