Whats The Point Posting

[jerseyangel]

I must say, you guys have cheered me up immensely today!

Glad to be of service!

[blueeyedmanda]

Amanda--No, he's a "domestic longhair" I just love him to bits, though!

We have a Maine Coon mix we picked up as a stray before my Mom's old neighbors did away with it He is only going to be 2 in May, we have had him a whole year this month. He is so lovable and you can tell he loves us. Your kitty reminds me of him.

[jerseyangel]

We have a Maine Coon mix we picked up as a stray before my Mom's old neighbors did away with it He is only going to be 2 in May, we have had him a whole year this month. He is so lovable and you can tell he loves us. Your kitty reminds me of him.

You know, I've seen pictures of Maine Coons, and they do remind me of Allo. Maybe he has some of that in him.

Your kitty sounds beautiful--I'd love to see a picture sometime.

[blueeyedmanda]

He just looks so content in that picture.

[Mango04]

the one about the guy curing himself with the cleanse got deleted too

I was surprised that thread got deleted so quickly. More than anything, that seemed like an issue of a person assuming he had celiac disease, when something else really was the problem. Maybe he cured his candida and therefore gluten stopped bothering him? I dont' know, I think we could have learned something from that thread if the reaction had been "hey, maybe you had an intolerance to gluten caused by something other than celiac" rather than jumping on the guy and deleting the thread. That's what I thought anyway, but perhaps things like that will always be controversial until we know more about non-celiac gluten intolerance. Just my random opinion

[Lisa]

Mango:

I sort of agree. As the first to post after his initial one, I knew that his claim would send ripples around here. I "with all due respect", did challenge his claim. I was concerned that others or newbies could realize this as a "cure" for celiac, and disregard a gluten free diet.

Perhaps, as you said, that the cleansing helped with his candida and it was not celiac related.

[CarlaB]

"hey, maybe you had an intolerance to gluten caused by something other than celiac" rather than jumping on the guy and deleting the thread.

I am starting to think this could be the case for many non-celiacs, but it's something we just don't know for sure. I do think it's dangerous, however, to present yourself as being a celiac and claiming you were cured as he was doing. I believe there are different levels of gluten intolerance, some of which may be caused by candida (or Lyme), but for many people with gluten intolerance and ALL people with celiac, it's gluten-free for life.

On the one hand, I think my own intolerance may be lessened when I get the Lyme under control, but on the other hand, my family has a history of stomach problems, so I think it will always be an issue ...

[debmidge]

from what I learned about message board insurance (from wanting to have a site for people in my industry) the insurance company would want to know the rules for posting and to make sure that the administrator removes offensive posts ASAP. So I can see how a whole thread could go down in a situation as described.

[blueeyedmanda]

Mango:

I sort of agree. As the first to post after his initial one, I knew that his claim would send ripples around here. I "with all due respect", did challenge his claim. I was concerned that others or newbies could realize this as a "cure" for celiac, and disregard a gluten free diet.

Perhaps, as you said, that the cleansing helped with his candida and it was not celiac related.

The new members of our board was my concern and that was why I posted a response. Some of our members are very ill when they find their way here and you don't want to point them in the wrong direction. Plus I thought that if you are not in decent health a cleanse can make things worse. I just didnt want to see someone get sicker when they could be starting the diet and starting to find see the light.

[Lisa]

But.....that issue is mute. Let's press on with a greater knowlege.

[Mtndog]

from what I learned about message board insurance (from wanting to have a site for people in my industry) the insurance company would want to know the rules for posting and to make sure that the administrator removes offensive posts ASAP. So I can see how a whole thread could go down in a situation as described.

Wow- I didn't know you needed insurance for a message board. Scary- but we are a very litigious society and there are advertisers that keep this board afloat.

also, that was my worry- that anyone could google "cure celiac" and see that. I tried to point out that he cured his candida, but as Momma Goose says, let us press on to greater knowledge.

[nikki-uk]

If you can make a little girl scream like that I'm really scared of you!

Eh??

Clearly I missed the 'Bev torturing niece avatar'!!! (but I love the new one )

[gfp]

I am starting to think this could be the case for many non-celiacs, but it's something we just don't know for sure. I do think it's dangerous, however, to present yourself as being a celiac and claiming you were cured as he was doing. I believe there are different levels of gluten intolerance, some of which may be caused by candida (or Lyme), but for many people with gluten intolerance and ALL people with celiac, it's gluten-free for life.

On the one hand, I think my own intolerance may be lessened when I get the Lyme under control, but on the other hand, my family has a history of stomach problems, so I think it will always be an issue ...

Yep true and the same for momma goose's post...

The problem is though your either celiac or not it doesn't happen overnight....

Many of us went years before diagnosis and the symptoms gradually presenting themselves, often so slowly we think its normal, getting older etc.

Having candida or lyme seems to be a trigger... this is just my guesswork now but imagine a pre-diagnosis celiac with no discernable villi damage from random biopsy... but +ve bloodwork (or not)...

They can eat gluten and not show symptoms, specially not gastric but they are damaging themselves... inparticualr the villi are being destroyed but they are regenerating faster...

One day we get older... stressed, you name it perhaps pregnancy or a illness and suddenly the villi are not repairing as fast as they are destroyed....however up to thisd time we were still giving ourselves increased cancer risk (which is because the cells are forced to divide and regenerate) and stressing the thyroid and many mopre bad things...

If this stress was candida (or lyme) then curing the candida problem will put them back in the villi not visibly damaged phase...

The chance is sooner or later they will pass back...

Hence for the poster they are probably eating gluten and doing themselves thyroid and neuro damage... and are a timebomb...

[CarlaB]

If this stress was candida (or lyme) then curing the candida problem will put them back in the villi not visibly damaged phase...

The chance is sooner or later they will pass back...

Hence for the poster they are probably eating gluten and doing themselves thyroid and neuro damage... and are a timebomb...

This is true. If you've had damaged villi (or positive blood work), you are gluten-free for life. If the "other" illness was the trigger for celiac, it's a forever thing.

The people I'd like to see studied are those who are non-celiac gluten intolerant, maybe as a result of leaky gut caused by candida (antibiotics, etc.). If the problem gets resolved, then can the gut handle the gluten again? For some, perhaps the leaky gut was caused by the gluten itself, but what about for those whose leaky gut was caused by something else.

There is just so much we don't know right now! We don't know everything about celiac, but we know even less about non-celiac gluten intolerance.

For me, I had no damaged villi and negative blood work. I feel SO much better gluten-free and a very small amount of gluten makes me sick. I wonder what causes this? I understand that for some this is "pre-celiac", and I understand that some have celiac without the genes for it, but it seems that there are so many of us here who neither have the genes nor the positive tests, a lot more than the 5% of celiacs who don't have the genes.

The BEST I'm hoping for is to be able to eat out more normally ... that cc won't bother me as much. I know we ALL want that ... it would just be nice to only have one disease to worry about for the rest of my life instead of two ... I'm just hopeful. I know that ordering a pizza would be asking for trouble though.

[Jestgar]

I know that ordering a pizza would be asking for trouble though.

Ya know, I've been enjoying this feeling of superiority lately watching commercials like the ones where you get your pizza crust stuffed full of extra cheese and you then dip it in ranch dressing or something. I suppose I always knew it, but now that I can watch these commercials with a detached sort of interest it's very clear to me that Carla's statement is really true for everyone, even those that can scarf gluten all they want.

[CarlaB]

Ya know, I've been enjoying this feeling of superiority lately watching commercials like the ones where you get your pizza crust stuffed full of extra cheese and you then dip it in ranch dressing or something. I suppose I always knew it, but now that I can watch these commercials with a detached sort of interest it's very clear to me that Carla's statement is really true for everyone, even those that can scarf gluten all they want.

I agree completely. My totally unsupported, unscientific opinion is that gluten is bad for everyone. I know my hubby feels better when he doesn't eat it, but it doesn't make him sick either. I think that some of us non-celiac gluten intolerants are this way because our immune systems are stressed by something else, so this food that no one should be eating affects us the same as it would a celiac, but doesn't necessarily cause the same villi damage.