Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Gluten Free?

rez

By rez
in Coping with Celiac Disease

Recommended Posts

rez Apprentice
rez
Posted

Hello All! One of my son's worst symptoms before we went gluten free were canker/mouth ulcers. There were multiples and they lasted a long time and were really painful. He's been on a gluten free diet since Sept 5th, 2006. The only two lapses we've had which resulted in canker sores involved 3 Muskateers Bars/other treats. He seems to do so well when I keep him on a very strict diet. Meaning mostly whole foods and foods I buy that are labeled gluten/casein free. It's so frustrating!! Does anyone else have issues w/ mainstream candy bars. The other things he ate for Halloween were Reese's PB cups, M&M's, and a massive Hershey Caramello Bar. I found one list that says Caramello Bars are gluten-free and one that says they aren't. It's so hard to keep him away from every treat, but I just feel he doesn't tolerate them well. :( Let me know your thoughts. :) Also, does chocolate bother anyone? I know another of his symptoms was acid reflux, maybe it flares it up???????????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


daffadilly Apprentice
daffadilly
Posted

It could be the dairy in the chocolate, and yes, some people do react to chocolate, also it could be the cross contamination from the bars themselves or the wrappers - did someone with wheaty hands give it to him & then he touches the wrapper & then the candy bar? Ws the candy bowl sitting out on the counter when someone was making a cake or something?? sorry if this seems far fetched to some but I am super sensitive & things like this happen to me. I am not sure about the candy bars that you are asking about. there is a list of candy on the silly yak web site, she posted it on the list serv. Are you a member of list serv? You could also google it, or someone might chime in here that has it.

I know that a milky way bar IS NOT gluten-free

I do know that I react to ALL Brachs candy & they are not co-operative about telling you what is in their candy. I also cannot eat the miniature Hershey bars, no matter what the Hershey people say - they give me a stomach ache & no I am not eating the rice cereal ones either.

It seems to me that the candy company have changed a lot of the chocolate things recently because I can tell by the taste. the Hershey regular candy bar is no where the same as it was 40 years ago, they have changed it several times since then.

For home baking (fudge & cookies) my favorite chocolate so far is Sunspire Organic Chocolate chips, ingredients: Organic sugar, Organic Unsweetened chocolate, organic cocoa butter, soy lecithin, organic vanilla. I had no reactions to this chocolate!!!! I have kept the package because I want to replenish my stash. No DAIRY is a big plus when it comes to chocolate!!!

some people that have children, have a system for replacing all that trick or treat candy, they either buy it from the kid, or trade it for like treats that are gluten-free & not cross contaminated etc. I think they go into details like this on the kids boards like Silly Yak. I think then some of them maybe donate the treats to friends etc. The kid somes out like a hero giving all that candy away!!!

daffadilly Apprentice
daffadilly
Posted

Here is the link, the lady that does this list name is Melonie Katz

Open Original Shared Link

Nooner Newbie
Nooner
Posted

It could be another intolerance, something else in the candy bar. I react to the soy in chocolate, but I don't react if I use cocoa powder in baking.

Just a thought.

~Li

2kids4me Contributor
2kids4me
Posted

ditto to the soy. Soy is used in many candy bars.

You could try plain choc chips or plain choc with no soy and see if he reacts.

As a treat, I make crispy rice squares (gluten free crispy rice cereal, marshmallows, butter) and stick choc chips in before its sets.

HawkFire Explorer
HawkFire
Posted

I believe the soy is the issue. We had to eliminate soy several years ago.

arc Newbie
arc
Posted
I also cannot eat the miniature Hershey bars, no matter what the Hershey people say - they give me a stomach ache & no I am not eating the rice cereal ones either.

Weird. I had the same reaction this weekend when I had a few of those plain minis. I don't think I have a problem with the full size bars or Kisses.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jmengert Enthusiast
jmengert
Posted

On the Delphi forum, several people have said that Hershey's miniatures are not gluten-free because they reuse the paste for all the types, and apparently it has barley in it. However, I have not spoken to anyone myself about this, but I wanted to pass on what I've heard. I avoid the miniatures, just in case.

Gamecreature Rookie
Gamecreature
Posted

I have to agree, there's probably a risk of cross contamination in the miniature product that is not present when the full sized product is manufactured on its own, dedicated line.

mandyann Newbie
mandyann
Posted

I made myself very sick with Hershey's miniatures two weeks ago. Specifically, Reeses and Snickers, both of which are listed as gluten free on the Hershey's website (but not the miniatures). Also, a while back I gave myself an instant migraine from a 3 Muskateer's bar. My doctor feels that there is alot of cross contamination going on at the manufacturing facility.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Weird. I had the same reaction this weekend when I had a few of those plain minis. I don't think I have a problem with the full size bars or Kisses.

Me, too!!! I had Reese's Peanut Buttter Cups, Butterfinger's, and Baby RUths (each on different days), and each time I got cramps and minor D. :(

Gamecreature Rookie
Gamecreature
Posted

I think some research needs to go into the preparation of these fun-sized snacks. Maybe Mark Summers (Unwrapped) will look into it for us. In the meantime:

FUN SIZE IS NOT THE SAME AS FULL SIZE!

rez Apprentice
rez
Posted
  • Author

wow! Thanks for all the great replies and now I'll stop doubting myself!!! Mainstream candy bars may be a good thing to stay away from! :)

Lisa Mentor
Lisa
Posted
I think some research needs to go into the preparation of these fun-sized snacks. Maybe Mark Summers (Unwrapped) will look into it for us. In the meantime:

FUN SIZE IS NOT THE SAME AS FULL SIZE!

Two baby ruths "minis" got me on Sunday. Tummy still talking.

majicbunnies Contributor
majicbunnies
Posted

I had a few bags of fun sized m&ms and felt fine, then a week or two later, I seemed to react to them when I ate more. I had some the other day, and got sick today when all I had was a pb&j. I use my own peanut butter, jelly, and gluten free bread...I hope it's not the m&ms. They're my favorite! I'm assuming it was the m&ms, and it just took until they reached my intestines for them to make me sick.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac...
    2. Gigi2025
      - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

      No, I've not been diagnosed as celiac. Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction. However, avoiding it here in the states. Thanks everyone for your responses.
    3. Rejoicephd
      - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed...
    4. catsrlife
      - catsrlife posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Patiently Waiting to See Results

      Back at the end of July I got this rash on both of my forearms. It started on my right and continued to the left. It was on the top and side. The rash has bumps that would pop with clear liquid if scratched. They would almost crystalize and scab up. They reminded me of chicken pox. They would scab for weeks and not heal much at all except for the blood clotting...
    5. ElenaM
      - ElenaM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think I am gluten intolerant

      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,897
    • Most Online (within 30 mins)
      7,748
    Sgp
    Newest Member
    Sgp
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      Back at the end of July I got this rash on both of my forearms. It started on my right and continued to the left. It was on the top and side. The rash has bumps that would pop with clear liquid if scratched. They would almost crystalize and scab up. They reminded me of chicken pox. They would scab for weeks and not heal much at all except for the blood clotting. If the scab was scratched off, it would bleed and bleed until it scabbed up again. The skin has lost its pigment where the scabs are. I figured it was probably either the plant I had trimmed around the 15th or some reaction to the magnesium complex I was taking or an allergic reaction to the asthma meds I was on. I stopped the asthma meds and the magnesium. The rash seemed to get better but when I took the asthma meds it flared up again so I went to the urgent care as my doctor was unavailable. The UC doctor said it probably wasn't the meds and asked about my diet. I said I was strict keto. I usually am, but there is a story around this. I feel amazing on keto. When I eat sugar, wheat, and starchy veggies I feel horrible. Blood sugar goes up, IBS type symptoms, brain fog, etc. But I have a horrible addiction to carbs so I blow it sometimes and after Mom died in 2023, I fell off the wagon. No rashes, just weight gain. I finally went back on keto and then around that time had a piece of pizza (or so, it's hard to stop the carb rush.) So I was strict keto, off and on. She ignored that and prescribed some allergy meds. It didn't go away.  What was happening by then was that the rash was now on my upper elbows, both of them, on the back of my arms. It starts with a very itchy bump, spreads around it and sometimes just burns like crazy and other times just itches. Then it started on the sides of my knees on the oustide, a little bit down the sides of the calves. It's not as bad there as it is on my arms even though it comes and goes (and so does wheat in my diet.) I then got three tiny blisters on each hand, 3 on the insdie of my index finger on the right hand and 3 on the inside of middle finger of my left hand. There is still a little scab there even though it was two weeks ago. No more have appeared on the fingers. But right now the back of the arms above my elbows are starting to itch. At some point I started to think mites from the possum that was sneaking into our house but it's been 3 months and they would be dead already. It wouldn't be from humans because I don't go near any humans although I did take an Uber to the doctor and the bus back. Plus, it's symmetrical. It starts on one side and is almost identical on the other.  I did my DNA with Ancestry and MyHeritage. I don't have the HLA-DQ2 or HLA-DQ8. I do have HLA-DQ2.2. I took the blood test but it was negative. Then again, I don't eat wheat every day. I rarely eat it except for lately when I've been preparing for the blood test if I have to take it again. I don't like to. It makes my joints hurt, gives me brain fog, stomach problems, I sleep in the middle of the day, etc. I have a doctor appointment tomorrow. I hope that she will be more serious about this than the UC doctor was.  So I have no idea. With my luck they'll magically disappear before the doctor appointment. That's what happens with everything.
    • ElenaM
      I think I am gluten intolerant

      By ElenaM · Posted

      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.