Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sweating At Night

Nic

Recommended Posts

Nic Collaborator
Nic
Posted

My son is not yet diagnosed Celiac (he is 4) because his blood work for the antibodies came back negative. He has always had medical problems that no one could figure out. Developmentally delayed, hypotonia, as an infant the soft spot on his head would not close. It was wide open until he was over 2. He has always been on the heavier side (currently 58 pounds) even though he barely eats. These syptoms have led most doctors to look for thyroid disease or diabetes but he has tested negative. Starting about a year ago he has begun to go through terrible night sweats where his hair and clothes are soaked as well as his bedding. We actually sit him up and change his shirt while he sleeps. Well twice in the past month (once being last night) he was up every hour through the night crying that he is hot. I had the heat turned off, the window open, and him in just a tee shirt and underwear. He was so sweaty that I had to change his shirt 2 times. At one point he called me in complaining that his legs were stuck to his blanket and when I checked they were completely soaked. How odd that his legs would be so sweaty. Over the weekend when I changed his sheets I noticed that his matress cover is sweat stained. This seems very odd to me for a 4 year old. I will be calling to doctor tomorrow but in the mean time, has anyone ever seen this before or had it happen? Is it possible that it is Celiac related or autoimmune related? I feel deep down they are missing something important with him. I also didn't mention he is a big drinker and a very heavy urinater. Like I said, diabetes was ruled a negative (if you trust my lab which is questionable). Any help please would be great.

Nicole

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Nicole, have you tried him on the gluten-free diet? The only way to find out if it would help, would be to do it. Something is obviously wrong, he sounds like me, and I am going through menopause!

aikiducky Apprentice
aikiducky
Posted

Well, obviously I'm not four, but I used to have night sweats before I went gluten free. So I guess it could be a symptom.

Since he's already had blood tests, there's nothing to stop you from trying the diet. Although I'd also contact his doctor.

Is there celiac in the family?

Pauliina

Nic Collaborator
Nic
Posted
  • Author
Well, obviously I'm not four, but I used to have night sweats before I went gluten free. So I guess it could be a symptom.

Since he's already had blood tests, there's nothing to stop you from trying the diet. Although I'd also contact his doctor.

Is there celiac in the family?

Pauliina

Yes, my older son (6) and my father both have Celiac. As well as my aunt and 3 cousins. I was unaware that night sweats were a symptom of Celiac. I had read today that it could be connected to hypothyroidism. He is gluten light as the only meal he eats with gluten is lunch but I will have to make him completely gluten free. Thanks for the advice.

Nicole

Something is obviously wrong, he sounds like me, and I am going through menopause!

Thank you Ursula for saying that. I was afraid I was over reacting. Now a days, you feel nervous to keep going back to the doctor with more symptoms when nothing seems to be panning out. Thanks for the validation :) .

Nicole

aikiducky Apprentice
aikiducky
Posted
Yes, my older son (6) and my father both have Celiac. As well as my aunt and 3 cousins. I was unaware that night sweats were a symptom of Celiac. I had read today that it could be connected to hypothyroidism. He is gluten light as the only meal he eats with gluten is lunch but I will have to make him completely gluten free. Thanks for the advice.

As I said, I don't know for sure that it's a symptom of celiac, but mine went away on the diet. If he's already gluten light it shouldn't be too hard to go completely gluten free. :) But I'd let his doctor know anyway just in case, don't you think?

Pauliina

jerseyangel Proficient
jerseyangel
Posted

I believe night sweats are a symptom of Celiac. I had them for years--always worse when I was "sick". Since I was undiagnosed for 20 years, I can look back now and see it clearly.

I'm going through menopause now (have had the blood tests) and my hot flashes and night sweats are different than the ones I used to get due to Celiac.

Guest nini
Guest nini
Posted

something is def. wrong... I also had night sweats before going gluten-free and they have stopped, but I hadn't really made the connection that it might have been a symptom of Celiac.

What have you got to lose by trying the gluten-free diet 100% and then if that doesn't help, keep searching for answers because that isn't normal for a 4 year old (or anyone for that matter)

Good luck with it all

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Sweetfudge Community Regular
Sweetfudge
Posted

before i went gluten free i had horrible night sweats! it was very annoying, and my husband complained too. i don't think i sweat anymore at night. at least, i haven't noticed. maybe it did have something to do with the diet change.

Nic Collaborator
Nic
Posted
  • Author

I took him to the doctors yesterday and they are running blood for diabetes, thyroid, celiac, and whatever else. I am more nervous than ever because they are confirming my fear that something seems to be wrong. He has gained 5 pounds according to their scale since July. Pretty scary because if he keeps going he could potentionally gain 12 pounds in a year (since he seems to be gaining a pound a month). Has anyone had weight gain as a symptom?

Nicole

Guest nini
Guest nini
Posted
I took him to the doctors yesterday and they are running blood for diabetes, thyroid, celiac, and whatever else. I am more nervous than ever because they are confirming my fear that something seems to be wrong. He has gained 5 pounds according to their scale since July. Pretty scary because if he keeps going he could potentionally gain 12 pounds in a year (since he seems to be gaining a pound a month). Has anyone had weight gain as a symptom?

Nicole

I was skinny as a child, but as an adult I couldn't stop gaining... no matter how little I ate. I was dx'ed morbidly obese prior to my Celiac dx. Since then (3+ years) I've lost 110 pounds.

Nic Collaborator
Nic
Posted
  • Author
I was skinny as a child, but as an adult I couldn't stop gaining... no matter how little I ate. I was dx'ed morbidly obese prior to my Celiac dx. Since then (3+ years) I've lost 110 pounds.

Hi Nini, thanks for the response. Did you actually have to diet to loose the weight or just eating the gluten free diet helped you loose the weight? It is like everyday I hear of new symptoms to this disease that I did not were connected. And I thought I had done all my homework :P .

Nicole

maribeth Apprentice
maribeth
Posted

Yes Nicole I had weight gain as a symptom. It took almost 2 years of telling my dr that I was gaining about a pound a month for her to 2 and 2 together with the other symptoms and send m e for a blood test which came back positives for celiac.

Has anyone had weight gain as a symptom?

Guest nini
Guest nini
Posted
Hi Nini, thanks for the response. Did you actually have to diet to loose the weight or just eating the gluten free diet helped you loose the weight? It is like everyday I hear of new symptoms to this disease that I did not were connected. And I thought I had done all my homework :P .

Nicole

no I did not have to diet to lose the weight. I simply stopped eating gluten. I did adopt a better "plan" of eating but it was MORE food than I ate prior to my dx. It was just the right kinds of food... not junk food, healthy food that was naturally gluten-free, but I allowed myself to have treats whenever I wanted them it just wasn't a mainstay of my diet.

Nic Collaborator
Nic
Posted
  • Author

So basically if the blood work comes back negative for everything including the gluten antibodies than I will have his genes tested through enterolab. If he is positive for the genes than I will make him 100% gluten free and see how we end up from there. I can't believe I had no idea weight gain was a symptom. I have complaining about his weight gain his whole life because he doesn't seem to eat enough to maintain the amount of weight he is. He is only 4 and he is 57 pounds. His eight year old cousin is only 62 pounds. Thanks everyone for the input.

Nicole

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,882
    • Most Online (within 30 mins)
      7,748
    Nicole King
    Newest Member
    Nicole King
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.