Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is The Sky Falling?


Mtndog

Recommended Posts

Mtndog Collaborator

I haven't been on in awhile and my account got deleted. But I'm baccckkk!

I just need to vent here. I just can't believe some of the things that people I know and care about are going through right now. We found this week that my good friend and old neighbor has such a rare form of blood cancer that there is NO name for it????????????WTF?????????????? It has spread to his lungs, stomach, colon and liver but since it's this unknown type of blood cancer that they can't even stage him and they have no idea what his prognosis is.

Then tonight, one of my friends in graduate school, who I had emailed for support because I'm having my exam defense on Monday and I thought I was stressed out, let me know that her baby (she's 4 months pregnant) has severe heart valve problems so they are seeing a specialist at Children's Hospital on Monday.

what is going on? I keep thinking things have just got to calm down for awhile and they never do.

Sad.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Sorry you've got so much stress right now, that you're friend's not doing well, and about your other friend's baby. Wow, sure seems that when it rains, it pours, doesn't it?

Mtndog Collaborator

hi carla- It's me! beverly. good to see your smiling face. how have YOU been feeling?

jerseyangel Proficient

Bev--I'm so sorry to hear of all this. It just dosen't seem fair sometimes....

elye Community Regular

Ah, Beverley, it really does pour for you...I always think of you being such a comfort to others, and boy, you are the one who needs it the most! I'm thinking of you....

{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}}}}}}

Lisa Mentor

Hey B:

Good to hear from you. Lord knows, when it rains, it pours sometime. And it take a strong person to work things out. As we get older, unfortunatly, we will see more of bad things happening to good people. Who was it that said "life is not for sissies".

I hope that everything will settle down for you and hoping for strengh for you in helping your friends during a terrible time in their lives.

xxoo - Lisa :):)

CarlaB Enthusiast
hi carla- It's me! beverly. good to see your smiling face. how have YOU been feeling?

I knew who you were!!! :D Even without the picture!

Thanks for asking about me ... I've been taking my chinese herbs, seeing the acupuncturist, eating five meals a day featuring protein and veggies, avoiding caffeine, sugar, and alcohol, getting lots of rest, and I'm finally feeling better. I'm not 100%, doc says it'll take a year to get to where I should be, but I feel much, much better than I did. I'm still spending a lot of time around here ... it's just too boring to get all the rest I'm supposed to be getting!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mtndog Collaborator

Thanks everyone- I always think of that book "When Bad Things happen to Good People". have any of you read it? It really is wonderful.

Carla- I'm glad you're feeling better- that's good. see, there IS good news!

Judyin Philly Enthusiast
As we get older, unfortunatly, we will see more of bad things happening to good people. Who was it that said "life is not for sissies". xxoo - Lisa :):)

I so agree ...guess as we age, our friends do too and thus... :ph34r::unsure: we all start falling apart ;) and so do they.

I'm so sorry about your friends and your tool. gosh you've had a hard streak..Your still in my prayers.

how is your hubby doing? and you belly button? ;)

Carla B..glad your finding some answers and enjoy that HOT TUB that is my dream..

love to you both.

judy

DingoGirl Enthusiast

aw Bev...... :( You really do need a time of just....good things and peace. Your friends...what they need is miracles.

Nice to see you and I truly hope things calm down for you soon.

mouse Enthusiast

Hi Beverly. I will pray for you to have the strength to help you through your friends illness' and also strength to help them as much as you can. As you know, life can be much more then difficult at times. Many Hugs for you.

tiredofdoctors Enthusiast

Hey Bev -- I'm sorry you're having such a crappy time. How was your doctor's appointment? (Had to throw that in quickly, sorry.) It's really hard to know why such horrible things happen. I SURE wish I had the answers. All I know is that the Big Guy and I are going to have a REALLY long talk when I get there . . . . He has some 'splainin to do . . . . .

Please know that you are always in my thoughts and prayers, but will be EXTRA in the next few days.

Love & Hugs,

Lynne

Mtndog Collaborator

Oh it's so good to SEE my peeps here! It's been so long. elye- YOU guys are the ones that are comforting!

Lynne- I can just hear you now when you get to the Pearly Gates (A VERY VERY VERY LONG time from now) "Hey Big Guy, you got some 'splainin to do" (in your best Ricky Ricardo voice twinged with a Southern accent). How the heck would that sound?????????????? :ph34r:

My belly button is fine but the darn surgeon cancelled my appt on friday for emergency surgery so now I can't get in to see him until NEXT Friday. Apparently, someone up there thinks that I need to walk around longer with this thing sticking out. it doesn't hurt anymore though, so that's good.

DingoGirl- How are you?????? I saw some tazorac cream in my in-laws bathroom and thought of you. Ouch!

Hugs to all, B

mouse Enthusiast

Beverly, I am sorry to get off topic. But, your photo is great. You are certainly beautiful and such a nice smile.

Mtndog Collaborator

Hi Sweetie!!!!!!!!!!! Aww shucks, thanks for the compliments. I've been trying to get that photo up here for so long because I was so HAPPY when it was taken. We were out on Orcas Island in Puget Sound and my hubby had just taken me out for a romantic dinner of gluten-free seafood and wine. It was a lovely night!

Judyin Philly Enthusiast
I've been trying to get that photo up here for so long because I was so HAPPY when it was taken. We were out on Orcas Island in Puget Sound and my hubby had just taken me out for a romantic dinner of gluten-free seafood and wine. It was a lovely night!

LOVE THE NEW PICTURE TOO.

THIS ROMANTIC DINNER SURE AGREE'S WITH YOU.

HOPE YOUR DOING BETTER WITH THE BELLY BUTTON..AT LEAST DOESN'T HURT..HOPE YOU CAN GET IN SOON.

SO YOU HAD TO GO BACK IN AND START FROM SCRATCH...BUMMER .... :ph34r: WISH SCOTT COULD HAVE JUST PUT THE OLD INFO AND POST HISTORY BACK UP.

HAVE A GREAT DAY...MISSED HEARING FROM YOU

LOVE

JUDY

CarlaB Enthusiast

So, how are you feeling? Have you found a new place to live yet?

I love the new pic!

Judy, we got a sauna, not a hot tub ... so I'm not living your dream! I do love it though.

Mtndog Collaborator
So, how are you feeling? Have you found a new place to live yet?

I love the new pic!

Judy, we got a sauna, not a hot tub ... so I'm not living your dream! I do love it though.

Oh my gosh! I'd take the sauna too! They really are good for you.

I'm feeling better with a few blips here and there- I legumed myself to pieces the other night when I ate 4 Reese's pb cups. I was stressed out, they were here and I thought "oh maaybe it was just the apartment." Wrong! I was in screeching joint pain the next day and LEARNED my lesson. I've realized that I don't "truly" have FMS- but my legume intolerance sure does a good job of mimicking it. :ph34r:

The persistent nausea, D and all that has totally cleared up. it's so strange- we went back yesterday to try and finish panicking and after 3 hours I felt nauseous and my hubby broke out in a cold sweat- I had forgotten ALL about that symptoms of hiss. He never has them anywhere else. So we had to ditch.

He's back up there today with his brother and our downstairs neighbor doing more packing. I had to beg out because I have to defend my PhD Qualifying Exam tomorrow (the one I took back in June). YIKES! :ph34r:

It's for the best though because yesterday when I walked in, I found that our landlord has started patching up the celilings (where I suspect the problem lies) while our stuff was still in there. i cannot express HOW ANGRY I am aabout it. We are paid through sept 30th and he never even asked to enter the apartment, never mind do work. There were paint chips all over the kitchen.

But we did find a place to live. It's aa 3 bedroom house with a big back yard for less than we were paying in NH. I'm seeing visions of puppiesrunning about!

nikki-uk Enthusiast

Bev,I'm so sorry you are having such a rotten time.

Seems there's alot of hard times going on with our members lately :(

BTW-luuurve the new photo-looking good!!

:):)

Edit:Glad you guys have found a new place!(Puppies!!!!)

CarlaB Enthusiast

That's really funny/strange about the apt. making both of you sick! That's great news about the house, about the FMS being legume intolerance, and that you don't have to help move :P . See, you have some good news thrown in there, too!!

Yea, we got the sauna for the health benefits. We live in a 90 year old house and the master brm. is a finished attic. Adam's closet opened into the unfinished part of the attic where there were windows, so we had just finished that room and a new closet for him, which left his old closet for the sauna. It fits perfectly! This morning I put jojoba oil on my hair and got a sauna and hot oil treatment all in one! I'm really loving it. It's also very relaxing.

DingoGirl Enthusiast

Yes, Bev, awesome photo....and a new place....and PUPPIES!!! Yes, some little Bernese puppies....we need new dogs on the board here, the Dingos do get tired of chasing after everybody....

SO glad you found a new place! I think I"ve written about my House of Terror on this board before...had to move into parents' for three months and every time I'd go back home would have major D....so crazy....but I think the house was haunted and that was the problem...the new girl who bought it sold it after a year, the next-door-neighbor told me that no one lived there longer than a year of year-and-a-half :ph34r: SCARY

BTW what is wrong with your belly button? seems everyone knows but me!

Mtndog Collaborator

I have a herniated belly button- YUCK!!!!!!!!!!!

Yes- I agree...more dogs... I was at the house we're renting today doing some cleaning and I sat in the baackyard dreaming of a big fluffy one bounding through the snow this winter!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

WAIT- HOUSE OF TERROR? i haven't heard about it? Do tell what you mean!

nikki-uk Enthusiast
WAIT- HOUSE OF TERROR? i haven't heard about it? Do tell what you mean!

Yeah-come on Susan-DETAILS!!!!!

:o

AndreaB Contributor

Beverly,

Wow! There is a lot going on for you. I guess I have my answer from the R2 thread.

Good luck with your test tomorrow.

I'm so glad you are out of that apartment. Sounds absolutely awful. Be sure to keep us posted on how your doing AND when you get those pups. :P

DingoGirl Enthusiast

oh you guys....House of Terror is an awful, awful story...don't want to take over this thread....actually would require more like a book to tell what happened and how it changed my life - no, changed ME forever - and not in good ways.

(edited - I posted about it and then TOOK IT OFF!!! it's Bev's thread!!) :)

Yes -Bev - puppies, bounding through the snow!! that's what you need!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.