Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Gluten Free Cookies Are Not!


loraleena

Recommended Posts

loraleena Contributor

Last night I was at a Boston area Whole Foods. They have new gluten free cookies by a company called Herrons (I think). Anyway they had chocolate chip and ginger spice. The front of the box said gluten free and suitable for Vegetarians and celiacs. So, I turned the box over and started reading ingredients. Guess what the first ingrediant was?? Wheat Starch!!!! On what planet is wheat starch gluten free?? I then picked up the ginger spice ones. This product said gluten free and wheat free. These cookies were made with corn and where gluten free. This company does not know that gluten free has to be wheat free. Holy crap. I took the product the customer service, and the man who helped me was quite concerned. He told me he would let the person who does the ordering know. I also suggested they contact this company who does not appear to understand what gluten free is. I am also going to try and contact them. Just wanted to warn everyone. These cookies were 7.99 a box and had a silouhette of a women eating a cookie on them. Stay away!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VegasCeliacBuckeye Collaborator

FYI,

Lately, there have been a fe companies that claim that processed wheat starch does not actually contain any gluten (due to the way it is processed and filtered).

Personally, I have not ventured a try in that arena, but that is what a number of companies have said.

I wonder if GIG or CSA has an opinion on this...

Lauren M Explorer

In England, they use wheat starch in "gluten free" products. Yeah, anything with the word "wheat" in it... I would be leary...

- Lauren

Ursa Major Collaborator

They claim the same in Germany. I was (well, still am, I guess) a member of a German celiac forum. Many of the members said they weren't getting any better, even though they were 100% gluten-free. I suggested they'd cut out any products with wheat starch to see if it made a difference. The people who were part of the bigshot celiac disease organization in Germany who were on that site were very insulting to me, and told those other people not to listen to me, because I didn't know what I was talking about. And that if they weren't getting any better on the diet (which included wheat starch), that must mean that they weren't really celiacs but must have something else, because otherwise they'd have gotten better already. I was soooooooo mad! And never went back. Who needs it.

I heard that there was a celiac disease conference in Finland, where they served a lot of stuff with wheat starch, and many of the people who came from North America reacted to a lot of the food and got sick.

So, personally, after reading a lot about this kind of thing, I wouldn't touch anything with wheat starch with a ten foot pole. They also claim that wheat germ oil doesn't contain gluten. You tell my skin that, I react terribly to shampoo that has it as an ingredient.

Nantzie Collaborator

Ursula, that's horrible!!!! To think that we hear how much more understood celiac is in much of Europe, and to see that some countries are even worse off than us. Yikes! We go to Germany every few years to visit family there. I think I'll be shipping a box of food and supplies over there before we go rather than risk having to rely on too many things there. Those poor people... Ouch!

Back to the cookies. I hope that this was a case of a misprinted ingredients list, which happens from time to time I'm sure, and not an outright disinterest in the long- and short-term health of their customers.

I remember one time, very, very early on in eating gluten-free (the first week I think). My husband hadn't made a stroganoff thing that he makes, which I love, in months. It uses Campbell's Cream of Mushroom soup, and I was so excited about him making it that I even put it out on the counter for him while I was helping him gather the ingredients so he could make it. After I ate and started itching like I had poison oak, I looked and it had wheat starch of course. Two days of stomach issues too.

How do those people have the b@lls to tell celiacs that wheat starch is okay? Give me a break!

:rolleyes:

Nancy

lorka150 Collaborator

i googled them out of curiousity (Heron is the brand) and they are Ireland-based.

Guest cassidy

There needs to be some sort of regulation for what gluten-free means. It is hard enough to figure out what to eat, nevermind having to make sure that gluten-free really means gluten-free. I'm glad Amy's took gluten-free off their products and now say no gluten ingredients.

Personally, I don't think products that have a high risk of cc should be able to be labeled gluten-free. gluten-free should mean no ingredients that contain gluten, no gluten in the facility. No gluten ingredients should mean no ingredients but gluten is in same facility. I love those labels where it states if gluten is in the same plant, I think eveyone should have to do that.

As far as the cookies, I hope Whole Foods didn't have anything pointing them out as a gluten-free food.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tim-n-VA Contributor

Since gluten is technically the protein on the grain, IF they can reliably separate the starch from the protein it is gluten-free. I've only been reading this board for about two months but it seems that celiac frequently comes combined with a wheat allergy and if you are one of those people you obviously shouldn't have the wheat starch either. We each have to make decisions on what we think is safe for us and/or worth the risk but I don't think their is anything inherently wrong with labeling something gluten-free that contains wheat starch.

tarnalberry Community Regular

Starch is starch, protein is protein, and in theory, if you can separate the wheat protein from the wheat starch, you can have wheat starch that is gluten free, just as tom-in-va said. The process is the problem. They do seem to be able to do this to CODEX standards (which I don't think are stringent enough), and I thought down to 20ppm, but I don't remember rightly.

US definitions for gluten-free are coming in 2008.

jaten Enthusiast
US definitions for gluten-free are coming in 2008.

Please, please let it be <20ppm, NOT <200ppm. When I eat food that measures less than <20ppm I never react; I cannot say the same for the greater allowance.

loraleena Contributor

I did not know that about wheat starch. Anyway I wouln't touch it anyway. Whole foods did have it labeled gluten free with a sign. It says gluten free on the box, but not wheat free.

TinkerbellSwt Collaborator

I, personally, stay away from anything that has the word wheat in it. I know how lousy I feel when I ingest anything with gluten in it and it just isnt worth it for me. My foods have to be totally gluten free. This is just my personal view. I know I have heard of people being able to digest wheat starch safely. I am too much of a scaredy cat. :ph34r:

KaitiUSA Enthusiast

Yea I stay away from anything with the word wheat in it. I not only have celiac but I have a severe allergy to wheat. You always have to read the label because policies are different everywhere....wheat starch in my opinion is far from gluten free

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal.  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) the small intestin in Celiac Disease and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  Why is poorly understood.  In fact, it wasn't even know that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So as part of your symptoms you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were sypmptos. Our western diet has many deficiencies build into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks for symptoms can come on quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, and indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog, deficient choline, iodine, thiamine. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study    
    • Rogol72
      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.