Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Bro...

JerryK

By JerryK
in Coping with Celiac Disease

Recommended Posts

JerryK Community Regular
JerryK
Posted

So my brother calls me this morning. (my identical twin, for those who don't know)

He says they ran out of bread at his house, and he'd been feeling pretty good. His wife went and bought a couple loaves and he said "I had three Chicken Sandwiches". He says "My butt is scorched".

I'm about rolling on the floor laughing, because of the way he's describing his symptoms....and I'm like DUDE isn't it about time you listened to me?? I've been telling him for months. He's followed along...seen my Enterolab test results...seen the results of my Gene Tests. KNOWS that I've determined I'm SERIOUSLY gluten intolerant, yet HE IS STILL EATING IT.

Even my mom, who at first accused me of Hypocondria now gets it. She taped a TV interview with the doc who wrote "Celiac Disease a Hidden Epidemic"(sorry can't think of his name) and tells me "I'm sure glad you don't have that gene...you don't have to worry." Well maybe not totally true, but at least she's now paying attention. At least she understand why I don't go rushing for the cookies anymore.

The bro however, continues to scorch his behind.....I guess I can look at it as a double blind study of what would happen to me if I continue to eat it....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 53
  • Created
  • Last Reply
Jestgar Rising Star
Jestgar
Posted

The perfect chance to call a sibling an idiot! I look forward to those!

JerryK Community Regular
JerryK
Posted
  • Author
The perfect chance to call a sibling an idiot! I look forward to those!

I asked him if his butt was sore enough yet to stop eating wheat...and he said "could be

something else" Doh :lol:

Jestgar Rising Star
Jestgar
Posted
I asked him if his butt was sore enough yet to stop eating wheat...and he said "could be

something else" Doh :lol:

:lol: :lol: :lol:

One of my brothers prefers to think he has pre-leukemia (whatever THAT would be).

Guy, it's just wheat....

Guhlia Rising Star
Guhlia
Posted

Hmmmm Jerry.... Sounds like another gluten intolerant man I remember from a few months ago... :) :) :)

CarlaB Enthusiast
CarlaB
Posted

Well, it's a double study, don't know about the blind part. He does sound a lot like you though!! :lol:

Pre-leukemia??? :blink:

LoveBeingATwin Enthusiast
LoveBeingATwin
Posted

I am an idential twin also! However my twin does not have celiac disease as of right now. She got tested after I was diagnosed but everything was fine. So right NOW she is very lucky but who knows what the future will hold! I have to say though she is VERY supportive and helpful. She makes me gluten free/ dairy free goodies and prints me off recipe. She's the BEST! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted
Pre-leukemia??? :blink:

Major hypochondriac. His wife censors everything he sees or reads. And every once in a while calls me or my mom with "your brother/son is driving me crazy!"

Funny how almost anything is better than 'giving up' something.

jerseyangel Proficient
jerseyangel
Posted
Funny how almost anything is better than 'giving up' something.

You hit the nail squarely on the head there! :D

JerryK Community Regular
JerryK
Posted
  • Author
I am an idential twin also! However my twin does not have celiac disease as of right now. She got tested after I was diagnosed but everything was fine. So right NOW she is very lucky but who knows what the future will hold! I have to say though she is VERY supportive and helpful. She makes me gluten free/ dairy free goodies and prints me off recipe. She's the BEST! :)

I have a love hate relationship with being a twin. I hated it when I was a kid because mom dressed us the same...we always had the same birthday. Some relatives got us ONE present to share etc...

Also, being an identical twin...all you had to do is look across the table and there you are...sort of weird if you get my drift, and I'm sure you do.

Also, especially with boy twins, one has to end up being the dominant one. It was me and I feel terrible for all the times I beat him up when we were kids.

It seems odd that one twin can have Celiac and the other doesn't. It has to be environmental where one person's diet has sensitized them to gluten or something. j

miles2go Contributor
miles2go
Posted
It seems odd that one twin can have Celiac and the other doesn't. It has to be environmental where one person's diet has sensitized them to gluten or something. j

I remember quite distinctly when I was getting the "stomach flu" quite a lot. That wasn't that long ago. Really glad you've decided to try the gluten-free. Can't believe there's another one of ya. ;)

And whoever said it, sorry can't remember, but men who cook are HOT, (maybe not necessarily in aprons, unless they're particularly studly aprons).

JerryK Community Regular
JerryK
Posted
  • Author

I'm using the same arguments you guys used on me. Telling him....if your behind hurts this bad now....what do you think it's doing to your insides? What about the damage you can't feel?

Told him next time he eats a sandwich he can hum...."come on baby light my fire" :lol::lol::lol:

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Pre-leukemia??? :blink:

When you think about it, that's not so far off from reality, as celiac is often pre-non-Hodgkin's Lymphoma!

CarlaB Enthusiast
CarlaB
Posted
When you think about it, that's not so far off from reality, as celiac is often pre-non-Hodgkin's Lymphoma!

Then he should start saying he's pre-non-Hodgkin's Lymphoma!! ;)

Jestgar Rising Star
Jestgar
Posted
Then he should start saying he's pre-non-Hodgkin's Lymphoma!! ;)

I'm guessing you can't have this for 15 years.....

Jestgar Rising Star
Jestgar
Posted

Well, or actually maybe you can...

But that would be assuming everyone got it eventually.

CarlaB Enthusiast
CarlaB
Posted
Well, or actually maybe you can...

But that would be assuming everyone got it eventually.

He's a hypochondriac ... have fun with it. :lol:

Jestgar Rising Star
Jestgar
Posted
He's a hypochondriac ... have fun with it. :lol:

Unfortunately it's bordering on pathological. He was going in for kidney stone removal and he called us all to say goodbye (although he didn't specifically say that).

And other than the "carbs" issue (as his wife calls it) he bike rides, eats healthy, goes to the gym, etc.

No reason at all to be 'pre-non-hodgkins-lymphoma' :P

CarlaB Enthusiast
CarlaB
Posted
He was going in for kidney stone removal and he called us all to say goodbye (although he didn't specifically say that).

My dad tweaked his will when he went in for gall bladder surgery. ;)

NoGluGirl Contributor
NoGluGirl
Posted

Dear JerryK,

Your brother sounds exactly like my parents and brother! My brother and mom especially are candidates for Celiac. I already explained to them it is genetic, and they probably have it as well. My father was an infant that failed to thrive, had starvation diarrhea and they almost lost him. If the nurse had not told my grandmother to put him on 2 percent milk, he would have died! His butt was so small, it fit into a tea cup! My grandmother told me about this before.

Well, when Dad got older, he had ulcerative colitis. Does that sound plausible to you he is Celiac too? Mom has the runs everyday, and my brother gets them all the time, too. Naturally, the say it cannot be gluten, because they eat it all the time. :blink: (That is the only emoticon I could use, they do not have a DUH face.)

My mother takes three prescription pills plus generic anti-diarrheal medication (I so affectionately call it liquid cork) daily so she is not stuck in the bathroom all day. My brother toughs it out, but won't do anything to fix it! He does not want to give up his pastries. Vegetables are pretty much out of the question, too. There just seems nothing can be done with them!

A song I would recommend for your brother is any by the Butthole Surfers! :P

Dear miles2go,

Yep. I was the one talking about how attractive men in aprons are. Emeril, Ming, Mario, they are all babes! A man that can feed you is a babe! There is nothing better than an adonis holding a spatula! Rocco DiSpirito, or my favorite Todd English, or how about Aaron Sanchez? There are many to choose from! So many flavors, so little time! :lol:

Sincerely,

NoGluGirl

kbtoyssni Contributor
kbtoyssni
Posted
Funny how almost anything is better than 'giving up' something.

Until you actually do give it up and realize that in this case, the grass really is greener without gluten :)

JerryK Community Regular
JerryK
Posted
  • Author

2 Day the bro sends me e-mail and quips that "Chili seems to go right thru me without changing much".

I told him, check the label on the can you fruitcake. This little problem will not go away until you start eating things that do not say WHEAT under ingredients.

I have to confess it's entertaining watching him go thru all the steps of denial that I went thru. :rolleyes:

CarlaB Enthusiast
CarlaB
Posted
I have to confess it's entertaining watching him go thru all the steps of denial that I went thru. :rolleyes:

Yes, I have to confess, "watching" you was entertaining, too. :lol:

JerryK Community Regular
JerryK
Posted
  • Author
Dear JerryK,

A song I would recommend for your brother is any by the Butthole Surfers! :P

OK, I may be a bit slow on the uptake here, I just noticed this today. I'm laughing my butthole off.... :lol: Is that really a group's name?

JNBunnie1 Community Regular
JNBunnie1
Posted
OK, I may be a bit slow on the uptake here, I just noticed this today. I'm laughing my butthole off.... :lol: Is that really a group's name?

Yup! Google it, they're lotsa fun....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
    2. par18
      - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free...
    3. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    4. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748
    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.