Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Cancer

jkmunchkin

Recommended Posts

jkmunchkin Rising Star
jkmunchkin
Posted

I just found out today that one of my friends has brain cancer. She is in her mid-20's. :(

I guess I'm just looking for someone to tell me that I'm wrong, and that she has more than a few years to live. She is one of the funniest, sweetest, most incredible people I have ever met. It's just not fair. I don't want the reality of it to be true.

Someone please tell me some miraculous story of someone they know who beat brain cancer.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I know one person who had a tumor removed in college and did fine.

I know another person that was given six months for an inoperable tumor, decided to enjoy what time he had, five years later, we moved, so I don't know how he's doing.

So, you get two stories!! I'll say a prayer for your friend.

Canadian Karen Community Regular
Canadian Karen
Posted

The principal at my husband's school had brain cancer about three years ago. She had the surgery, was off for 1/2 year, and then back stronger than ever! She's still the principal there........ no signs of recurrence...

Prayer being said here too........

Hugs.

Karen

Mtndog Collaborator
Mtndog
Posted

Yep- my sister's best friend had brain cancer and she's back working as a nurse!

I'm sorry to hear about your friend's diagnosis but you kno we're all here for you!

Corkdarrr Enthusiast
Corkdarrr
Posted

One of our family friends had brain cancer towards the end of highschool. He had several surgeries and essentially now has two 'trapdoors' in teh back of his head.

Either way, that was almost 10 years ago and last I heard he's livin' it up in Colorado or something fun like that. Ski instructor maybe?

almostnrn Explorer
almostnrn
Posted

My mom was diagnosed with cancer (lung) last fall. She had 5 affected areas on her brain as well. Now I am not a specialist and I can only speak to my moms case. The oncology team that she had told her that the cancer on her brain was the least of their worries as far as being a treatable condition. They worked on those spots first and were able to eliminate them completly. I"m so sorry to hear about your friend and I understand how scary that kind of diagnosis is. I will keep you and your friend in my prayers for the challanges you both have ahead of you. The treatments available now for all kinds of cancers are amazing but she will be going through alot emotionally and medically.

tarnalberry Community Regular
tarnalberry
Posted

I'm sorry to hear about your friend. :( I hope it's treatable!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Michi8 Contributor
Michi8
Posted

I'm so sorry to hear about your friend. If anything, she's got age and strength behind her, so she may do really well.

My FIL was diagnosed with two kinds of brain cancer last May and, unfortunately, is not doing as well as we'd hoped...one cancer (oligodenderoglioma) was stage 4, and the other (gioblastoma) stage 1, but very agressive. We have not given up hope, though, he continues to go through chemo treatment...still has 5 months of treatment to go.

However, in my search for more information I found a a couple of inspirational stories online. One is of a man who has beat the odds and has survived more than 9 years post surgery:

Open Original Shared Link

The other is of a man who has survived about 8 years now:

Open Original Shared Link

There are also some really positive new treatments being discovered/tested now. I hope that your friend has great success with beating this tumor. Support of friends will help a lot.

Michelle

lovegrov Collaborator
lovegrov
Posted

Lance Armstrong's didn't start as brain cancer but it did spread to his brain.

richard

jkmunchkin Rising Star
jkmunchkin
Posted
  • Author

Thanks guys!!! These stories really cheered me up and gave me hope for her. I've been so upset about it since I found out.

jerseyangel Proficient
jerseyangel
Posted

Jillian,

I don't have any experience or stories about this, but I certainly wish the best for your friend. :)

floridanative Community Regular
floridanative
Posted

Jillian - I am so sorry to hear about your friend but I have a feeling with a friend like you - she'll be just fine. I truly believe that the power of the human spirit is stronger than science will ever understand or be able to explain. The way you describe your friend I think she's already way ahead of the game. We're all pulling for you both to get through this trying time.

ianm Apprentice
ianm
Posted

I have a friend who discovered she had very advanced lymphoma when she was 21. There were no symptoms until it was spread throughout her body. After a year of agressive radiation and chemotherapy the cancer was gone. 15 years later she is doing just fine and the cancer has never returned which is unusual for lymphoma. It is possible to beat cancer.

NicoleAJ Enthusiast
NicoleAJ
Posted

When I was in third grade, one of my friends, a fellow classmate, was diagnosed with brain cancer. She had to miss the second half of the school year and stay back a grade, but as far as I know, she's still doing well, and we're in our late twenties now.

I wish all the best for your friend's recovery.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,034
    • Most Online (within 30 mins)
      7,748
    CE1963
    Newest Member
    CE1963
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.