Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blisters

wowzer

By wowzer
in Dermatitis Herpetiformis

Recommended Posts

wowzer Community Regular
wowzer
Posted

Does anyone know how long the blisters last?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jamrock Rookie
jamrock
Posted
Does anyone know how long the blisters last?

For me about 24 hours

RiceGuy Collaborator
RiceGuy
Posted

What blisters?

mtdawber Apprentice
mtdawber
Posted
Does anyone know how long the blisters last?

My blisters last 2 or 3 days and they take weeks to heal afterwards....it's no fun!

RiceGuy Collaborator
RiceGuy
Posted

Could someone please explain what sort these blisters are, where they appear, what the cause is, etc? This is the first thread I recall seeing about such a thing, and all the responses thus far seem to suggest it is common. To my knowledge I have not had this symptom. Is this about the DH rash?

mtdawber Apprentice
mtdawber
Posted
Could someone please explain what sort these blisters are, where they appear, what the cause is, etc? This is the first thread I recall seeing about such a thing, and all the responses thus far seem to suggest it is common. To my knowledge I have not had this symptom. Is this about the DH rash?

My blisters are a DH rash... just diagnosed December 20th. They are on my head, sides and back of my neck below the hairline, arms, back, hips, stomach and feet. Good thing its winter so I can cover everything up. The are caused by gluten. I get both internal and external reactions if gluten comes anywhere near me... :o

Rusla Enthusiast
Rusla
Posted

It depends on how much I have injested or if it is in hair products. Mine can take days to month and are DH. Right now something must have been used on my hair when I got it cut because my head is a mass of dh and is making me crazy. These can take months to disappear.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiredofdoctors Enthusiast
tiredofdoctors
Posted

Okay, I have asked this question probably too many times before, but I have had a new experience with it. I developed what looked like the beginning of chicken pox (only smaller) on three spots of my leg -- all in close proximity. It was after I accidentally consumed gluten in generic antibiotics I was given. They itched like CRAZY -- because they started "popping", I covered them with a Tegaderm dressing to keep the fluid from moving to other areas. Now I'm left with some mild scars (I scar pretty badly anyway). The dermatologist said that it sounded like DH, but would have to biopsy them when they're active. Given that I'm gluten-free, I'm hoping it doesn't happen again! Is this what DH is like, though?

Any help would be greatly appreciated!

Thanks,

Lynne

Viola 1 Rookie
Viola 1
Posted

Mine show up on the slightest contamination and last about 3 weeks, depending on how much I injest. Not fun :(

Viola 1 Rookie
Viola 1
Posted

Oops, sorry Lynne, it really does sound like it!

mtdawber Apprentice
mtdawber
Posted

It sounds like DH to me as well. Which begs more questions for me. I'm new to knowing much about this other than what has happened to me personally. Can DH blisters spread when the "pop"?

How long does it seem to take everyone from being glutened to breaking out. I had the stomach upset / D happen within 24 hours and then the blisters follow on days 2 through 5. What is everyone else's experience?

On the subject of healing: I bought sea salt and have been enjoying long sea salt baths - they seem to help . Does anyone have other advice for helping them heal? I know it seems to take weeks to heal them and the scares are not going away. Will the scares eventually fade or do you get to keep those... :huh:

Sorry for the all the questions at once, I seem to get one answer and have 7 more questions.

P.S. ... HAPPY NEW YEAR EVERYONE!

Viola 1 Rookie
Viola 1
Posted

Mine actually show up before the D, but dry mouth shows up first, so I imediately know to quit eating what ever. I think I'm fortunate in this that I can spot right off when somethings not right and prevent myself from eating more than a tiny amount. I think it is different with everyone, which makes the disease so hard to predict.

For the very persistant blisters, you may have to go to your doctor and get Dapisone (sp)

  • 4 months later...
Belinda Meeker Apprentice
Belinda Meeker
Posted
My blisters are a DH rash... just diagnosed December 20th. They are on my head, sides and back of my neck below the hairline, arms, back, hips, stomach and feet. Good thing its winter so I can cover everything up. The are caused by gluten. I get both internal and external reactions if gluten comes anywhere near me... :o

Hi... I'am new to site but saw u get them on ur feet also .

tell me more plz, we get them too on our feet and they itch like crazy for a couple days then the blisters show up and if u pop them white (clear) liquid comes out, but if u don't pop them they hurt so bad :( just was wondering wht u put on ur's? I allso get tons of hives daily but not sure if it's gluten or Plastic's we r still doing gluten waiting for testings to be done :(

Rusla Enthusiast
Rusla
Posted

Sounds like DH to me Lynne. My face is a mess because that is the main place I break out with it and I hate it. I want to walk around with a bag over my head because I look like a leper.

wowzer Community Regular
wowzer
Posted
  • Author

I seem to get them mostly just under my nose. But any where on the face is a drag. Of course I'm sure everyone thinks I have herpes, but did test negative for that. Seems to take a good 2 weeks for it to disappear and then leaves a purple mark. Nothing seems to really help it heal that I've found.

Rusla Enthusiast
Rusla
Posted

Minor glutenings for me is in the corners of my mouth. Medium ones start in the corners of my mouth and go all under my bottom lip and around the bottom of my nose. The bad ones also go to my eyelids and under my eyes. Imagine how pretty I am then.

SunnyDyRain Enthusiast
SunnyDyRain
Posted

Wow, this is the first I've heard of DH being blister like, but i never really looked before... didn't think I had it. I often get tiny pimple like blisters when I eat gluten. They are often small and around my moutn and go away in about 2 days. Thye hurt like mo fo though.

Cool, i learn something new every day!

Rusla Enthusiast
Rusla
Posted

Many are like yours and mine, little pimple blisters that like to expand. I know some who get absolutely huge ones right off the hop. Anyway, no matter how you look at it to me it is disgusting.

wowzer Community Regular
wowzer
Posted
  • Author

That is the truth. I get them along my lower left eyelid from traces of gluten. They are so annoying. I went through a stage of what they called adult acne a few years back. I never had a problem as a teenager. It sure make one feel ugly when Dh has to pick the face.

Kaycee Collaborator
Kaycee
Posted

Fascinating topic. I get spots, and blistery things, never thought for a moment it was DH, because they don't seem to be itchy and there is never ever more than 5 or 6 at a time, but I have always associated them with having eaten gluten as that is when they show up within a few days. The blistery spots don't hang around for long, but the bigger spots are quite sore for a few days and leave purple marks which stay around for absolutely ages before fading out. My husband describes the as "one of those spots". Now I am beginning to wonder if it is DH.

At times my skin crawls and is quite itchy, but never the spots.

Cathy

wowzer Community Regular
wowzer
Posted
  • Author

My skin gets the crawly feeling if I get glutened. I can feel a blister before it breaks outs. It is a kind of itchy burny feeling. I don't seem to itch as bad from them now that I've been gluten free since the beginning of the year. I'm not sure if that makes the difference or not. A year ago, I had blisters for months. Was told it was poison ivy, eczema, impetigo. Nothing really helped. It was so itcy.

nederlandse Newbie
nederlandse
Posted

For me its just a rash on my upper arms that does itch and lasts for about 2-3 weeks. Before going gluten free it was on my back, face and scalp among other places. Just like every other symptom, it spreads and gets worse the more consistently I ingest gluten - accidentally or not. I don't know if it helps, but when its particularly bad, I rub some vitamin E and A oil on it. If anything, that's supposed to help with the scars.

Lola B Rookie
Lola B
Posted

Try cocoa butter too. It seems to help with the scarring. My daughter has DH and carmex and neosporin sometimes help - carmex when the rash first appears; neosporin if you scratch so hard that you break the skin - it seems to help keep any additional bacteria out of the open wound.

dally099 Contributor
dally099
Posted

hi i get this itchy thing on my hands and feet, look like white calusus and itch and hurt like crazy, i also get this zitty looking thing on my legs and the back of my knees and elbows, lookls like little white zits, no fluid though, and last night they looked like little ingrown hairs. what is this? itches like crazy especially the ones on the back of my knees? any help would be great.

jerseyangel Proficient
jerseyangel
Posted

Before I was diagnosed, I would get the itchy blisters on my fingers and on the inside of my forearms.

Now, when glutened, I get a few around my mouth--they do hurt, but are nothing compared to the huge ones I used to get on my chin.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    2. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    3. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.