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I Cheated And Nothing Happened!

DingoGirl

By DingoGirl
in Coping with Celiac Disease

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Lisa Mentor
Lisa
Posted
It's his sister. :lol:

Oops...which one, :blink: the beautiful babe, or the glorious chick...Iz donno.

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DingoGirl Enthusiast
DingoGirl
Posted
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Great Avatar. Is that you basking in the afterglow of 3 gluteny donuts? You look great! :)

Tell the truth - you've got the hots for the doc, right? (too much Grey's Anatomy?) :P

how did I miss this, goofball....yes, there I am in all my donut-y, giddy glory. The tummy-ache had not hit yet (remember I also ate bean stew and homemade nut bars in same day. ugh).

The hots for my GI....I LOVE LOVE LOVE my GI - - - but he's not really a hottie. and that is a good thing, because I would be finding reasons to go all the time. :lol:;)

when celiacs eat even a small amount of gluten it can cause intestinal damage very quickly--so if it took you a year to get better, it might take only a month to reverse or wipe out that one year of healing. Again, your cancer risk and risk of many other complications also goes up when you eat gluten, so I highly recommend that you avoid it. You might find this interesting:

:o:o:o I only cheated once....NOT going to undo nine months of heinous, arduous gluten-avoidance! Besides, my stomach did hurt a bit - the same, tender ache it used to have, for years...so I know my poor villi were assaulted and unhappy. :(

Hang in there Susan, you're not alone here!

:) thanks donna.....

Yep Susan--remember, you always have us :)

:) and thanks to you, too Patti...you know I"ll always come whining when something's wrong...... :huh:

CarlaB Enthusiast
CarlaB
Posted
Oops...which one, :blink: the beautiful babe, or the glorious chick...Iz donno.

The glorious chick ... don't know who the babe is

TriticusToxicum Explorer
TriticusToxicum
Posted
The glorious chick ... don't know who the babe is

My sister (JoAnn) is on the left (long brown hair) My daughter (Madeline now 2 1/2) is on the right. It's an old picture :P

They are both beautiful. Thanks :)

Lisa Mentor
Lisa
Posted
My sister (JoAnn) is on the left (long brown hair) My daughter (Madeline now 2 1/2) is on the right. It's an old picture :P

They are both beautiful. Thanks :)

And, yes they are beautiful.

Without a dissertation, thanks for keeping me laughing., You are truley a one man road show.

L. :)

Mtndog Collaborator
Mtndog
Posted
How many times have I thought of tossing myself off a bridge but the fear of heights and fish flipping about in my underwear stopped me.

Ruslaa- I think you expresed the depression and despondency so well and IKNOW you've been through it, as have I, but the line about fish flipping around in your underwear was GREAT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

DingoGirl Enthusiast
DingoGirl
Posted
  • Author
Ruslaa- I think you expresed the depression and despondency so well and IKNOW you've been through it, as have I, but the line about fish flipping around in your underwear was GREAT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

oh dear gawd...how did I miss that before??? :lol::lol::lol:

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Mountaineer Josh Apprentice
Mountaineer Josh
Posted

I was originally diagnosed in Feb 05. Then, in July 05 the doctors had me go back on a gluten diet for 6 months and then recheck my bloodwork and conduct a biopsy. During that time I had no issues and I was eating so much gluten it was unreal. When I got the results of my bloodwork in December and the test stated my levels were at 260, I was totally shocked. I thought the February diagnosis had been a mistake. I just didn't understand how my antibody levels could be so high and I wasn't having any adverse reactions. It's an odd disease. I'm happy they did the biopsy to prove to me that my body was being adversely effected and that convinced me to stay gluten free.

brendygirl Community Regular
brendygirl
Posted
Susan - The moment you mentioned your poison oak "what will happen" experiment I instantly thought of this. And as luck would have it YouTube Obliged!

Open Original Shared Link :P

COOL VIDEO!!!!!! Donuts and gluten-containing food are not tempting to me. I just get a "who cares" attitude at times and decide to cheat for the TEXTURE of it. It's not the food, it's the TEXTURE. I don't plan to do this ongoing. It's just something that I have done in my first year of adjustment and I thought I was the perfect one to reply, because I knew before I even opened the thread that she'd had donuts.

I did blame the gluten and I am calm... sorry.

I'm sorry my initial comment brought on such negativity.

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    • Scott Adams
      Test interpretations

      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Test interpretations

      By trents · Posted

      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
    • suek54
      Need advice for some relief!

      By suek54 · Posted

      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      Test interpretations

      By MicG · Posted

      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Test interpretations

      By trents · Posted

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
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