Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Tomorrow


num1habsfan

Recommended Posts

num1habsfan Rising Star

So tomorrow is my endoscopy in Saskatoon. I'm so terrified. My nerves are going off the roof. I'll never sleep tonight. I've gone through an endoscopy before, was even AWAKE from not enough anesthetics, I KNOW this time it can't be any worse. But i'm still sooooo scared. Also tomorrow is when I have to start eating gluten...I sent a text message to some friends and i honestly cried just from writing a text message, I feel so pathetic. Everyone please help me.....I need you all :(

~ lisa ~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yenni Enthusiast
So tomorrow is my endoscopy in Saskatoon. I'm so terrified. My nerves are going off the roof. I'll never sleep tonight. I've gone through an endoscopy before, was even AWAKE from not enough anesthetics, I KNOW this time it can't be any worse. But i'm still sooooo scared. Also tomorrow is when I have to start eating gluten...I sent a text message to some friends and i honestly cried just from writing a text message, I feel so pathetic. Everyone please help me.....I need you all :(

~ lisa ~

Oh, I'll be thinking of you. I was a complete wreck when I was gonna have one done too. It wasn't because of gluten and I had it done in Sweden (where they give nothing but a little spray to numb the throat). Let them know you didn't get enough meds to sleep last time, if they don't already know.

My heart goes out to you. I hate those things too.

I hope it will go fast and easy.

Lisa Mentor

Lisa:

You are going through the worst of it right now. It is very natural to be nervous, but truley, the endo is no problem at all.

When I had mine, they gave me a shot and I drifted away. And then I woke up in the recovery room where my husband was waiting for me. I remember nothing in between.

Make sure that you take someone with you who can listen what the doctor will tell you. I remember nothing about what he told me and had to ask my husband three times.

YOU WILL DO JUST FINE! :D

jerseyangel Proficient

Lisa,

I'll be thinking about you tomorrow, and will keep you in my prayers :)

It's natural to be afraid, but everything is going to be ok--it really is. Don't forget to breathe deeply--in through the nose, and out through the mouth. I do that when I need to relax.

Hopfully this procedure will give some more clues as to what may be the cause of your pain.

You take care, and let us know how you do. :)

Judyin Philly Enthusiast

GOOD TIPS HERE lISA...

I'LL BE PRAYING AND THINKING GOOD THOUGHTS.

LET US KNOW

JUDY

2Boys4Me Enthusiast

Good luck!

angel-jd1 Community Regular

Good luck. I hope it gives you some answers.

-Jessica :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Prairie Girl Apprentice

I hope it goes well Lisa. I have just recently had my second one and it went good. i asked for lots of drugs and i don't remember a thing from this one... i would recommend doing this! I am sure you will do okay though. My thoughts will be with you. I went gluten free before my first endoscopy too and had to eat gluten for 4 months before the test... and though it can be hard, it is worth it in the end to know 100% for sure. Take care,

Courtney

Phyllis28 Apprentice

Good Luck, I hope the tests supply answers.

num1habsfan Rising Star

Thanks everyone *hugs you all*. I love you guys. I'm trying to stuff myself and drink as much as I can to make up for the long spree tomorrow of not eating/drinking :P .

*sighs* Even tho it wouldnt be a great thing, I really hope it shows refractory sprue....

~ lisa ~

happygirl Collaborator

Lisa,

Best of luck to you. You might want to mention to them that you didn't do well with their sedation last time, and want to ensure you are out the whole time.

Let us know how it goes....

num1habsfan Rising Star
Lisa,

Best of luck to you. You might want to mention to them that you didn't do well with their sedation last time, and want to ensure you are out the whole time.

Let us know how it goes....

Thanks. Last time it was a different doctor and different hospital but the same city...so I think I will tell them make sure to give me a lot of sedation because I SO dont wanna be awake for it again.

~ lisa ~

Lisa Mentor

Godspeed to you and wishful thoughts.

xxoo

num1habsfan Rising Star

Well theres the end of my food/water intake...and by the time I get out of my appointment, it'll be about 16 hours I go without both :(:unsure:

~ lisa ~

AndreaB Contributor

Hope all goes well tomorrow. Update us when you can.

Nantzie Collaborator

Oh Lisa, don't be scared. :( Just imagine all of us around you, holding your hands when your getting your endo. We'll be there in spirit, even though we can't be there in person.

Praying for you sweetie.

Hugs,

Nancy

num1habsfan Rising Star

Hey guys, I managed to steal some internet. I kinda survived. It was rough. I'm still really out of it, so I'm gonna try get another connection tomorrow and post some details. Dont really feel like it right now. Keep sending me your love if you want. I could use it...

~ lisa ~

AndreaB Contributor

You got it. :)

Nantzie Collaborator

I'm glad you got through it okay. Just let us know more when you can.

Nancy

num1habsfan Rising Star

Hey guys. I managed to find another internet connection again, still in the city for another few hours (dad and sis have they appts). Heres a bit of an outline..

the doc was like "i cant give you enough sedation to put you to sleep" so he gave me some but guess what...awake for the whole thing and no freezing :(:wacko: . and then he says from what he saw he cant see anything there :( :(...but i gotta go back in a month or so to see the actual results.

He blames it on not enough fibre, and of course my mom had to hear that, now thats all shes blabbling on and on about, even tho I told her and the doc I make sure i eat as much brown rice as I can etc. and i'm gonna order higher fibre than usual bread from kinnikinnick. GOD SHES SO ANNOYING!!!

Anyways, my throat killed me all day yesterday and its still pretty sore today. Swallowing still hurts. I didnt think going 16 hours without food or drink can make a person so thirsty.

And my hand, my god. from the IV. I had to get my sister to tie up my hikers and zip up my bunnyhug!

And the worst part is the eating gluten, of course. Had to start that yesterday. SO i treated myself to some pizza and breadsticks, that'll be my lunch again today. And I'm still determined to eat a sub and some donuts before this weekend is done. I already feel like puking just from the pains.

I didnt get a note from my doc for the school, they can kiss my..butt. i honestly dont care. If they give me heck for not having a note I think i'd just cry. How can they really expect me to show up like this?

Theres your story. Keep replying if you want, I still need all your help to get me thru the next 4 days.

~ lisa ~

jerseyangel Proficient

Sorry it all been so rough on you Lisa :(

You are in my thoughts and I just know that you'll get through the rest of it ok.

You are a tough little cookie! I know it's hard right now, but won't it all be worth it if they find the source of all that pain?

Eat a little of that real pizza for me, please? :D

Nantzie Collaborator

Lisa, I'm sorry things are so rough and so frustrating. I hope these tests give you some new answers and not just some half-@ss "eat more fiber" BS from a doctor who has never gone through any of this stuff. To have to hear that after eating gluten, AND to have them not give you enough meds AND not even freeze your throat? Come on people! Grr...

Well, have a donut for me. Glazed-raised please? :D

Hugs, hugs and more hugs. (And a kick in the shin for the doctor. :P )

Nancy

AndreaB Contributor

I hope you get some answers. Hang in there despite the not too good treatment.

num1habsfan Rising Star
Lisa, I'm sorry things are so rough and so frustrating. I hope these tests give you some new answers and not just some half-@ss "eat more fiber" BS from a doctor who has never gone through any of this stuff. To have to hear that after eating gluten, AND to have them not give you enough meds AND not even freeze your throat? Come on people! Grr...

Well, have a donut for me. Glazed-raised please? :D

Hugs, hugs and more hugs. (And a kick in the shin for the doctor. :P )

Nancy

thanks nancy *lots of hugs back*. ya I plan to get some Timbits(for those of u non-Canadian, its donut holes ;) ) and my supper is gonna be a sub. And some All Dressed Ruffles. And a coffee crisp lol. Damn I missed this food, tho the bathroom loves me more now :lol:

And the eating gluten is for my test on Tues., not the 1 yesterday. Its why i still have to eat it for another 4 days :blink:

I PROMISE to post again once i'm back at home (still stealin someones internet :P )

<3 you guys.

~ lisa ~

babygirl1234 Rookie

oh man you must feel like barfing with all that gluten i went to the doctor today and my celiac disease showed up after all those years of being gluten-free im still having stomach prombles ahhhhh but ive been cheating here and there but like you i felt sick to my stomach after a day or so i was fine but i dont get as to why all thoses years of being gluten-free it still shows up in a biopy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.