Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I Ask A Favor?


jerseyangel

Recommended Posts

debmidge Rising Star

sorry to hear about him Patti, wishing for the best possible outcome for him....

D.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Prayers going up. I hope he'll be okay.

jerseyangel Proficient

Thank you all so very much! I deeply appreciate all of your thoughts, prayers and good wishes on behalf of my family.

Lynne, I agree that there is power in numbers--and this is one determined group we have here ;)

Nini, Yes, they are definately planning to incorporate alternative/natural therapies along with whatever the doctors recommend. My sister has been consulting with her Kinesiologist.

Liz, You're so right about PE teachers--you are all very special :D

Marcia, Bev and Jestgar, thanks for your comforting words. I'm glad to hear that the people in your lives were able to successfully overcome this.

Ursula, I will never forget your generosity the other day.

Again, thanks to each and every one of you :)

Judyin Philly Enthusiast

Dear Patti.

Ah your so welcome. You never ask for anything there. You only give.

It's an honor to help you and your family.

I KNOW PERSONALLY, THAT THE PRAYERS FROM OUR FOLKS HERE ARE POWERFUL.

WE'LL KEEP THEM COMING.

HOPE YOU'LL SHARE THEIR PROGRESS ON THIS JOURNEY WHEN AND IF YOU FEEL LIKE IT.

HUGS, LOVE AND PRAYERS

JUDY

DingoGirl Enthusiast

Patti.....love and prayers directed toward all of you. And hugs. :)

happygirl Collaborator

Patti, just finally got on and saw the thread. I am so sorry to hear about your b-i-l. I will keep him in my prayers. Please, keep us updated. How is your sister doing with all of this?

They are lucky to have you in their corner for support.

Love,

Laura

Guest Kathy Ann

JerseyAngel,

Prayers going up!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Turtle Enthusiast

Consider it DONE!!

Love n' Hugs!

Cheri A Contributor

((Patti and family)) ~ prayers being sent up for your BIL and sister and the whole family.

jerseyangel Proficient

Thank you so much ladies :)

irish Contributor

Patty, I am very sorry to hear about your brother-in-law. You and your family are in my thoughts and prayers.

jaten Enthusiast

I have just seen this thread. Of course I will keep positive thoughts and have already stopped and said a prayer. Elementary P. E. teachers are special people, and so are brothers-in-law! Prayers for him, your sister, and all the family. God bless!

jerseyangel Proficient

Thank you, Jaten--I appreciate it :)

Laura, My sister is not taking this well at all. He is actually holding it together better.

What we're hoping for now is that the scans come out clear in terms of the cancer already spreading. If all clear, they will do surgery that will, hopefully, take care of it. Don't know yet about any additional treatment.

jesscarmel Enthusiast

im thinking of you and your family

Jess

mamaw Community Regular

Hi Patti

I don't know how I missed this until now... But I've raised my hand to the Lord,bowed my head on bended knee & said a prayer for all the family for healing, support , compassion,understanding and most of all a speedy recovery..

May God's blessings be bestowed upon you & yours.....It is at these times where we are tested....

mamaw

Mtndog Collaborator

Just checked in and wanted you to know I was thinking of you, your BIL and family.

When you said that your sister wasn't taking it well and that your BIL was handling it better, I think that happens a lot because the family and friends think that there is nothing they can do to solve the problem. They can't cure the one they love. You have no control over the situation and that is really hard. :(

Hugs hugs hugs B

jerseyangel Proficient

Thank you mamaw, Jess and Bev--your words are appreciated more than you know :)

lindalee Enthusiast

Patti,

I pray all will go well for your bil and all the family. :wub:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,367
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.