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Endo,fibroids And Cysts


Firegirl43

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Firegirl43 Contributor

Ok I just had a laprascopy for pelvic pain and all sorts of other stuff and they told me that they found endometreosis , fibroids and a cysts. My mom asked me if it ( or some of it )could be becase of being a celiac. Could it?


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jerseyangel Proficient

I honestly don't know if there's a link. I have cysts, fibroids and also uterine polyps (found and removed when doing another procedure).

georgie Enthusiast

I have this too. My Dr tested me and found I was oestrogen dominent and I now use a bio identical Progesterone Cream each day to get my hormones balanced. It was dx by a saliva test. Do a Google search for oestrogen dominence and endo, fibroids, cysts. Don't know about Celiac causing them.

Audiori J Newbie

Strange, I also had a cyst. But mine was in my sinuses.

Deej Newbie

I don't know if they are related. I had a hysterectomy, bi-lateral oopherectomy due to endometriosis nearly twenty years ago, before I was diagnosed with Celiac Disease.

georgie Enthusiast

I have just had my 6 month post op checkup and scan today and NO CYST has regrown ! I don't know if its the Armour Thyroid meds, the Iodine, the bio identical Progesterone Cream to normalise my oestrogen dominence or the Celiac diet - but am sticking to all 4 !! :lol:

whitball Explorer

I had several surgeries in my life time. Three c-sections, two laparoscopies to take out ovarian cysts and a hysterectomy. Now I have intersistial cystitis and chronic pelvic pain. I wonder if they were related too.


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  • 1 year later...
ncyim Newbie
I don't know if they are related. I had a hysterectomy, bi-lateral oopherectomy due to endometriosis nearly twenty years ago, before I was diagnosed with Celiac Disease.

Hi Deej - I'm writing a paper for school about women's experiences with hysterectomy and would love to interview you! Please let me know if you are interested - ncyim - hotmale ;-)

BTW - I've been reading a lot about gluten-free helping with gyn pain and bleeding issues. Is anyone studying this relationship?

Nyxie63 Apprentice

I've got cysts in my thyroid, breasts, ovaries and cervix. Oddly enough, they're all on the left side. Go figure. :huh: Been dx'd with PCOS, but no sign of endometriosis or fibroids on the pelvic or trans-vag u/s. The Holistic MD told me to cut out all processed foods, as it was a contributing factor to cyst growth. He didn't go into any further detail on this.

Georgie,

Glad to hear of your success! :) I'm also on iodine supplementation. Take 8 drops of Lugol's daily. The dr recently rx'd 1/2 grain of Nature-Thyroid, but I haven't taken it yet. Still waiting on my ferritin results before starting on that again. I'm hoping the combination of iodine and thyroid med will get rid of all of the cysts, given time.

SpikeMoore Apprentice

I have looked into the relationship and one of the things that they suggest you avoid eating with endo is wheat. (I think it should be gluten). They are now looking at endo as an autoimmune condition and once you have one...

Here's my theory at this point. If you have "mediators of inflammation" in your abdomen from celiac (=chemicals relased in inflammatory processes such as gluten ingestion) it is only going to make other inflammatory conditions, such as endo, worse.

Looking back, the two started about the same time, around 15 years old or me. Who knows.

HAK1031 Enthusiast

I was just about to post this topic! I was dx'ed with endo about 3 months before my celiac symptoms started...since going gluten-free I've been somewhat better. interesting...

JodiC Apprentice

Hi,

I also have had a hysterectomy due to endo. I've discussed this with my doctors and they agree that these conditions are linked to Celiac. Not that everyone has celiac but if you do then the problems can be more severe and effect more systems. Had I been diagnosed with Celiac ages ago I probably would still have my uterus and ovaries. I would have had "normal" pregnancies and less cysts. After my hysterectomy I wasn't able to take HRT due to flare ups but now am able to. Incidently, I had the operation before the diagnosis of Celiac. I wish I had known about the Celiac as I probably would have been able to save some of my parts :) Live, Learn and Educate.

  • 10 months later...
JenCO Newbie

I was diagnosed with a very large fibroid (size of 5 month pregnancy) in 2003. It was growing rapidly, and my doctor said I had candida, so I went on a yeast-free diet. Co-incidentally, I also pretty much gave up wheat because I noticed it was making me feel very tired after eating it. My fibroid stopped growing. In fact, I found that it grew only when I went on holiday, and these were the times that I found it difficult to stick to being yeast & wheat free. This happened 4 times.

Fibroids are usually associated with high estrogen levels, however my estrogen is extemely high, but it's not growing at the moment.

I already knew I was lactose intolerant (pasteurised makes me feel nauseous, and unpasteurised gives me eczema), so in March 2008 I decided to have a food intolerances test done. They measured IgG antibodies. I'm intolerant of 14 foods, including gluten (gliadin), wheat, yeast, dairy, eggs, sesame, oats, tomato, peppers.

I suspect I have celiac disease because I have daily diarrhea and a strange itchy rash if I accidentally eat wheat.

I also have hypoglycemia (not diabetes), and my gallbladder area feels uncomfortable, so I'll soon find out if I have a problem there too.

So I've given up gluten, wheat, dairy & yeast completely, and mainly given up the rest.

You'd think with all that going on, I'd be pretty downbeat, but I'm not.

Instead, I'm now wondering when things are going to start turning around.

debmidge Rising Star
Ok I just had a laprascopy for pelvic pain and all sorts of other stuff and they told me that they found endometreosis , fibroids and a cysts. My mom asked me if it ( or some of it )could be becase of being a celiac. Could it?

These were my health problems too (over the reproductive years) and probably since I was

a teenager and I do not have celiac....

Nancym Enthusiast

I learned recently that people with hypothyroid have more fibroids and/or endometriosis. So you might want to have your thyroid checked. I suspect I have endo, I know I have fibroids. My thyroid condition has been undertreated for probably 20 years. :(

Yenni Enthusiast

I have endo and fibroids. I had a lap last February and will maybe have another this year. Some say endo is an autoimmune disease...so who knows.. I had a cyst last Christmas, but don't seem to have them regularly..

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    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
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