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"specific" Versus "non-specific" Celiac Disease

tarnalberry

By tarnalberry
in Coping with Celiac Disease

"Specific" versus "Non-specific" Celiac Disease  

38 members have voted

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tarnalberry Community Regular
tarnalberry
Posted

The thread on Open Original Shared Link and one of the posts that Carriefaith left got me thinking about the idea of 'specifc' and 'non-specific' celiac disease. Where the instigating chemicals in the intestinal reaction are either highly specific for gliadin, secalin, and horedin, or are not so specific and can react to things that are similar. (Not just the idea of cross reactivity, but the idea that there may be two subtypes of celiac.)

So, I'm curious about our population (which is *absolutely* not representational, but fun to look at none the less) and thought I'd start this poll. Yes, I know that I'm leaving soy off the list. As I've been unable to find evidence that it is also a proline-rich protein of similar structure to gliandin, I'm not considering it for now. (Not that I don't believe there can be cross-reactivity, it's just not ready to go into my poll. :P)

And here is a *fascinating* article about the whole thing: Open Original Shared Link Wow... there's a whole host of information on the chemical basis for cross-reactivity and non-celiac gluten intolerance here. Yummy! :)

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frenchiemama Collaborator
frenchiemama
Posted

I voted "none of the above". I believe that I am allergic to soy and or dairy, because I get sneezy/stuffy and get eczema from dairy and I get eczema and anxiety/insomnia from soy. I *may* have a problem with oats, because right before I was diagnosed I was on a huge steel cut oats kick and my symptoms were much, much worse than they had ever been in the previous years (when I rarely ate oats). My husb said that I had "sores on top of sores" during that time. I haven't been brave enough to try oats again.

jerseyangel Proficient
jerseyangel
Posted

I voted that I react to both dairy and oats.

As you know, I am intolerant to many other foods, but those are for a different poll :D

tarnalberry Community Regular
tarnalberry
Posted
  • Author
I voted that I react to both dairy and oats.

As you know, I am intolerant to many other foods, but those are for a different poll :D

So how do you edit a poll? Because one of the options was specifically for that, only I worded it totally wrong. :P

Carriefaith Enthusiast
Carriefaith
Posted

I voted for being intolerant to gluten and casein. I have never tried pure gluten-free oats while on the gluten-free diet.

When I first started having problems with dairy I had allergy testing done in 2003 and tested negative for milk allergy. Around the same time, I would eat diary with the maximum (or more) about of lactaid and still have a reaction, which told me that I was most likely intolerant to casein and not lactose (or perhaps I was intoelrant to both)! An allergy test in 2006 showed that I had a milk allergy, but it showed as only low on my test. I have reason to believe that I may have an intolerance and an allergy to casein.

jerseyangel Proficient
jerseyangel
Posted
So how do you edit a poll? Because one of the options was specifically for that, only I worded it totally wrong. :P

I would sent a PM to Scott and ask him to make the changes that you want. I'm sure that he'll be able to do that :)

If you want, I can "hide" the thread until he makes the changes.

Ursa Major Collaborator
Ursa Major
Posted

Tiffany, I voted to be intolerant to both dairy and oats. The option that said I am intolerant to many things other than dairy or oats I took as, that I am intolerant to things OTHER than dairy and oats, and can have those. But I am intolerant to everything under the sun INCLUDING dairy and oats. :rolleyes:

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AndreaB Contributor
AndreaB
Posted

I picked that I have other intolerances, but not to oats. This is via ELISA IgG testing but I either reacted to oats or the barley enzyme in rice dream while I was gluten lite.....before enterolab.

SchnauzerMom Rookie
SchnauzerMom
Posted

Besides gluten the only other thing that I'm certain that I'm intolerant of is High Fructose Corn Syrup. No doubt there, it gives me cramps and diarrhea. :angry:

Helena Contributor
Helena
Posted

I voted assuming that allergies fall under the category of intolerances for the purpose of this poll. (Besides gluten I have other intolerances, casein not being one of them).

happygirl Collaborator
happygirl
Posted

tarnalberry,

i voted for "doesn't apply" for the same reason patti did...so if it gets changed, change my vote to "too many issues to count" or "doctors don't know what to do with me" :)

tarnalberry Community Regular
tarnalberry
Posted
  • Author

Yeah, this one: "Besides wheat, barley, and rye, I strongly believe or know via testing that I react to other foods, but neither oats (avenin) or dairy (casein)." was supposed to be "Besides wheat, barley, and rye, I strongly believe or know via testing that I react to other foods, including both oats (avenin) and dairy (casein)." Otherwise, this question is duplicated by #8! Oops.

debmidge Rising Star
debmidge
Posted

via testing intolerant to : gluten, wheat, soy, yeast, corn, cow's milk, egg yolk, lentils, garlic (mostly York Testing).

Can't digest for some unknown reason: fruits, vegetables, spices, fried foods, nuts,

However, yeast, corn, cow's milk and some egg must be consumed otherwise I'd be living on air.

-- Mike

hannahsue01 Enthusiast
hannahsue01
Posted

Besides gluten I have problems with dairy and eggs. Actually I react worse to eggs than anything.

Saz Explorer
Saz
Posted

I choose the first one. I was thinking that maybe I had a little dairy intolerance but think its just really cold things rather than the dairy.

When I was diagnosed we were told that oats had gluten, for this reason I've never eaten them in great quantities, so I guess I could be allergic to them but not really an issue.

Guest AutumnE
Guest AutumnE
Posted

I currently react to oats and the other common celiac triggers. I also now cannot tolerate dairy, soy or corn.

As a child before I was aware of the gluten problems I had an allergic type reaction to corn which was a facial rash. Then it appeared to have gone away throughout my teen years and early adult years. Now as a recovering celiac I have problems with dairy, soy and a really bad reaction to corn (not rash but a host of other issues). Eggs do not like me I get nausea and flatulence really badly. Im not sure if thats an intolerance but I'm not to keen on the reaction of them so I avoid them.

Budew Rookie
Budew
Posted

I have tested positive for celiac. Everything else I have discovered through elimination.

I have strong reactions and feel sure that Iodine, eggs, nightshades (especially tomato, pepper, banana, white potato) all are very problematic.

I can tolerate small amounts of dairy. One serving of hard cheese or ice cream daily seem okay.

Milk is out but cream in my coffee is not a problem.

Acidic foods, vinegar, soda, wine, and cucumber are very iffy.

I stay away from high salicylic foods.

Still not feeling well so I have eliminated soy, no verdict yet.

I have cut down on corn products, but I am not meticulous, no verdict here either.

I have been vegetarian for 30 years by choice, but now react to exposure.

I have not tried oats because I haven't seen clear data saying it is okay.

I have trouble ingesting fats, so I stick to margerine, olive oil, and sesame oil. (small amounts)

dlp252 Apprentice
dlp252
Posted
I voted that I react to both dairy and oats.

As you know, I am intolerant to many other foods, but those are for a different poll :D

Ditto, except that I don't know what they all are yet, lol. :lol:

Jay Elle Newbie
Jay Elle
Posted

I am intolerant to milk as well, but there seems to be another intolerance there as I still get some symptoms and hella migraines (got one now :( )

emcmaster Collaborator
emcmaster
Posted

I voted none of the above.

I'm not sure if I react to gluten-free oats because I have yet to try them. They're on my list to try, though.

I have reacted to dairy since before I knew gluten was a problem, but recently, I've discovered I can handle dairy again. I'm still figuring out how *much* I can handle. I still consider myself somewhat dairy intolerant, if only because I was for a long time.

For 2 years now, I've had a lot of trouble digesting even small amounts of fat (type doesn't seem to matter). Recently, along with the dairy, I've begun to be able to have it, which is very exciting.

Ursula explained that I'm probably able to tolerate dairy and fat again because my villi have started to heal since being gluten-free for 7 months.

I've found that my body doesn't like soy, but I think that's mostly because of my thyroid problems and maybe not at all related to stomach issues.

Just my $.02.

ajay Newbie
ajay
Posted

I went with "Besides wheat, barley, and rye, I strongly believe or know via testing that I react to other foods, but neither oats (avenin) or dairy (casein)."

I react to the usual suspects with both allergic and digestive symptoms. I am allergic to corn and lactose intollerant. The jury is still out on oats, and since a casein sensitivity hasn't occurred to me, I haven't tried eliminating dairy... perhaps I should...

I confess, whenever I start feeling sorry for myself (All the gluten-free stuff has Stupid Corn in it! Why is there Maltodextrin in medications?!) I just go to these message boards for a reality check. Postings here help me realize how lucky I am for all that I can eat

bluejeangirl Contributor
bluejeangirl
Posted

I get immediate reactions to eating bananas and potatoes. I was reading these posts and it hit me that it might be nightshades as a whole. I never considered it because I avoid tomatoes mostly because I have a tendency to get acidity with it. Same with oranges. I did allergy testing over 20 years ago and I reacted to so many things the doctor looked at my husband and said you have a sick wife that really needs you to believe her.

It freaked me out. I didn't take the news to well and threw away the test results and got involved in faith healing. I wish I hadn't done that but I didn't think I would get well at the time looking at all the foods I was intolerant to.

Stubborn, I know.

Gail

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