Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutenease


Corsicana Grandma

Recommended Posts

Corsicana Grandma Rookie

Has anyone had any experience with the product GlutenEase? A friend heard about this from a health food store in Alabama. The following is a quote from info I got on line.

"GlutenEase offers those suffering with such intolerances (gluten and casein) assistance in digestion and assimilation fo the offending proteins. DPP-IV, is able to break down an exorphin peptide (a protein) believed to be a contributing factor in gluten and casein intolerance. This proactively heals the gut, reduces inflammation, allows proteins to be properly absorbed in their digested state and broadens the amount of potential food groups a person may eat."

Sounds like a wonderful product if it will work. Just wondered if anyone else had any experience with it before I try it.

Thanks,

Corsicana Grandma


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Here is a link that explains how it works. In the link it says products like Glutenease are not suitable for celiacs. They say it works for people who have a leaky gut and have problems with gluten and caseine from that. http://www.enzymestuff.com/dietsgfcf.htm

People with celiac disease need to follow a strict gluten-free diet. There are scattered reports where someone with celiac was able to resume eating gluten by using amylase or papain (or perhaps both of these enzymes). However, at this time there are no known enzyme products that will consistently and reliably allow a person with celiac to resume eating gluten, although there continues to be research and development in this area.

Much information on celiac:

www.celiac.com

Corsicana Grandma Rookie
Has anyone had any experience with the product GlutenEase? A friend heard about this from a health food store in Alabama. The following is a quote from info I got on line.

"GlutenEase offers those suffering with such intolerances (gluten and casein) assistance in digestion and assimilation fo the offending proteins. DPP-IV, is able to break down an exorphin peptide (a protein) believed to be a contributing factor in gluten and casein intolerance. This proactively heals the gut, reduces inflammation, allows proteins to be properly absorbed in their digested state and broadens the amount of potential food groups a person may eat."

Sounds like a wonderful product if it will work. Just wondered if anyone else had any experience with it before I try it.

Thanks,

Corsicana Grandma

thanks! I'll check it out.

Corsicana Grandma

CarlaB Enthusiast
thanks! I'll check it out.

Corsicana Grandma

The only circumstance I would say to try it is if you are definately not a celiac. I'm not, but I'm afraid to try it!

Corsicana Grandma Rookie
The only circumstance I would say to try it is if you are definately not a celiac. I'm not, but I'm afraid to try it!

That is an interesting web site. If kind of busted my bubble but I may try it anyway. I'm not celiac either. I'll gluten intolerant and casein allergic. I would love to find something that would allow me to have just a little cheese.

.

Corsicana Grandma

Tash-n-tail Rookie
The only circumstance I would say to try it is if you are definately not a celiac. I'm not, but I'm afraid to try it!

Sigh. I'm with you there! Used to be so adventurous with various foods. These days if it's off my list or there are doubts whatever, it is stays there! And I have to say I was startled by someone who posted in another thread about a face cream being a potential source for glutening.

bookbabie Apprentice

I have it, but I haven't used it enough yet to know how well it works. I don't plan on eating a pizza or anything, just use it mostly when I go out to eat. I have certainly not had any adverse reaction to it the few times I've taken it. It's basically just a good all around digestive aid. Wish I'd remembered to take it last night. Went to PF Chang


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Corsicana Grandma Rookie
I have it, but I haven't used it enough yet to know how well it works. I don't plan on eating a pizza or anything, just use it mostly when I go out to eat. I have certainly not had any adverse reaction to it the few times I've taken it. It's basically just a good all around digestive aid. Wish I'd remembered to take it last night. Went to PF Chang
CarlaB Enthusiast
Well, I just ordered a bottle. I'll let you know what happens. So sorry to hear about PF Changs. We almost ate there a while back, but failed to make a reservation and could't get in and make our concert. We don't have one here and Dallas is about an hour away so we don't get up there often.

Don't write off PF Changs! They have a gluten-free menu and are very careful, but like anywhere (including HOME!), they can make mistakes. I've never had a problem there, but I've seen two or three people post about having problems there on occasion.

Face creams can be a source of gluten, but hand cream can be worse! I must say, after a year of being completely gluten-free, I did go back to using a face cream with gluten in it. I'm careful not to get it near my mouth and I wash my hands afterward. I really liked it and wanted to try it again. I'm having no problems, but again, I'm non-celiac gluten intolerant ... at the most it's "just" going to make me feel bad, it won't do actual damage. I wouldn't take the chance with celiac.

bookbabie Apprentice
Don't write off PF Changs! They have a gluten-free menu and are very careful, but like anywhere (including HOME!), they can make mistakes. I've never had a problem there, but I've seen two or three people post about having problems there on occasion.

I agree, I'll go back. We go there often but that night they were crazy busy so I'm not surprised there was CC.

Nancym Enthusiast
I'm non-celiac gluten intolerant ... at the most it's "just" going to make me feel bad, it won't do actual damage. I wouldn't take the chance with celiac.

I'm just curious where you get this notion from? Do you think gluten intolerance only affects (or doesn't) the villi in your intestines? I had severe IBS, neurological symptoms and several autoimmune diseases from my gluten intolerance. I'm sure it caused leaky gut which spawned all these autoimmune diseases and my memory/neurological problems. How does that not count as damage? I'm going to be living with the results of these diseases for the rest of my life and, if I'm not very, very careful, my life could be significantly shortened from them.

The more I read, the more it seems that gluten intolerance IS a significant issue that can cause major health problems even if your villi look fine.

This is why I would never, ever trust an enzyme unless it were tested and written about and retested in peer reviewed medical journals.

Rachel--24 Collaborator
I'm just curious where you get this notion from? Do you think gluten intolerance only affects (or doesn't) the villi in your intestines? I had severe IBS, neurological symptoms and several autoimmune diseases from my gluten intolerance. I'm sure it caused leaky gut which spawned all these autoimmune diseases and my memory/neurological problems. How does that not count as damage? I'm going to be living with the results of these diseases for the rest of my life and, if I'm not very, very careful, my life could be significantly shortened from them.

I agree that gluten can cause damage outside of the intestines. However, I dont think a person w/out Celiac is sentenced to a life without gluten. If they can address the issues which led them to develop leaky gut and correct this.....making their intestinal environment healthy once again....I dont think the reactions would continue to occur.

The more I learn about my own illness.....the more convinced I am that if I can overcome this I should be able to eat gluten again without symptoms....just as I did for 31 years prior to my illness.

I think in many cases gluten intolerance is a symptom of underlying issues.

This is only in reference to Non Celiac Gluten Intolerance. If I had Celiac I would not take an enzyme....I would stick to the diet 100%.

CarlaB Enthusiast
I agree that gluten can cause damage outside of the intestines. However, I dont think a person w/out Celiac is sentenced to a life without gluten. If they can address the issues which led them to develop leaky gut and correct this.....making their intestinal environment healthy once again....I dont think the reactions would continue to occur.

The more I learn about my own illness.....the more convinced I am that if I can overcome this I should be able to eat gluten again without symptoms....just as I did for 31 years prior to my illness.

I think in many cases gluten intolerance is a symptom of underlying issues.

This is only in reference to Non Celiac Gluten Intolerance. If I had Celiac I would not take an enzyme....I would stick to the diet 100%.

This is what I think, too. I have other underlying health problems that are likely causing me to be gluten intolerant. Once they are fixed, I am guessing that I might be able to tolerate gluten again, but I won't know until then. In the meantime, I get sick off a crumb. I'm not looking to go out and get a pizza, but it would be nice to not have to worry so much about contamination. I don't really think gluten is good for anyone.

I also think that leaky gut can cause significant health problems, including autoimmune problems. I don't know which comes first, gluten intolerance or leaky gut, but I'd guess that it varies from person to person -- some people get gluten intolerance from leaky gut, others get leaky gut from gluten intolerance -- that's my guess.

I never meant to imply that people with gluten intolerance aren't having health problems, just that with celiac we know so much more about it and there is no chance of eating gluten again. With leaky gut and gluten intolerance, we really don't know. There are probably different reasons for and different levels of gluten intolerance. My body's damage is coming from something else, and in my personal history, I've only had GI problems and other problems when I'm having a flare-up of my other disease (which is in no way caused by gluten nor aggravated by it).

  • 3 weeks later...
Hoolie Newbie
Has anyone had any experience with the product GlutenEase? A friend heard about this from a health food store in Alabama. The following is a quote from info I got on line.

"GlutenEase offers those suffering with such intolerances (gluten and casein) assistance in digestion and assimilation fo the offending proteins. DPP-IV, is able to break down an exorphin peptide (a protein) believed to be a contributing factor in gluten and casein intolerance. This proactively heals the gut, reduces inflammation, allows proteins to be properly absorbed in their digested state and broadens the amount of potential food groups a person may eat."

Sounds like a wonderful product if it will work. Just wondered if anyone else had any experience with it before I try it.

Thanks,

Corsicana Grandma

I have had exceptionally good experience with this product BUT I am just gluten intolerant, not celiac. I noticed a difference right away, but I had to take it any time I had gluten and often had to take more than two. The company says it is only to be used a "safety net" for celiac. Like going out to dinner and not having total control.

Hoolie

JNBunnie1 Community Regular

There's also the fact that the wheat grain itself is not really nutritious at all. It provides almost no essential nutrients, has a very low protein content, and is actually full of something called phytic acid that will behave as an ANTI nutrient, carrying vital things OUT of your system. That's why bran is such a good cleanser! So maybe being 'able' to eat gluten again isn't really that desirable of a goal.... If you need fiber have some veggies.

  • 10 years later...
Redbard52 Newbie

I am Celiac and always keep some Gluten Ease on hand in case of accidental glutening.  Last week I made some waffles, grabbing a box of pancake/ waffle mix from the shelf where we keep our gluten free products.  After eating 3 waffles, my wife noticed that the box did not say "Gluten Free".  It turns out that someone gave us a box of regular wheat flour type pancake mix - my wife intended to give it to another friend but forgot to and it ended up next to the other pancake mixes (that are all gluten-free).  

I am not overly sensitive to minor cross contamination and it has been over a year since I had a bad glutening, but this time I expected significant digestive problems (typically one day of frequent flatulence and then a bout of diarrhea on the second day).  I decided to make heavy use of the Gluten Ease for this situation.  I took two right away and two more for each of the next 3 hours.  Then, one capsule in the late afternoon and before bed.  And the next day one in the morning and one at noon.

I hardly noticed that I had been glutened with respect to my symptoms.   Some minor flatulence the first day and no symptoms on following days.  I had hoped for some reduction of symptoms but I was amazed at how well the Gluten Ease worked for this occurrence.  

The bottle says to take one capsule with a meal containing gluten but "more may be taken as needed".  I don't think that one capsule would be very effective - but the regimen I used worked quite well.

Ennis-TX Grand Master
54 minutes ago, Redbard52 said:

I am Celiac and always keep some Gluten Ease on hand in case of accidental glutening.  Last week I made some waffles, grabbing a box of pancake/ waffle mix from the shelf where we keep our gluten free products.  After eating 3 waffles, my wife noticed that the box did not say "Gluten Free".  It turns out that someone gave us a box of regular wheat flour type pancake mix - my wife intended to give it to another friend but forgot to and it ended up next to the other pancake mixes (that are all gluten-free).  

I am not overly sensitive to minor cross contamination and it has been over a year since I had a bad glutening, but this time I expected significant digestive problems (typically one day of frequent flatulence and then a bout of diarrhea on the second day).  I decided to make heavy use of the Gluten Ease for this situation.  I took two right away and two more for each of the next 3 hours.  Then, one capsule in the late afternoon and before bed.  And the next day one in the morning and one at noon.

I hardly noticed that I had been glutened with respect to my symptoms.   Some minor flatulence the first day and no symptoms on following days.  I had hoped for some reduction of symptoms but I was amazed at how well the Gluten Ease worked for this occurrence.  

The bottle says to take one capsule with a meal containing gluten but "more may be taken as needed".  I don't think that one capsule would be very effective - but the regimen I used worked quite well.

Emergency use it reduces symptoms, your antibodies will still flare and be heightened for the next few weeks and damage your intestines. IT is not a cure all pill so do not assume on this that it makes the stuff safe....sorry to knock you down but we do have idiots skim this and thing "OH I can have that pill and eat all the gluten I can and not get sick" which is not the case.....like taking morphine taking a sander to your arm, then brushing super glue over the top....you got damage you just feel it less and covered it up.

I tried the whole enzyme thing early on after dia thinking it was some miracle pill like it was advertised....BS.....I will admit I do wish I could afford it after this last CC issue I had with hemp powder I got that made me sick and I learned it was gluten-free but lab tested it came back at 15.4ppm....I ate it for a week and the symptoms slowly crept up....had diarrhea for about 2 weeks now even off the stuff bloody antibodies still not going down.

squirmingitch Veteran

Open Original Shared Link

Do supplements like GlutenEase (or Gluten Cutter, Digest Gluten Plus, Glutenase) offer protection against accidentally eating gluten?

We put no validity in these supplements. In fact, they may offer a false sense of protection when they provide no protection at all. May, 2013
Celiac4762 Apprentice

Yea, as a celiac I wouldn't ever rely on enzymes to save me. The problem isn't in the food, it's your immune system. Therefore, the only way we're goin for to solve this, is with some sort of treatment for the immune system. You can do whatever you want to break down the gluten, but there's no fail safe way of ensuring every microscopic piece of gluten has come into contact with this enzyme. Especially with how fast food goes from your mouth to your SI.

 

For example, a while ago I drank a "gluten free" beer that was made from gluten, but had been broken down by an enzyme. They allow a few weeks for this enzyme to break down the gluten to below 20ppm. Although this is considered "gluten free" I still got sick. 

My conclusion, these "enzymes" are worthless for celiacs and probably for the gluten intolerant people too.

 

But that's just my opinion. Best of luck to you. Stay safe.

Redbard52 Newbie

Just to be clear, I noted that I keep Gluten Ease on hand "in case of accidental glutening".   I agree that someone should never intentionally eat anything in excess of 20 ppm gluten with the idea that Gluten Ease will protect them.   But it appears that this product can be helpful in reducing symptoms when one accidentally ingests significant gluten.  Also, since I am not as sensitive as some people, the benefits of Gluten Ease may have worked better for me that it would to someone who is much more sensitive.

cyclinglady Grand Master

I am not here to argue as to whether or not these OTC supplements can help ease glutening symptoms or not, but I can add that the placebo effect is very real.  Do whatever rituals work for you!   The mind is amazing and I think it can impact your immune system!  

Now, I am going to serve up my homemade gluten-free chicken rice soup to my family (who are all suffering from a cold), make them nap, drink plenty of fluids, and have them watch happy movies today.  I am sure they will feel much better by tonight’s festivities!  

Merry Christmas!  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,136
    • Most Online (within 30 mins)
      7,748

    GFTom
    Newest Member
    GFTom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.