Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Glutening Intensity And Recovery Time Decrease W/ Healing?


eleep

Recommended Posts

eleep Enthusiast

My acupuncturist and other medical practicioners have all suggested that my glutenings will decrease in intensity and such once my body has fully healed. I'm not working with anyone with a great deal of knowledge and experience with celiacs, so I was wondering whether this is something people have found to be true in their own experience.

I've been diagnosed at 36 and my last two glutenings were in June and then about a month ago -- as best as I can tell from the most recent experience, it's taking me three weeks to feel like my health is back up to par. I've undergone a pretty intense acupuncture treatment which I can tell has speeded up the healing process and that last glutening was noticeably less severe -- but still pretty bad. I know that it's technically supposed to actually take 6-8 weeks for the body to fully recover.

What about those of you who've been gluten free for several or many years? How old were you when you were diagnosed? Do you find that the recovery time improves? Has something about the nature of your glutenings changed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



codetalker Contributor

I've been following a gluten-free diet for about 10 years now. Gluten accidents are very rare. However, when they occur, they are very consistent in terms of severity and duration of symptoms. None of this has improved over time. My body has probably healed as much of the previous celiac-related damage as is ever going to be healed.

Susan M-G Rookie
My acupuncturist and other medical practicioners have all suggested that my glutenings will decrease in intensity and such once my body has fully healed. I'm not working with anyone with a great deal of knowledge and experience with celiacs, so I was wondering whether this is something people have found to be true in their own experience.

I've been diagnosed at 36 and my last two glutenings were in June and then about a month ago -- as best as I can tell from the most recent experience, it's taking me three weeks to feel like my health is back up to par. I've undergone a pretty intense acupuncture treatment which I can tell has speeded up the healing process and that last glutening was noticeably less severe -- but still pretty bad. I know that it's technically supposed to actually take 6-8 weeks for the body to fully recover.

What about those of you who've been gluten free for several or many years? How old were you when you were diagnosed? Do you find that the recovery time improves? Has something about the nature of your glutenings changed.

ianm Apprentice

I glutened myself four weeks ago and I am finally back to normal. I experienced fatigue and brain fog but I was still able to function. The brain fog was not nearly as crippling as it used to be. It is probably safe to say that if you keep yourself healthy that any accidental glutenings will decrease in severity. However this could vary from person to person.

Lisa Mentor
I glutened myself four weeks ago and I am finally back to normal. I experienced fatigue and brain fog but I was still able to function. The brain fog was not nearly as crippling as it used to be. It is probably safe to say that if you keep yourself healthy that any accidental glutenings will decrease in severity. However this could vary from person to person.

I have had similar reactions. And I also will agree that it varies widely.

tarnalberry Community Regular

I don't think that it's changed wildly. It changed a bit in nature, actually getting 'worse', though that was mostly an issue of not always feeling icky, so I recognized not feeling well. It really varies person to person.

kbtoyssni Contributor

I've been gluten-free for 14 months and I think my glutenings are less severe now. I still get all my old symptoms back but I'm still able to function and live my life. The symptoms can drag on for two weeks, though.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
I don't think that it's changed wildly. It changed a bit in nature, actually getting 'worse', though that was mostly an issue of not always feeling icky, so I recognized not feeling well. It really varies person to person.

Yes, a poor choice of word on my part..I meant widely. Sorry Tiff, bad spelling on my part.

tarnalberry Community Regular
Yes, a poor choice of word on my part..I meant widely. Sorry Tiff, bad spelling on my part.

:huh: *scrolls down* :lol: hehehe... I just hit reply after reading the OP, and didn't see your post until now. (I was multitasking the last time I replied... who knows how many boo-boos I made... :rolleyes: ) I can totally see describing it either way. :)

Kody Rookie
I've been following a gluten-free diet for about 10 years now. Gluten accidents are very rare. However, when they occur, they are very consistent in terms of severity and duration of symptoms. None of this has improved over time. My body has probably healed as much of the previous celiac-related damage as is ever going to be healed.

I'm going way off-topic, but how much did that change your life? being gluten-free for 10 years? do you feel perfectly normal now? how long did it take? etc? I realize everyone is different, just trying to get an idea. Any info would be great! :)

darlindeb25 Collaborator

I think it is very hard to judge how severe an attack is only because most of us were so consistently ill before going gluten free that we never really had a time when we felt normal in comparison to other people. I think that once you go gluten-free and are gluten-free for years, then the reaction seems much more violent, only because we aren't used to having the reaction anymore. For now, my other intolerances keep me feeling so worn out and ackey, that I may not feel a gluten attack as violent. It is very, very rare now that I get diarrhea and when I do, it is usually from an accidental glutening. It's weird, as much as my intolerances are bothering me and as run down as I feel, I rarely ever pick up any bugs from other people. Knock on wood!!!!!!!

And Koty--I have been gluten free for 5 years. I remember that within a very short time after going gluten-free, I noticed a big difference in how I felt. Yet I was very ill then, so any improvement would have been heavenly. I was up almost every night with diarrhea, falling asleep on the toilet at times. After a few weeks gluten-free and being able to sleep through the night for days on end, was heaven. For me, going gluten free was a Godsend for 2 yrs or so. Then my soy intolerance cropped up, then in a few months, the corn jumped in the mix, a yr later rice joined them and then the nightshades. Somedays I feel like I am back at step 1 again, yet I know with these intolerances, I am not near as ill as I was with gluten. I do often wonder why I must go to the extreme with everything. My sister was so ill with celiacs and she has been gluten-free for 5 yrs also and has no other intolerances.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,923
    • Most Online (within 30 mins)
      7,748

    Amber Gumm
    Newest Member
    Amber Gumm
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.