Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Last Night...

JerryK

By JerryK
in Coping with Celiac Disease

Recommended Posts

JerryK Community Regular
JerryK
Posted

Like I said last week, I've been feeling really well. I haven't had the runs in weeks and weeks. It's been so long since my stomach felt bad that the memory of it is fading...if you know what I mean.

I start to think...hmmm...there's nothing wrong with me....I feel great......and so forth...

So last night I'm sitting around...you know just wanting something...not really sure what, just know I'm not satisfied.

My daughter just graduated from college, and some of our friends were kind enough to bake her a big Chocolate Cake.

In addition to that we still have some of those Thin Mint Girl Scout Cookies around.

I finally couldn't stand it any longer and announced I was going to eat some cookies. My daughter followed me in to the kitchen saying "daddy are you sure you want to make your self sick?"

I had one of those Thin Mint Cookies in my mouth....and THEN had reservations and spit it out.

But I wanted it, I wanted it bad. It's like I need a shock collar to zap me every time I start thinking about cookies or cake....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted
Like I said last week, I've been feeling really well. I haven't had the runs in weeks and weeks. It's been so long since my stomach felt bad that the memory of it is fading...if you know what I mean.

I start to think...hmmm...there's nothing wrong with me....I feel great......and so forth...

So last night I'm sitting around...you know just wanting something...not really sure what, just know I'm not satisfied.

My daughter just graduated from college, and some of our friends were kind enough to bake her a big Chocolate Cake.

In addition to that we still have some of those Thin Mint Girl Scout Cookies around.

I finally couldn't stand it any longer and announced I was going to eat some cookies. My daughter followed me in to the kitchen saying "daddy are you sure you want to make your self sick?"

I had one of those Thin Mint Cookies in my mouth....and THEN had reservations and spit it out.

But I wanted it, I wanted it bad. It's like I need a shock collar to zap me every time I start thinking about cookies or cake....

Well i guess it is good u spit it out lol.

Im hoping you go home today and throw away the rest of the thin mints or have a family member eat them all, so you are no longer tempted by them.

I for one got gltuened last night and i have no idea from what, but im feeling terrible.

I sometimes wonder if it is best to get glutened from eating something really good, or getting glutened and having no idea what caused it lol

paula

Jestgar Rising Star
Jestgar
Posted

You do have a shock collar. It just doesn't work until several hour later and it's attached to your intestine :ph34r:

Phyllis28 Apprentice
Phyllis28
Posted
But I wanted it, I wanted it bad. It's like I need a shock collar to zap me every time I start thinking about cookies or cake....

Jerry,

You have a shock collar, it is called aversion therapy. Just think about how sick you will be if you eat the gluten poison.

You might also consider keeping gluten free treats in the house such as ice cream, popcorn or gluten free candy. You can grab this instead of the cookies or cake.

It will get easier to resist temptation the longer you are gluten free.

UR Groovy Explorer
UR Groovy
Posted

Frickin

GeoffCJ Enthusiast
GeoffCJ
Posted
Frickin
sfm Apprentice
sfm
Posted
Well i guess it is good u spit it out lol.

Im hoping you go home today and throw away the rest of the thin mints or have a family member eat them all, so you are no longer tempted by them.

I for one got gltuened last night and i have no idea from what, but im feeling terrible.

I sometimes wonder if it is best to get glutened from eating something really good, or getting glutened and having no idea what caused it lol

paula

I have been accidentally glutened several times, and had the same thought (darn, I didn't even enjoy it!!!)

:P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sfm Apprentice
sfm
Posted
Like I said last week, I've been feeling really well. I haven't had the runs in weeks and weeks. It's been so long since my stomach felt bad that the memory of it is fading...if you know what I mean.

I start to think...hmmm...there's nothing wrong with me....I feel great......and so forth...

So last night I'm sitting around...you know just wanting something...not really sure what, just know I'm not satisfied.

My daughter just graduated from college, and some of our friends were kind enough to bake her a big Chocolate Cake.

In addition to that we still have some of those Thin Mint Girl Scout Cookies around.

I finally couldn't stand it any longer and announced I was going to eat some cookies. My daughter followed me in to the kitchen saying "daddy are you sure you want to make your self sick?"

I had one of those Thin Mint Cookies in my mouth....and THEN had reservations and spit it out.

But I wanted it, I wanted it bad. It's like I need a shock collar to zap me every time I start thinking about cookies or cake....

It sounds like you had an intervention from your daughter, Jerry! ;)

My children are very aware and sensitive to my problem, even though I've only been gluten free since November. But they remember me getting sick. Two weeks ago I accidentally glutened myself by serving them pizza, then forgetting to wash the flour off my hands before I ate. My 10 year old daughter unfortunately walked in on me while I was emptying my stomach, couldn't keep dinner down. And her reaction was, Oh no, Mom, did you have wheat?

It sounds like your daughter is on the ball, that's a blessing...!

:) Sheryll

GeoffCJ Enthusiast
GeoffCJ
Posted
I have been accidentally glutened several times, and had the same thought (darn, I didn't even enjoy it!!!)

:P

No kidding! I mean, if I'm going to get sick, an damage my insides, at least let me know I'm going to be sick. I'm ordering a real pizza and getting a 6-pack of beer. Getting sick because of some ingredient I didn't even know about just sucks.

Geoff

CarlaB Enthusiast
CarlaB
Posted
But I wanted it, I wanted it bad. It's like I need a shock collar to zap me every time I start thinking about cookies or cake....

Your shock collar is a delayed reaction ... it's the bathroom run.

I eventually got sick of getting sick off gluten ... I'm finally starting to think you may be reaching that point! :lol:

MistressIsis Apprentice
MistressIsis
Posted

Jerryk, man you slay me! I like that you retain your sense of humor with all this...so I am a junk food junkie! It's the hardest part for me living gluten-free...I found 2 cake mixes that are sooo yummy no one will ever know they're gluten-free.

Bob's Red Mill gluten-free Chocolate Cake mix & also their Brownie mix and Namaste cake mixes. Mom made me a Namaste for my 35th bday and my entire family had rude comments (I;m talking Aunts, Uncles, Cousins, Siblings) and that they wouldn;t eat it, they wanted store bought...I said Good, cause I plan on eating the whole thing. Yeah, turns out they ate my cake & never touched the store bought! I think both have cookie mixes too, I just haven't tried them yet.

I've tried Pamela's stuff and am not impressed (but i am a junkie!) I'll get their biscotti if I'm travelling but that's about it.

OH OH & Kinnickanic (or whatever) has the BEST chocolate covered doughnuts!!!

tarnalberry Community Regular
tarnalberry
Posted

Your post reminds me of a quote from the vice principle of my high school. Something along the lines of "That's not really a need, that's a want, even though you think it's a need." (It was in relation to getting the classes we wanted/needed, but really, applies to everything.)

JNBunnie1 Community Regular
JNBunnie1
Posted

Actually, the best cookie I ever had was from the Whole Foods Gluten-Free Bakehouse in the freezer section. I used to BE a

Girl Scout, ok? If anyone knows about those bloody cookies, it's me. The Whole Foods gluten-free chocolate chip cookie is FAR better

than any girl scout cookie I ever had! And the peanut butter cookies are a close second. I HIGHLY recommend them for

people suffering cookie monster syndrome.

JerryK Community Regular
JerryK
Posted
  • Author
suffering cookie monster syndrome.

I like this...I have it :(

Nancym Enthusiast
Nancym
Posted

You need to plan for these things. Have your own "treats" ready when everyone else is indulging.

NoGluGirl Contributor
NoGluGirl
Posted

Dear JerryK,

AAAAHHHHH NOOOOOO!!!!! :o You were doing so well! WTH did you do that for? Bad Jerry!

Bad! Where is that darn newspaper to smack you on the nose with?! I have programmed by brain to see anything with gluten (even my beloved Cheez-Its) as rat poison. Now, I pretty much overlook them, like they are not even there.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748
    Amari Love
    Newest Member
    Amari Love
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.