Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help

jesscarmel

By jesscarmel
in Coping with Celiac Disease

Recommended Posts

jesscarmel Enthusiast
jesscarmel
Posted

Hello

i am in maui on the last night of my honeymoon. i have yet to knowlign be glutened as i dont eat at restaurants and our house is gluten-free. tonight we had strawberries covere din chocolate brought ot the room. we called dowon and they said there was no gluten in the chocolat sauce so i ate one strawberry. two minutes later we got a call saying there in fact was wheat listed on teh ingredient list. i have to travel tommorow night for more than 14 hours and i am just terrified now that i will be really sick. i know ppl sometimes get delayed reactiosn and im scared mine will hit on the plane. i already have major problems flying so i dont know what i will do. i havent even eaten otu once on this trip becaue im so anal about being gluten free but i took a chance and now im screwed.......

anyone have any good advice/thoughts....

thanks

Jess

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jesscarmel Enthusiast
jesscarmel
Posted
  • Author

i actually posted my post last night but it only popped up today i think casue the board was done.

the update is i went to bed right after then woke up 3 hours later feeling VERY nausesos. i wasnt sure if i was supposed to let myself be sick and throwup to get rid of the gluten but i took an anti-nausent and felt asleep. right now i feel better. will i feel sick again later or was that the "reaction".......

Ursa Major Collaborator
Ursa Major
Posted

I am sorry you got glutened last night. You never know, it was a tiny amount. It is impossible to say if you had your reaction, or if it will get worse. I wished I'd know. I find those reactions are so totally unpredictable, you never know what will happen from one glutening to another.

I really hope you'll be fine on your flight.

jerseyangel Proficient
jerseyangel
Posted

Jess--you poor little thing :(

I'm sorry your post got temporarily lost, and by now you're on your way home. I hope that you didn't get any sicker--I would have done what you did anyway. Take whatever you need to to get home. I would have been popping Immodium!

Let us know how you made out--then all about the wedding :D

happygirl Collaborator
happygirl
Posted

Jess,

I am so sorry to hear about your glutening. I hope you are ok. Keep some immodiums with you!

Can't wait to hear about it,

Laura

jesscarmel Enthusiast
jesscarmel
Posted
  • Author

thanks guys. havent left just yet. we have 5 hours left in the hotel until we leave. they extended our check out time because of what happened. i feel sort of weird- nauseous and bloated stomach but not super ill as most people describe when they eat gluten. im hoping last nights bad bout of nausea is my reaction and that i wont be majorly sick in the next 24 hours. i dont get back until 5pm thursday night. i'm going to try my best to stay positive, think about seeing my puppy who i miss so much and hopefully get through this easily!! i hate gluten!! who puts wheat in chocolate sauce anyways??!!

CarlaB Enthusiast
CarlaB
Posted

Sorry about your glutening .... I'm glad the symptoms didn't last long. I'm curious how you went to Maui and never ate out, please share your secrets to travelling gluten-free!!!

Hope you had a great time. You look beautiful in your avatar!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jesscarmel Enthusiast
jesscarmel
Posted
  • Author
Sorry about your glutening .... I'm glad the symptoms didn't last long. I'm curious how you went to Maui and never ate out, please share your secrets to travelling gluten-free!!!

Hope you had a great time. You look beautiful in your avatar!!

thanks carla! im sort of embarrased that i didnt eat out but im just scared to do it. i brought a hot pot, and they gave me a fridge and amicrowave. i brought pasta, bread and snacks adn then went to the local health store and bought cheese, tomatoe sauce, more bread, veggies etc.... we had this room where we could go and get free happy hour and breakfast so i would take fruits and veggies from there as well. i used the hotpot to make pasta, rice quinoa etc... and had sandwiches for lunch. i took a chance by eating the strawberries- something iw ouldnt normally do but they were sent up as a gift with a bottle of champagne.....

i'm not sure if hte symptoms i had are it- im scared ill get a big reaction in the next 24 hours :(

Sweetfudge Community Regular
Sweetfudge
Posted

Sometimes I work myself up to a horrible state when I know I've had gluten. Just try and relax, have medicine nearby, and try not to worry. I usually only get the gas and bloat when I get glutened...which I am suffering through right now (see my post)...so I feel your pain :)

Hope the flight goes well!!!

jesscarmel Enthusiast
jesscarmel
Posted
  • Author

so now i have really bad pain, sort of like period cramps, very low, under my belly button in the pelvic region. could that be a delayed gluten reaction stomach ache or are stomach aches not usually that low??? so weird and not sure what it is... i also feel like i cant go to the bathroom easily so maybe it could be constipation which i dont think i ve ever had b4

happygirl Collaborator
happygirl
Posted

hey jess,

did you take immodiums or anything to stop/prevent D? if so, that might give you C.

I hope you feel better soon.

And yes, your picture is beautiful-I can't wait to see more.

Laura

jesscarmel Enthusiast
jesscarmel
Posted
  • Author
hey jess,

did you take immodiums or anything to stop/prevent D? if so, that might give you C.

I hope you feel better soon.

And yes, your picture is beautiful-I can't wait to see more.

Laura

thanks laura. i didnt take any immodium or anything like that. can constipation pain be felt that low thhough?

Budew Rookie
Budew
Posted

Constipation can be terrible. I've only had it once. On vacation too. I used exlax. It really helped but took 24 hours. The pain was excruciatng. Hang in there, this too shall pass. : ) no pun intended.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jay Heying
      - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    2. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    3. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    4. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    5. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,885
    • Most Online (within 30 mins)
      7,748
    KateFC
    Newest Member
    KateFC
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jay Heying
      Celiac friendly probiotics

      By Jay Heying · Posted

      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.