Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Er Doctor

TinkerbellSwt

By TinkerbellSwt
in Doctors

Recommended Posts

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I had my son in the ER again this past weekend for constipation. I did everything the doc last weekend told me to do if he gets that bad. I know its gross, but they told me to put on gloves and go up and try and get it.. she even gave me a handful of gloves to keep. Well the ol demon was back yesterday.. he was screaming.. face purple and everything. So I did what the doc said, gave him the glycerin baby lax, and vaseline to prevent tearing. He still couldnt get it out, so I bravely went and got a glove. Now I am scared out of my mind as it is, and Colin is kicking and squirming in pain, but I did it, I stuck my pinky finger and couldnt even get the first knuckle in, there was the blockage, so I said forget this, on to the immediate medical ER, its just a satelite station for our regular ER, I knew he wasnt going to be admitted and this place is usually decent, in and out in a few minutes.

So, in walks Dr. Personality. I tell him the story, I tell him that we both eat totally gluten free, which in itself is probably contributing to the constipation.. lots of rice, etc.. I just havent been able to find a way to keep him moving... I have tried all types of food, prune juice, now we are back on mineral oil everyday.. but back to the story...

The doc asks me if he is a celiac, I said not proven yet, but I am and we err on the side of caution until I get him to the GI in CHOP (they are the only docs who get it, a regular blood test will not show gluten, b/c he ISNT eating it!!). The doc looked at me like I had horns growing out of my head. He then examined Colin, did the same thing with the gloves that I did, and said, nope, there isnt anything there, he must have went... ummmm... no.... I am the only one home with Colin all day, I am the only one changing his diapers, he didnt go. He must have the doc says.. Colin doesnt walk yet, doesnt talk yet, is behind in everything due to his severe prematurity, but he learned how to change and dispose of his own diapers??? I am amazed! I asked the doc that when I was doing the glove treatment, could I have pushed it back up?? He said no that cant happen.. now the one thing I have learned as a celiac, there is no one alive who knows more about bowel systems than a celiac... so yes, you can push it back up.. how far? that I dont know, but it can be done.. I have had to do it for Colin before, to help get glycerin in him.. so anywhooo Dr Personality said to up the amount of liquid intake, ok I get that, and go and get him this malt substance which will help. I said malt?? Usually Celiacs cant have malt, again I get the look of horns on my head... ok, to cut this forever thread short, he lets us leave, meanwhile Colin is bearing down like crazy for what? obviously for no reason according to doc..

So we get home, Colin is exhausted, poor kid had more up his tushy yesterday than most of us have in a year.. even with our celiacs! So I put him in bed, with his warm milk and leave him.. now his routine will be fuss for a while, then I go check for a dirty diaper, he wont sleep with poopy diapers.. so I went up.. yeah, he went.. it was the size and exact shape of a golf ball!!!!!! I couldnt believe it, and I have no idea how it came out!!!

But that is my story of stupid doctor of the day here.. nope, Colin didnt go.. idiot.. and poor baby probably already has hemorriods. stupid stupid stupid

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFBetsy Rookie
GFBetsy
Posted

Not that this would really solve the problem, but I'd be so tempted just to pack the whole diaper up, take it to the ER, give it to the doctor and say: "I was sure you were right and that there couldn't be anything in there. After all, doctors are never wrong. But my son disagreed with me, so could you please explain to him again how he really didn't have any problems? Then maybe next time he'll listen better. "

Doctors who think they know everything make me so angry!

jerseyangel Proficient
jerseyangel
Posted

Stephanie,

I am so sorry that poor little Colin is having to go through all of this. Doctors (and others) like that make me crazy.

Is your appt at CHOP coming up soon?

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Hi Stephanie,

I already read your other story about this problem. This is really messed up. Another story with a stupid doctor. I hope, that your little one is feeling better soon. This is awefull.

Hugs, Stef

debmidge Rising Star
debmidge
Posted

Stef, Is Colin lactose intolerant? I have a thought on this and it's ok to PM me as I'd rather not discuss here...

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

I finally got an appt with the GI dept at CHOP for Colin.. I have to wait until June! That is the first available for the doc that deals with celiac. At least I have the appt. He will just remain gluten free, heck, even if the gene isnt there, he will be basically gluten free, my home is gluten free either way, Gary doesnt have it, but he eats gluten free at home. No questions! LOL

key Contributor
key
Posted

I am sorry you had such a hard time at the ER. Seeing your child in pain is aweful.

I saw you mentioned warm milk. Is it cows milk? Any amount of cows milk can cause constipation in some kids and people. It is just a thought. I know it helped one little boy I know to switch to soy.

I hope you find the answers.

Take care,

Monica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,048
    • Most Online (within 30 mins)
      7,748
    Delpickle1
    Newest Member
    Delpickle1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.