Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Support Each Other, Not Start Wars


Queen Serenity

Recommended Posts

Queen Serenity Newbie

Hi, all.

I have just been reading through some of the different threads, and I can't believe some of the shouting matches that I have read. Why has everyone lost sight of the mission of this message board? We are supposed to help each other out, not cram our opinions down other people's throats. This then starts a shouting match back and forth, until the original topic is completely lost. I am guilty of stating that someone's opinion isn't valuable. But, I stood corrected. Everyone's opinion should be valuable, but not at the cost of the person seeking the help. We are all stuck with Celiac's. It's never going to go away. This is why we need each other. I have lived with this for 11 years. Some people have had it longer, and some less. I value everything that I have read on this message board. I am grateful for the support, and I like to help others. So, I hope that this thread is a valuable one. So, next time any of us post, we should just make sure that we don't lose track of the original question, and help out our fellow human's.

Vicki

11 years and still going!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Shouting matches? Are you sure you're reading current threads and not ones from about a week ago, that aren't really happening any more? I thought we had resolved all those controversies, and that these past days we had been back on track with just supporting and helping each other. Am I missing something?

You know, from time to time people come in here that stir up a lot of trouble, it's bound to happen. But it doesn't last long, and things get back to normal soon. I believe we are back to normal. Let's not start another controversy by claiming we're not.

Queen Serenity Newbie

Hi,

I'm not trying to stir up, and I hope that this topic wouldn't stir up anything. Believe me, that's the last thing I want. It just concerned me that certain issues had become explosive, which lost the point of support and help.

Vicki

Lisa Mentor

Vickie:

Yes sometimes it does get a little testy here, but it always has a way to leveling itself out.

Don't let a few disswade you from the 99.9% good done here. :)

Lisa

elye Community Regular

Hear, Hear, Lisa! There's so much good stuff that's going on here, and that has gone on for so long--it always overshadows (at least for me) the odd silly bickering that occurs on threads that take care of themselves and peter out... :)

jerseyangel Proficient

This is a community, and like in any group, there will be disagreements from time to time. People's feelings will get hurt, and words will be misunderstood.

It's been my experience here that in the vast majority of cases, these things work themselves out. This is one of the most caring, sensitive, funny, smart and loyal groups of people that I've ever had the privilage to be a part of.

Actually, this last bit of unpleasantness led to a nice discussion about what is good about the board, and suggestions about how it could improve further to meet the demands of the ever growing membership.

miles2go Contributor
This is one of the most caring, sensitive, funny, smart and loyal groups of people that I've ever had the privilage to be a part of.

Couldn't agree more. It's a harsh world out there! :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lindalee Enthusiast

This group had helped me so much. If a topic gets crazy or off topic, I just move to a more focused topic that I can learn from.

daffadilly Apprentice

Hi Vicky, well we have discussions to air our opinions and the things that we have experienced which may not match the experience of others. Discussion in words is good because it airs all types of views & educates one on what views are out there in the world.

That does not mean that we would not offer support to that person if they needed it, regardless of their opinions. We feel compelled to write our ideas because when one reads the thread if they only see that one view they may not know better and accept it as the only view. When various sides of an issue are presented the person reading the thread can form their own opinion which may not be any of those that are presented.

In any forum there are always ones that are out to fulfill a need they have, which is not to support the group. They can usually be spotted, & they are the same ones that are not going to be around long term to devote their time to helping others.

I think that you are a very caring compassionate person and I hope that you choose a profession that will help others. I would also like to encourage you and others to volunteer your time and talents to do what you can for others. No one is ever too young to make a difference in this world. Whether it is making brownies for a shut in or sending a letter or card to an older relative. (which is always appreciated!)

Thank you for posting, it is such a nice forum.

Rikki Tikki Explorer
This is a community, and like in any group, there will be disagreements from time to time. People's feelings will get hurt, and words will be misunderstood.

It's been my experience here that in the vast majority of cases, these things work themselves out. This is one of the most caring, sensitive, funny, smart and loyal groups of people that I've ever had the privilage to be a part of.

Actually, this last bit of unpleasantness led to a nice discussion about what is good about the board, and suggestions about how it could improve further to meet the demands of the ever growing membership.

Must agree with this, guess I missed the war :blink::blink::blink: We don't always agree but in the end we are always there for each other, just like any family :D

Vicki: Are you 11 years old or 11 years gluten free? Just re-read your post 11 years gluten free, good for you.

Matilda Enthusiast

...

eKatherine Apprentice
I quite like a good row. At least as a by-stander.

I miss Jnkmnky! Now there was someone who could start a fight at the drop of a hat. All of a sudden everyone would kick off over an incendiary comment.

This board has never been all peace and love. Emotional support is something we all value here, but heated debate has it's place too, I think.

Best wishes,

Matilda

This is a place where we can all discuss our own experiences, yes, but all advice is not created equal. That's what we argue about.

daffadilly Apprentice

there are other boards that only have one moderator and they delete anything that they do not like, so if that type of environment suits one better, they are available.

bluejeangirl Contributor
Hi, all.

I have just been reading through some of the different threads, and I can't believe some of the shouting matches that I have read. Why has everyone lost sight of the mission of this message board? We are supposed to help each other out, not cram our opinions down other people's throats. This then starts a shouting match back and forth, until the original topic is completely lost. I am guilty of stating that someone's opinion isn't valuable. But, I stood corrected. Everyone's opinion should be valuable, but not at the cost of the person seeking the help. We are all stuck with Celiac's. It's never going to go away. This is why we need each other. I have lived with this for 11 years. Some people have had it longer, and some less. I value everything that I have read on this message board. I am grateful for the support, and I like to help others. So, I hope that this thread is a valuable one. So, next time any of us post, we should just make sure that we don't lose track of the original question, and help out our fellow human's.

Vicki

11 years and still going!

Vicki, I haven't read any shouting matches. I'm so sorry that's what you've noticed lately. You know I'm a person who has opinions like everyone else and I certainly don't expect anyone to agree with me. Do you?

What do you do when you have an opinion and you see someone has a different one? Maybe you can help by telling us how to express ourselves better. I think everyone is valuable, opinions are just opinions they don't make me love or hate someone. I hold the person valuable so I don't want to offend them but that doesn't make me have to agree with them.

Just one more point and I hope your taking this in good stride but the only person who feels an opinion is being jammed down a throat as you put it is you the receiver. Do you see what I'm saying? You don't have to take it. Be polite and kindly disagree.

Well I hope you come over to a better view on these boards because I love it here I learn a lot and everyone is in the same boat....we get very sick with eating certain food.

Gail

tracey* Rookie

I've been here for less than a week, but I've read back on ALOT of threads here

I haven't seen any negativity, maybe I'm blind now :P But I think healthy discussion includes all points of view. Shouting matches, ok not so much, but I respect that people have different opinions. It's just how you express them.

Support each other! But also be open minded :) We're all in this together ....

Queen Serenity Newbie

Hi all!

I agree, that not every thread has negativity. But some of the threads do have people starting out with advice, and it ends up a back and forth match, because of someone else's disagreement. If you do come across a thread like this, then you will see that the original topic got lost. Some others do try to put the topic back to normal, but some people have a problem dropping the issue. As I said before, I have accepted every piece of advice on this message board, since it's beginning. It has helped me a lot! As far as my giving advice, I know that people may disagree with what I have to say. I can accept that. I would never really think of starting a back and forth match with someone else, because I didn't agree. This doesn't help the person asking for the advice. So, I just hoped that by starting this thread, it would just make people aware of the situation. We are all in this boat together! We only really have each other, because, sometimes our family and friends, just don't understand!

Vicki

gluten-free for 11 years and still going!

daffadilly Apprentice

Queen Serenity, thank you for the only smile that I have had today (due to the recent tragic death of a young person in my family, but I digress from the thread content).

It just seemed that your name fit your post!!! Getting all your subjects in the proper form. Although not all of us presume to not so much give advice but to offer support, our opinions, and our experiences. We all know that each of us is different, though loyal subjects B) , and that we have to make the decision that we think is best for ourself and our body, & we all know how our bodies have a will of their own.

KaitiUSA Enthusiast

I have not been around too much anymore due to my schedule but I was very surprised of some of the threads I read when I came back. It seems like it gets too personal at times. I think this place is here for people to talk and share information and support each other and not criticize people for what they think if it is different. I am glad you posted about this problem.

hannahsue01 Enthusiast

I have learned so much from this forum and wouldn't give it up now. It seems to be our families most valuble resource in finding out anything we need to know about celiac disease. Everyone has a right to there own opinion......even if some people are pushy or loose sight of topic it doesn't mean we have to read it or take it to heart.....just move on to a new topic and leave that one alone. Don't take anything to personal. With what allot of us have been through some things can be touchy.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.