Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Cancer

jkmunchkin

Recommended Posts

jkmunchkin Rising Star
jkmunchkin
Posted

I just found out today that one of my friends has brain cancer. She is in her mid-20's. :(

I guess I'm just looking for someone to tell me that I'm wrong, and that she has more than a few years to live. She is one of the funniest, sweetest, most incredible people I have ever met. It's just not fair. I don't want the reality of it to be true.

Someone please tell me some miraculous story of someone they know who beat brain cancer.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I know one person who had a tumor removed in college and did fine.

I know another person that was given six months for an inoperable tumor, decided to enjoy what time he had, five years later, we moved, so I don't know how he's doing.

So, you get two stories!! I'll say a prayer for your friend.

Canadian Karen Community Regular
Canadian Karen
Posted

The principal at my husband's school had brain cancer about three years ago. She had the surgery, was off for 1/2 year, and then back stronger than ever! She's still the principal there........ no signs of recurrence...

Prayer being said here too........

Hugs.

Karen

Mtndog Collaborator
Mtndog
Posted

Yep- my sister's best friend had brain cancer and she's back working as a nurse!

I'm sorry to hear about your friend's diagnosis but you kno we're all here for you!

Corkdarrr Enthusiast
Corkdarrr
Posted

One of our family friends had brain cancer towards the end of highschool. He had several surgeries and essentially now has two 'trapdoors' in teh back of his head.

Either way, that was almost 10 years ago and last I heard he's livin' it up in Colorado or something fun like that. Ski instructor maybe?

almostnrn Explorer
almostnrn
Posted

My mom was diagnosed with cancer (lung) last fall. She had 5 affected areas on her brain as well. Now I am not a specialist and I can only speak to my moms case. The oncology team that she had told her that the cancer on her brain was the least of their worries as far as being a treatable condition. They worked on those spots first and were able to eliminate them completly. I"m so sorry to hear about your friend and I understand how scary that kind of diagnosis is. I will keep you and your friend in my prayers for the challanges you both have ahead of you. The treatments available now for all kinds of cancers are amazing but she will be going through alot emotionally and medically.

tarnalberry Community Regular
tarnalberry
Posted

I'm sorry to hear about your friend. :( I hope it's treatable!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Michi8 Contributor
Michi8
Posted

I'm so sorry to hear about your friend. If anything, she's got age and strength behind her, so she may do really well.

My FIL was diagnosed with two kinds of brain cancer last May and, unfortunately, is not doing as well as we'd hoped...one cancer (oligodenderoglioma) was stage 4, and the other (gioblastoma) stage 1, but very agressive. We have not given up hope, though, he continues to go through chemo treatment...still has 5 months of treatment to go.

However, in my search for more information I found a a couple of inspirational stories online. One is of a man who has beat the odds and has survived more than 9 years post surgery:

Open Original Shared Link

The other is of a man who has survived about 8 years now:

Open Original Shared Link

There are also some really positive new treatments being discovered/tested now. I hope that your friend has great success with beating this tumor. Support of friends will help a lot.

Michelle

lovegrov Collaborator
lovegrov
Posted

Lance Armstrong's didn't start as brain cancer but it did spread to his brain.

richard

jkmunchkin Rising Star
jkmunchkin
Posted
  • Author

Thanks guys!!! These stories really cheered me up and gave me hope for her. I've been so upset about it since I found out.

jerseyangel Proficient
jerseyangel
Posted

Jillian,

I don't have any experience or stories about this, but I certainly wish the best for your friend. :)

floridanative Community Regular
floridanative
Posted

Jillian - I am so sorry to hear about your friend but I have a feeling with a friend like you - she'll be just fine. I truly believe that the power of the human spirit is stronger than science will ever understand or be able to explain. The way you describe your friend I think she's already way ahead of the game. We're all pulling for you both to get through this trying time.

ianm Apprentice
ianm
Posted

I have a friend who discovered she had very advanced lymphoma when she was 21. There were no symptoms until it was spread throughout her body. After a year of agressive radiation and chemotherapy the cancer was gone. 15 years later she is doing just fine and the cancer has never returned which is unusual for lymphoma. It is possible to beat cancer.

NicoleAJ Enthusiast
NicoleAJ
Posted

When I was in third grade, one of my friends, a fellow classmate, was diagnosed with brain cancer. She had to miss the second half of the school year and stay back a grade, but as far as I know, she's still doing well, and we're in our late twenties now.

I wish all the best for your friend's recovery.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748
    ChrisMary
    Newest Member
    ChrisMary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.