Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Loss Part Of Celiac Disease?

BeckyW

By BeckyW
in Coping with Celiac Disease

Recommended Posts

BeckyW Contributor
BeckyW
Posted

My 15 year old daughter is 6 months gluten-free, dairy free, soy free and peanut free. She has improved some but the improvement has been very, very slow. She has been losing hair and it is not getting any better. Is this a common Celiac problem? She is not anemic and her thyroid is within normal ranges, according to blood work. I wonder if it can be something lacking in her diet or just the trauma of removing all the foods from her diet.

We have no doctors in the area that seem to be knowledgeable of Celiacs. We have learned more from this message board than anywhere! Thank you all for your help!

Does anyone have any ideas or suggestions they can offer us?

Thanks again!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Hi & Welcome

Does your daughter's hair fall out all over or in balding patches??? Does she take multi mins & vits daily?

You can learn alot on this board-- a great group.... I do not have a support group close enough so this is my lifeline so to speak.

My final thought about you saying her thyroid levels were normal.We all don't fit in that mainstream idea.... many of us have found out the hard way .. It doesn't fit all. The classic fit did not work for me.

I would suggest thinking if there are any other symptons to go along with the hair loss, that would be a big issue for a teenager so there may be some that your not picking up on.

Can you find a excellent holistic doctor in your area?Alopecia comes to my mind.

mamaw

mamaw Community Regular
mamaw
Posted

oops I forgot, have you checked out her hair supplies for wheat & gluten??

mn farm gal Apprentice
mn farm gal
Posted

I am 34 and had lost alot of hair a short time prior to going gluten free. I also have thyroid problems, sever animia are just a couple of the major factors with me. Since starting the diet and some personal care product changes, I now have my hair growing back. Ya!!

abigail Apprentice
abigail
Posted

hi, I dont know a lot about that, but my son didnt have much hair, and when we started the gluten free diet it started to grow much more .... (and his nails too).

Abi

BeckyW Contributor
BeckyW
Posted
  • Author

Hello, thanks for your responses. My daughter is just "shedding" hair, more than usual. There are no bald patches or anything. Her hair is just thinner than it used to be. All her hair products are gluten and soy free.

I have considered the thyroid issues as I have them and had to have my thyroid removed. I guess its time to try a new doctor and get another opinion. We do go to a holistic naturalpath doctor who is working on her hormones and says she has anemic symptoms.

The more I am reading I am thinking it could be the lack of nutrients. She takes gluten free vitamins and supplements but it is so hard to get her to eat enough.

Thanks for all your help and support!

Carriefaith Enthusiast
Carriefaith
Posted

About 3 years ago I was shedding more than normal hair when I was at my worst (around diagnosis). This improved after being on a gluten-free diet. However, I've noticed recently that I seem to be losing more hair than normal so I've started taking a multivitamin to see if that helps. My hair is also damaged and dry which is very unusual for me. If it doesn't seem to improve soon, I'm going to have to go see a doctor and maybe get my thyroid checked.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


4BUTTERFLIES Newbie
4BUTTERFLIES
Posted

I'm so glad I just read thi- after ignoring my symptoms for 2 years i was finally diagnosed in early november at age 31...and my hair has started to fall out more than normal...leaving me in tears many many days. my dr. says that it will come back..i am encouraged by all of your reponses..i am on a gluten, wheat, lactose free diet and so many symptoms have gone away- sometimes i still feel 8 months pregnant after i eat ANYTHING - still gassy and bloated but the severe pain from the spastic gallblader has gone away or at least been dormant since i started this diet...

the hair thing i struggle with everyday...but i will try to believe it is going to get better- we really have nowhere to go but up. I feel for all of you:)

nikki8 Explorer
nikki8
Posted

I just saw my doctor this week and I asked him about this very issue. He explained the process the hair shaft goes through (which I didn't really understand) and said that stress or a major change in diet can cause several hair shafts to shed at once. It's called Teleflovanuvia or something like that. I'm not explaining this well at all, but what he told me made me feel better. He said it's temporary and will replenish soon. So I felt better. I hope this helps.

GFNC Newbie
GFNC
Posted

Before my diagnosis I, too, was losing a lot of hair. I would have to clean my brush every couple of days. It took a good year of being gluten free for my hair loss to return to normal. Now, it seems to be back to normal or just slightly more than normal, but very manageable. I believe sometimes it just takes the body a while to heal and get adjusted.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,050
    • Most Online (within 30 mins)
      7,748
    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.