Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Do I Feel So Guilty?


ekdumas19

Recommended Posts

ekdumas19 Apprentice

Hi everyone!

So right now I feel really guilty because at my job we have all these sales people that come in and take our department out to lunch. It is usually to restaurants where the menu is limited and the level of cross contamination is too high for me to really risk going. The only one I have attended is the one at Legal Seafood because I know they are pretty dedicated to being gluten free when it counts. So today-they came around again asking if I wanted to go--I said sorry I have bad food allergies and don't like to eat out-especially at a place like Mangiano's-where its pasta/bread central. I swear to god my office is like the anti celiac-these sales people bring in muffins/donuts/cakes/cookies-and I have to decline everytime. I think they honestly think I dont even eat at all, though I have told several people about my celiac disease. Please assure me that i was better just to decline than to risk an episode of cross contamination! I just feel like people still don't understand enough about the disease to realize why I have to bail out all the time!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HawkFire Explorer

Please bring your own lunches. You can order a drink and still socialize. celiac isn't an isolating disease. You should have fun with your friends every chance you get. Don't decline. Go, go, go.

CarlaB Enthusiast

I agree, go and bring your own lunch!!

There is a place called Maggianos, surprisingly similar name to the one you said, that is VERY accomodating to celiacs, in fact, our local celiac group had a dinner there.

floridanative Community Regular

Carla is right and if it's the same place, you can order gluten free pasta ahead of time. I have it with their gluten-free alfredo sauce and a nice salad. There's enough to take left overs home. Some locations always has corn pasta but both ours require calling ahead so they have it for sure when you arrive. The Chef comes to the table to tell you what he can safely make you. They take allergies very seriously, at least in Atlanta.

ekdumas19 Apprentice
Carla is right and if it's the same place, you can order gluten free pasta ahead of time. I have it with their gluten-free alfredo sauce and a nice salad. There's enough to take left overs home. Some locations always has corn pasta but both ours require calling ahead so they have it for sure when you arrive. The Chef comes to the table to tell you what he can safely make you. They take allergies very seriously, at least in Atlanta.

Wow-it's probably the same one. Good to know though. I don't feel as bad now, because a lot of people didn't go and I hardly knew the guy anyway. But I guess it goes to show that there is no harm in asking......

megzmc3611 Rookie
Hi everyone!

So right now I feel really guilty because at my job we have all these sales people that come in and take our department out to lunch. It is usually to restaurants where the menu is limited and the level of cross contamination is too high for me to really risk going. The only one I have attended is the one at Legal Seafood because I know they are pretty dedicated to being gluten free when it counts. So today-they came around again asking if I wanted to go--I said sorry I have bad food allergies and don't like to eat out-especially at a place like Mangiano's-where its pasta/bread central. I swear to god my office is like the anti celiac-these sales people bring in muffins/donuts/cakes/cookies-and I have to decline everytime. I think they honestly think I dont even eat at all, though I have told several people about my celiac disease. Please assure me that i was better just to decline than to risk an episode of cross contamination! I just feel like people still don't understand enough about the disease to realize why I have to bail out all the time!!

I think we all know how you feel! Maybe you can suggest PF Changs next time. It is right near Maggiano's and has a full gluten-free menu. Very good stuff! (of course eating out is always risky!)....

kbtoyssni Contributor

You should still go. I go out to lunch with my coworkers all the time and bring my own food. No one cares; they're all just hapy I can make it. The restaurants don't mind either. If they don't let me bring my own food they know we'd have to go somewhere that can accomodate me and they don't want to lose the business of all my friends. It's a little strange to start reaching into your lunchbox when everyone's meals arrive, but you gt used to it.

I went to a buffet once and handed them a cheese sandwich in one of those toaster bags for them to make me a grilled cheese. The server was thouroughly confused for a while at my one instruction for her: DON'T TAKE THE SANDWICH OUT OF THE BAG!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I agree that you should still go, and bring your own lunch. Socializing doesn't have to involve the food - though it's hard to separate it mentally when others are involved with food.

CarlaB Enthusiast
Carla is right and if it's the same place, you can order gluten free pasta ahead of time. I have it with their gluten-free alfredo sauce and a nice salad. There's enough to take left overs home. Some locations always has corn pasta but both ours require calling ahead so they have it for sure when you arrive. The Chef comes to the table to tell you what he can safely make you. They take allergies very seriously, at least in Atlanta.

If you don't have the chance to call ahead, go ahead and go anyway. I've never called ahead here in Cincinnati and they've always accomodated me very well!!! It's my favorite place to eat!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,034
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.