Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medical Id Braclet

rkmonckton11

Recommended Posts

rkmonckton11 Apprentice
rkmonckton11
Posted

Hello everyone. I was just wondering if any one wears a Medical Id braclet? I was thinking about buying one offline and having celiac disease put on it. Does anyone have any thoughts about these braclets?

thanks so much

kristen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


plantime Contributor
plantime
Posted

I have medical tags for other allergies, so I added celiac to it. If I only had celiac for it, I don't think I would go to the expense of buying a tag.

jesscarmel Enthusiast
jesscarmel
Posted

hi

i have one that says celiac sprue use only gluten free foods and drugs. i got it because when i travel i thought customs would take it more seroiusly at airports if they give me trouble about carrying lots of food in my luggage. also it just makes me feel safer to have it on.

Jess

jerseyangel Proficient
jerseyangel
Posted

I've been thinking about it.

I am allergic to several medications--that could possibly come into play if I were in an emergency room and unable to talk. If I do, I will definately include Celiac on it.

Carriefaith Enthusiast
Carriefaith
Posted

I am getting one for sure. I have a severe food allergy and celiac disease.

CarlaB Enthusiast
CarlaB
Posted

I don't have one. I "only" have food intolerances, not allergies. If I had an allergy and was going to die if given the wrong drug, I would definately have one. As it is, I'd rather them give me a medicine that was going to gluten me than give me an alternative that might not save my life. If I were in a position they were needing the bracelet for, it would be serious. I'd rather be glutened for a couple weeks than die from taking a lesser medicine. But, like I said, if I had other "allergies", then I would definately have one.

Kody Rookie
Kody
Posted

I want one of those bracelets. I think it would be fabulous to represent and embrace who I am. I'm a Celiac, so what?

Does anyone know where I can order one? :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jesscarmel Enthusiast
jesscarmel
Posted
I want one of those bracelets. I think it would be fabulous to represent and embrace who I am. I'm a Celiac, so

Does anyone know where I can order one? :D

i got mine at medicalert.org

if g-d forbid you are found hurt, medics are required to read your bracelet and call the number on it which has all your medical info on file, including emergency family phone numbers.

Jess

clbevilacqua Explorer
clbevilacqua
Posted

I actually carry a MedicAlert USB stick with my and my whole family's medical info on it. It is great for traveling.

L.A. Contributor
L.A.
Posted
I want one of those bracelets. I think it would be fabulous to represent and embrace who I am. I'm a Celiac, so what?

Does anyone know where I can order one? :D

Cody: I have a dog tag for my diabetes and celiacs and I ordered it on line. Can't remember the name of the company just Google "medical alert ID" tons or stuff out there. L.A.

KaitiUSA Enthusiast
KaitiUSA
Posted

I am getting one..I think its a good thing to have especially if you have other allergies in addition to celiac

MistressIsis Apprentice
MistressIsis
Posted

I was JUST discussing this the other day. I don't need a hospital or EMT giving me the cheap medication that's just gonna make me more sick.

I'm glad I'm not hte only one!

schuyler Apprentice
schuyler
Posted

I have one. Mine also lists allergies to medications, but I think I'd still wear one even if celiac was my only problem. Honestly, just by showing my Medical ID, I've been allowed to take food into places that have a "No Food" policy. It's really helped me.

The boys wear ID bracelets too, and theirs just list food allergies (under celiac it says only feed me gluten free food). Since they are young, many adults don't listen to them when the boys say they can't eat something, but the people back off once they see the Medical ID. I'd just rather be safe than sorry.

luvs2eat Collaborator
luvs2eat
Posted

I had a tongue-in-cheek conversation w/ my doctor a few years ago and whined... "I'm gonna end up in a nursing home and they're gonna feed me bread and I'm gonna have diarrhea and they'll be mad at me cause I'm messing my drawers all the time and I'll get bedsores... and ... yada, yada, yada.

The bracelet is a good idea, I think... but then you're at the mercy of people knowing or not knowing what GLUTEN is!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
    2. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    3. lalan45
      - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things ...
    4. Russ H
      - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
    5. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748
    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.