Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Tomorrow


num1habsfan

Recommended Posts

num1habsfan Rising Star

So tomorrow is my endoscopy in Saskatoon. I'm so terrified. My nerves are going off the roof. I'll never sleep tonight. I've gone through an endoscopy before, was even AWAKE from not enough anesthetics, I KNOW this time it can't be any worse. But i'm still sooooo scared. Also tomorrow is when I have to start eating gluten...I sent a text message to some friends and i honestly cried just from writing a text message, I feel so pathetic. Everyone please help me.....I need you all :(

~ lisa ~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yenni Enthusiast
So tomorrow is my endoscopy in Saskatoon. I'm so terrified. My nerves are going off the roof. I'll never sleep tonight. I've gone through an endoscopy before, was even AWAKE from not enough anesthetics, I KNOW this time it can't be any worse. But i'm still sooooo scared. Also tomorrow is when I have to start eating gluten...I sent a text message to some friends and i honestly cried just from writing a text message, I feel so pathetic. Everyone please help me.....I need you all :(

~ lisa ~

Oh, I'll be thinking of you. I was a complete wreck when I was gonna have one done too. It wasn't because of gluten and I had it done in Sweden (where they give nothing but a little spray to numb the throat). Let them know you didn't get enough meds to sleep last time, if they don't already know.

My heart goes out to you. I hate those things too.

I hope it will go fast and easy.

Lisa Mentor

Lisa:

You are going through the worst of it right now. It is very natural to be nervous, but truley, the endo is no problem at all.

When I had mine, they gave me a shot and I drifted away. And then I woke up in the recovery room where my husband was waiting for me. I remember nothing in between.

Make sure that you take someone with you who can listen what the doctor will tell you. I remember nothing about what he told me and had to ask my husband three times.

YOU WILL DO JUST FINE! :D

jerseyangel Proficient

Lisa,

I'll be thinking about you tomorrow, and will keep you in my prayers :)

It's natural to be afraid, but everything is going to be ok--it really is. Don't forget to breathe deeply--in through the nose, and out through the mouth. I do that when I need to relax.

Hopfully this procedure will give some more clues as to what may be the cause of your pain.

You take care, and let us know how you do. :)

Judyin Philly Enthusiast

GOOD TIPS HERE lISA...

I'LL BE PRAYING AND THINKING GOOD THOUGHTS.

LET US KNOW

JUDY

2Boys4Me Enthusiast

Good luck!

angel-jd1 Community Regular

Good luck. I hope it gives you some answers.

-Jessica :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Prairie Girl Apprentice

I hope it goes well Lisa. I have just recently had my second one and it went good. i asked for lots of drugs and i don't remember a thing from this one... i would recommend doing this! I am sure you will do okay though. My thoughts will be with you. I went gluten free before my first endoscopy too and had to eat gluten for 4 months before the test... and though it can be hard, it is worth it in the end to know 100% for sure. Take care,

Courtney

Phyllis28 Apprentice

Good Luck, I hope the tests supply answers.

num1habsfan Rising Star

Thanks everyone *hugs you all*. I love you guys. I'm trying to stuff myself and drink as much as I can to make up for the long spree tomorrow of not eating/drinking :P .

*sighs* Even tho it wouldnt be a great thing, I really hope it shows refractory sprue....

~ lisa ~

happygirl Collaborator

Lisa,

Best of luck to you. You might want to mention to them that you didn't do well with their sedation last time, and want to ensure you are out the whole time.

Let us know how it goes....

num1habsfan Rising Star
Lisa,

Best of luck to you. You might want to mention to them that you didn't do well with their sedation last time, and want to ensure you are out the whole time.

Let us know how it goes....

Thanks. Last time it was a different doctor and different hospital but the same city...so I think I will tell them make sure to give me a lot of sedation because I SO dont wanna be awake for it again.

~ lisa ~

Lisa Mentor

Godspeed to you and wishful thoughts.

xxoo

num1habsfan Rising Star

Well theres the end of my food/water intake...and by the time I get out of my appointment, it'll be about 16 hours I go without both :(:unsure:

~ lisa ~

AndreaB Contributor

Hope all goes well tomorrow. Update us when you can.

Nantzie Collaborator

Oh Lisa, don't be scared. :( Just imagine all of us around you, holding your hands when your getting your endo. We'll be there in spirit, even though we can't be there in person.

Praying for you sweetie.

Hugs,

Nancy

num1habsfan Rising Star

Hey guys, I managed to steal some internet. I kinda survived. It was rough. I'm still really out of it, so I'm gonna try get another connection tomorrow and post some details. Dont really feel like it right now. Keep sending me your love if you want. I could use it...

~ lisa ~

AndreaB Contributor

You got it. :)

Nantzie Collaborator

I'm glad you got through it okay. Just let us know more when you can.

Nancy

num1habsfan Rising Star

Hey guys. I managed to find another internet connection again, still in the city for another few hours (dad and sis have they appts). Heres a bit of an outline..

the doc was like "i cant give you enough sedation to put you to sleep" so he gave me some but guess what...awake for the whole thing and no freezing :(:wacko: . and then he says from what he saw he cant see anything there :( :(...but i gotta go back in a month or so to see the actual results.

He blames it on not enough fibre, and of course my mom had to hear that, now thats all shes blabbling on and on about, even tho I told her and the doc I make sure i eat as much brown rice as I can etc. and i'm gonna order higher fibre than usual bread from kinnikinnick. GOD SHES SO ANNOYING!!!

Anyways, my throat killed me all day yesterday and its still pretty sore today. Swallowing still hurts. I didnt think going 16 hours without food or drink can make a person so thirsty.

And my hand, my god. from the IV. I had to get my sister to tie up my hikers and zip up my bunnyhug!

And the worst part is the eating gluten, of course. Had to start that yesterday. SO i treated myself to some pizza and breadsticks, that'll be my lunch again today. And I'm still determined to eat a sub and some donuts before this weekend is done. I already feel like puking just from the pains.

I didnt get a note from my doc for the school, they can kiss my..butt. i honestly dont care. If they give me heck for not having a note I think i'd just cry. How can they really expect me to show up like this?

Theres your story. Keep replying if you want, I still need all your help to get me thru the next 4 days.

~ lisa ~

jerseyangel Proficient

Sorry it all been so rough on you Lisa :(

You are in my thoughts and I just know that you'll get through the rest of it ok.

You are a tough little cookie! I know it's hard right now, but won't it all be worth it if they find the source of all that pain?

Eat a little of that real pizza for me, please? :D

Nantzie Collaborator

Lisa, I'm sorry things are so rough and so frustrating. I hope these tests give you some new answers and not just some half-@ss "eat more fiber" BS from a doctor who has never gone through any of this stuff. To have to hear that after eating gluten, AND to have them not give you enough meds AND not even freeze your throat? Come on people! Grr...

Well, have a donut for me. Glazed-raised please? :D

Hugs, hugs and more hugs. (And a kick in the shin for the doctor. :P )

Nancy

AndreaB Contributor

I hope you get some answers. Hang in there despite the not too good treatment.

num1habsfan Rising Star
Lisa, I'm sorry things are so rough and so frustrating. I hope these tests give you some new answers and not just some half-@ss "eat more fiber" BS from a doctor who has never gone through any of this stuff. To have to hear that after eating gluten, AND to have them not give you enough meds AND not even freeze your throat? Come on people! Grr...

Well, have a donut for me. Glazed-raised please? :D

Hugs, hugs and more hugs. (And a kick in the shin for the doctor. :P )

Nancy

thanks nancy *lots of hugs back*. ya I plan to get some Timbits(for those of u non-Canadian, its donut holes ;) ) and my supper is gonna be a sub. And some All Dressed Ruffles. And a coffee crisp lol. Damn I missed this food, tho the bathroom loves me more now :lol:

And the eating gluten is for my test on Tues., not the 1 yesterday. Its why i still have to eat it for another 4 days :blink:

I PROMISE to post again once i'm back at home (still stealin someones internet :P )

<3 you guys.

~ lisa ~

babygirl1234 Rookie

oh man you must feel like barfing with all that gluten i went to the doctor today and my celiac disease showed up after all those years of being gluten-free im still having stomach prombles ahhhhh but ive been cheating here and there but like you i felt sick to my stomach after a day or so i was fine but i dont get as to why all thoses years of being gluten-free it still shows up in a biopy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,075
    • Most Online (within 30 mins)
      7,748

    MamaJessica
    Newest Member
    MamaJessica
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.