Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cocoa ?


georgie

Recommended Posts

georgie Enthusiast

Would a sprinkle of cocoa on my coffee have Glutened me ? :blink: I can't think of anything else that could have done it. I feel really sick and have had cramping and D for 2 days. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



larry mac Enthusiast
Would a sprinkle of cocoa on my coffee have Glutened me?....

g,

I haven't heard about cocoa containing gluten. Was it just regular cocoa powder or some kind of cocoa mix, like hot chocolate or something.

Also, I'm fairly new (7 weeks), and was curious about that "challenge diet". Is that something a gastroenterologist gives you? And if you fail it he diagnoses you with celiac despite a negative blood test and no biopsy? Just wondering. Oh sorry, it says gluten intolerant. That's a different thing I guess. Does that mean you can eat gluten if you want to sometimes?

best regards, lm

Ursa Major Collaborator

Georgie, cocoa is usually gluten-free, but as Larry mentioned, hot chocolate mix may not be.

Larry, some celiac specialists are doubting that there is a difference in celiac disease and gluten intolerance, and want the distinction removed. Celiac disease (destroyed villi) is just one possible form of gluten intolerance, there are many other ways it can manifest. Such as DH, or mental illness for instance.

And no, if you're gluten intolerant as opposed to being officially diagnosed with celiac disease, you're still not allowed to eat any gluten at all. Because it makes you just as sick, even though it may not destroy your villi (it may just destroy your brain, or wreak havoc with your neural pathways, making you unable to walk or use your hands, for instance).

georgie Enthusiast

I asked my Dr what was the difference between GI and Celiac and she held her hand up and indicated a gap of 1mm! I think I have Celiac but as a Gastro hasn't dx me - I can't officially be called that ! Not here anyway. Our state has a Society you can join but you need a letter from a Gastro Dr before you can. They do not recognise the Gluten Challenge Diet. And I am NOT going back to Gluten just for a colonoscopy and Gastro Dr dx.

I have had a skin rash too - that resembled mild DH, and which disappeared after going gluten-free and which gets itchy when I am Glutened.

I have so much pain at the moment and can only think that the cocoa was a drinking choc blend. It was sweet - now I think of it. Ouch - won't do that again!

Saz Explorer

Where abouts did you get the coffee? Mcdonalds capuinchino have gluten in the chocolate powder, I'm not sure about the Mccafe one but would asume it is the same. Also the powder that Gloria Jeans use on their capuinchino has gluten in it, but you can ask for it without.

Feel better soon.

JayT Rookie

I think just plain cocoa does not contain any gluten. I must agree with the above comments that if it was a mixture of a chocolate powder with various ingredients then your illness may be a result of it.

georgie Enthusiast
Where abouts did you get the coffee?

It was a trendy cafe. I asked if their risotto was gluten-free and they told me rice had Gluten :lol: so I don't have much confidence now in the coffee ! I had my risotto at a proper Italian restuarant just down the road, and ALL their risottos are made fresh and are gluten-free. tip - eat Italian. You are not made to feel a nuisance. The waitress at the door knew all the risottos were gluten-free. And it was the same price as that cafe that didn't know rice was gluten-free!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



larry mac Enthusiast
.....I had my risotto at a proper Italian restuarant just down the road, and ALL their risottos are made fresh and are gluten-free. tip - eat Italian.... The waitress at the door knew all the risottos were gluten-free....

g,

I've heard of risotto before but honestly didn't know what it was. I vaguely thought it was couscous (another dish I've never had) or something like that. We don't go out to eat much, even less now. I always got lasagna or chicken florentine.

I'll definately have to try that risotto, it sounds good.

best regards, lm

georgie Enthusiast

I love risottos as my throat is still constricted by my enlarged Thyroid. Hubbie does them. He uses his own chicken stock, and you simmer the rice in that slowly and keep adding more until its right - so you need to stand over it abit and keep stirring and adding stock.Then you just add meat , veges as you like. I had a lovely roasted pumpkin , green peas , spinach, onion and parmasan cheese one the other day. recipezaar has good authentic recipes. As Celiac is so well recognised in Italy - if you are looking for a place to eat anytime - head to an authentic Italian Ristorante!

flowergirl Rookie

Hi georgie, I'm sorry to hear to are feeling bad. I get glutened by any chocolate but two days ago I visited the Gluten free shop in Ormond that you suggested on the Aussie/NZ thread. I had two rows of a dark chocolate with chili they sell (threw wrapper away sadly :( ) and had no symptoms. It is the first time I've had chocolate in months and I'm quite glad there is at least something I can have. :rolleyes: My diet is already very restrictive as it is.

georgie Enthusiast

Thats great news. Was it nice with the chilli ? I do mail orders with that shop. They have drinking chocolate powder so may carry my own to cafes in the future :lol: I am about to go dairy free for a trial and am dreading it - so glad that you thought the choc was OK ( as I see you are dairy free too)

flowergirl Rookie

Yes, I can't tolerate dairy at the moment but I'm planning on re-introducing it when I feel my gut has healed. Therefore I avoid milk chocolate and eat dark chocolate instead. I have a feeling that it is the soy (from the lechithin) in the dairy-free chocolates that I've been trying in the past that makes me sick. The chili chocolate has very basic ingredients like cocoa mass, cocoa butter, lechithin (from sunflower) and cane suger (if I remember correctly). B) It is devine though I only take 4 blocks a day. :D

Best wishes with going dairy free. I hope it makes a world of difference in your health.

Flowergirl

georgie Enthusiast

Thanks ! 2 days now and I start DF. I just have realised that means black coffee :blink: Is it common to have healing and go back to dairy?

jnclelland Contributor
Thanks ! 2 days now and I start DF. I just have realised that means black coffee :blink: Is it common to have healing and go back to dairy?

:) Giving up half and half in my coffee was the hardest thing about going dairy-free to me! I can't stand black coffee, but I've found some decent substitutes. If you can tolerate soy, Silk makes a soy-based creamer that is quite good. Unfortunately for me, not long after discovering it, I realized I had a problem with soy too. :angry: So now I make my own lattes with hazelnut milk, and they're yummy! I asked for a cappucino machine for Christmas so I could make my own at home (and hazelnut milk foams up quite nicely!), but when I'm at work I just go buy an espresso at the coffee shop across the way, microwave some hazlenut milk, and mix it all up. Kind of a pain, but better than going without my coffee! ;)

Jeanne

Felidae Enthusiast
Thanks ! 2 days now and I start DF. I just have realised that means black coffee :blink: Is it common to have healing and go back to dairy?

After one year of being gluten free I could have dairy again. So, there may be hope for you too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,549
    • Most Online (within 30 mins)
      7,748

    MKSolo
    Newest Member
    MKSolo
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.