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What Happens After You Go Gf?


Guest memoryofaspyn

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Guest memoryofaspyn

I am just wondering if after I go gluten-free what happens if you accidentally come in contact with gluten? I have heard some people say they get really sick, do you get any sicker than you would have been before going gluten-free?


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celiac3270 Collaborator

Yes......your body, before going gluten-free, is so used to the gluten that your reactions aren't as severe......when you go gluten-free, if you get glutened, your body would react more violently, not being used to the gluten, anymore.

lovegrov Collaborator

Different people have different reactions. Some people react horribly to tiny amounts. Some people react about the same as before the diet. Some people are actually less sensitive. And some people, like me, barely react or don't react at all.

richard

Mydnyt Newbie

Something to do with the amount of time since you've been gluten-free?

One of the girls I know is intolerant, but once in a while (ie. 8 months or so) she'll have some pizza or pasta or something while out with friends with minimal side effects. But if she does it a couple of times it hits her big time

tarnalberry Community Regular

I think it pretty much entirely varies by individual, and no one can answer that question for you... I seem to have gotten a bit more sensitive, but was never terribly sensitive to begin with.

  • 3 weeks later...
kabowman Explorer

I was just pondering this and thought I remember seeing - therefore, I decided to add my 2 cents.

Since discovering all of my intollerances and then accidentally ingesting something I know I cannot eat, I am so sick. However, I can't decide if I am reacting the same way I did before the restricted diet (no gluten, milk/casien, corn, soy bean, and corn) because I was sick all the time and it just felt normal or if my reactions are actually getting worse.

Even minute amounts kill me and I am sick for at least 24 hours, and it seems the larger the quantity, the longer the period of pain so I eat any new what I would consider safe food in very small quatities to wait for a reaction and if I don't have one, then I eat more just to be sure.

Just a little venting...I usually enjoy my food and life and am very thankful that I have figured this out so I can actually enjoy life again.

-Kate

HAPPY DOG SUZ Enthusiast

:unsure: Katie

What kind of pain were you in?

I was diagnosed w/fibromyalgia now celiac. Just trying to get a connection if there is one to my pain thanks Suzanne


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kabowman Explorer

All digestive pain (along with fever, headaches, joint pain, fatigue) - the docs have checked to see if I have fibromyalgia and so far, I don't pass all 18 points. I am hoping that I don't develop the rest.

-Kate

Guest memoryofaspyn

I get really bad leg pain (in my muscles). Before I found out I had celiac I had them test my lactic acid. 2 years ago my oldest daughter passed away from a genetic condition called mitochondrial disease, and with it she had a condition called lactic acidosis. Since this condition is genetic, it was at first thought that I to had the condition and passed it on to my daughter. I have had sever muscle aches, especially in my legs and lower back all of my life. When I asked the doctors to run the lactic acid test, that is when they decided to also test me for celiac.

I have been searching high and low to find out if my daughter may have also had celiac, she was 8 months old when she passed away, and she only weighed 11 lbs, but with Mitochondrial disease it is common for children not to gain weight, but I am wondering since I was nursing and didnt know I had celiac, was she getting all the nutrition she needed? Did my celiac add to her already severe condition and make it worse? Sorry about the rambling, but I am searching for answers, I miss her terribly, and want to know all I can. we have another baby now who has a 1 in 4 chance of having the same condition, and I want to make sure we are doing everything we can to make sure she will be fine. if anyone is interested you can visit my daughter Aspyn's website at www.aspynblock.com

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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