Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs And Bacteria Overgrowth


Mtndog

Recommended Posts

Mtndog Collaborator

This article talks about how bacterial overgrowth may account for some cases of IBS (not "IBS" as in I'm basically stumped but in IBS that persists despite a gluten-free diet or treatment for another gastro disorder. Remember when ulcers were caused by stress? :rolleyes:

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Bev,

I think alternative doctors have been aware of dysbiosis (too much bad bacteria...too little good bacteria) being the cause of gastro illness and other disease for quite some time now.

I think mainstream might finally be catching on. :o

I saw it on the news a couple weeks ago...they were talking about how they *think* that IBS may be caused by bacteria overgrowth. :huh:

I dont think alternative medicine uses the term "IBS" though...basically dysbiosis causes symptoms of disease.....whether its gastro related or otherwise.

I'm not too big a fan of mainstream medicine these days and I had to laugh at their lastest and greatest "discovery". :rolleyes:

Judyin Philly Enthusiast

interested in this

getting the written report from hydrogen test tomorrow and let you know what it says

hope we get some more imput.

thanks..hi rachel

Mtndog Collaborator
Bev,

I think alternative doctors have been aware of dysbiosis (too much bad bacteria...too little good bacteria) being the cause of gastro illness and other disease for quite some time now.

I think mainstream might finally be catching on. :o

I saw it on the news a couple weeks ago...they were talking about how they *think* that IBS may be caused by bacteria overgrowth. :huh:

I dont think alternative medicine uses the term "IBS" though...basically dysbiosis causes symptoms of disease.....whether its gastro related or otherwise.

I'm not too big a fan of mainstream medicine these days and I had to laugh at their lastest and greatest "discovery". :rolleyes:

Rachel- I hear ya!!!!!!!!!!!!!!!!!!!!!!!! I don't blame you for laughing!

happygirl Collaborator

Dr. Mark Pimentel in CA has done some work on this. I think he is def onto something, but his studies have been flawed. However, it is an overlooked reason for IBS symptoms.

I have the book on it, in case anyone wants it. :) I was tested for it last year .... of course, negative.

Judyin Philly Enthusiast
Dr. Mark Pimentel in CA has done some work on this. I think he is def onto something, but his studies have been flawed. However, it is an overlooked reason for IBS symptoms.

I have the book on it, in case anyone wants it. :) I was tested for it last year .... of course, negative.

HI LAURA AND THANKS...

READ HIS PERSONAL PAPER SENT TO MY GI......READ IN GASTRO JOURNAL........READING OTHER RESPONCES TO HIS DATA..........SO GETTING INFO ON THIS.

THIS DR. IS THE PERSONAL FRIEND OF MY GI AND IS WHAT SHE WANTS ME TO FOLLOW 'EVEN THO' THE BREATH TEST ONLY SHOWED 1 POINT IN THE LOW RANGE OF POSITIVE.

NOT THE 200 MG DOSE..BUT 400 mgs 3X/x a day :ph34r::blink:

I'VE HAD NO 'D' SINCE GOING OFF DAIRY AND CASEIN. HER APT ON MARCH 14TH RESULTED IN MY OWN 'CLINICAL TRIAL' gluten-free HOT FUDGE SUNDAY WITH W/CREAM AND NUTS.

BOWEL MUST BE HEALING..AS FIND AFTER AND ALL NITE AND IN AM 2 NORNAL STOOLS..

17 'TRIPS' TO BATH ROOM AND WATER BY NOON..................IT'S PROOF TO ME....

IDEAS????

JUDY

Judyin Philly Enthusiast

lAURA

DO YOU HAVE THE BOOK HE WROTE ON IBS?

IS THAT THE ONE YOU MEANT?

IF YOU WANT TO GET RID OF IT....I'LL GADLY ACCEPT IT......OR

DO YOU NOT WANT IT CAUSE IT ISN'T VALID YOU YOUR OPINION........THEN IN THAT CASE...WITH YOU BEING THE RESEARCHER YOU ARE................I'LL SKIP IT.

READ SO MUCH ON IT YEARS AGO BUT KNOW THE INFO IS CHANGING.

THANKS JUDY


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mtndog Collaborator
Dr. Mark Pimentel in CA has done some work on this. I think he is def onto something, but his studies have been flawed. However, it is an overlooked reason for IBS symptoms.

I have the book on it, in case anyone wants it. :) I was tested for it last year .... of course, negative.

laura- You tested negative? Ugh! have they figured anymore out about what's going on with you.

My test got moved up to this Tuesday and I'm hoping this is a piece of the puzzle.

happygirl Collaborator

Bev, I have been tested for EVERYTHING. :). multiple endos, colonoscopies, barium swallows, ultrasounds, HIDA gallbladder scan, celiac blood panel, gene tested, bloodwork out the wazoo, more urine and stool samples than I care to count, bacterial overgrowth, ... etc. Remember? I had the "best"---NIH and Johns Hopkins, after much of the above testing done in VB. ;)

I requested to have it done in September, before I moved. Everything except my Lyme and co-infections tests have been negative...hence, thats what I've been dx'ed with and now treating.

larry mac Enthusiast

After my first visit with my new GI, he ordered blood, urine, & stool samples to find out what was wrong with me (and causing my chronic diarrhea). I then started taking XIFAXAN

Judyin Philly Enthusiast

IM

Thanks so much for taking the time to post.

I have a bottle beside me..I am to take the double dose also....but....by the time I got in to the GI apt after waiting 3 1/2 months to get it.--the 'd' was gone!

The hydrogen breath test showed only a POINT above the norm for dx'ing it. I have no 'd' now since I went off diary and casein 7 weeks ago.

go figure. :blink:

did you have the test too?

judy

larry mac Enthusiast
IM

Thanks so much for taking the time to post.

I have a bottle beside me..I am to take the double dose also....but....by the time I got in to the GI apt after waiting 3 1/2 months to get it.--the 'd' was gone!

The hydrogen breath test showed only a POINT above the norm for dx'ing it. I have no 'd' now since I went off diary and casein 7 weeks ago.

go figure. :blink:

did you have the test too?

judy

No. There was never any mention of it. lm

Mtndog Collaborator
Bev, I have been tested for EVERYTHING. :). multiple endos, colonoscopies, barium swallows, ultrasounds, HIDA gallbladder scan, celiac blood panel, gene tested, bloodwork out the wazoo, more urine and stool samples than I care to count, bacterial overgrowth, ... etc. Remember? I had the "best"---NIH and Johns Hopkins, after much of the above testing done in VB. ;)

I requested to have it done in September, before I moved. Everything except my Lyme and co-infections tests have been negative...hence, thats what I've been dx'ed with and now treating.

Laura- I probably knew this but I amm so brain-dead right now! I'm sorry. I hope you weren't upset that I forgot! :(

happygirl Collaborator

Bev...no, not at all! It was said more "tongue in cheek" about the best care ;).

You have enough on your plate, no worries!

lovegrov Collaborator

One of the first celiac experts I ever heard, Dr. Cynthia Rudert, said the top two reasons some people who have celiac don't get better is non-compliance with the diet and bacterial overgrowth.

richard

jerseyangel Proficient

I'm kind of cautiously excited--I'm going to see a new gastroenterologist in early April. She's younger, and over the phone said that she would talk to me about my additional food intolerances and continued, intermittant IBS-type symptoms.

My current gastro refuses to address this--saying I only need to stay away from gluten. <_< I was supposed to see him again in February, but I can't see going in and getting the same speil.

My allergist is more helpful, really, but with Bev and Judy as my inspiration :D , I'm going to go and see if there's anything else at play here.

Wish me luck.... :unsure:

happygirl Collaborator

Patti,

That is so wonderful. At the very least, its worth ruling things out. No need to suffer if there is help!

Keep us updated!

L

AndreaB Contributor

Patti,

It will be more answers for you. I second Laura....keep us posted. :)

jerseyangel Proficient

Thanks Laura and Andrea :D

The appt. is on the 3rd.--I'll keep you posted.

Judyin Philly Enthusiast

hi Patti

I'm so happy for you

got your email today and will reply soon.

I'm praying that you get some answers and can share with us too.

was happy to see Richard's post today

if you want to read up on the hydrogen test..or the research..i can forward to you..

just let me know.

again...so so so happy your going to some one open to looking at intolerances.

ps..got more notes from Scott so all alerts are off again.

please keep me posted on new info incase I'm not on...would sure appreciate it.

hugs

Judy

Mtndog Collaborator

Laura- Oh good :rolleyes: I felt so dumb...but sometimes it's so hard to keep up with everyone.

richard- thank you for that info!

Patti- My appt. is on the 3rd too! I've decided that in the last two years, I've had no problem firing doctors! :rolleyes:

jaten Enthusiast

I don't know if this will help any of you or not, but it's worth looking into....

When I was diagnosed with Celiac 1 1/2 yrs ago, my GI immediately handed me samples of a probiotic called Flora Q. He started me on 2 caps/day and then after a month reduced me to 1 (usual dose). He said that the "flora & fauna" of the intestinal tract gets unbalanced more often than most realize and results in a cycle of some very serious problems. He said that he recommends Flora Q to all of his Celiac patients and some others. (He said he's had better results from this than from other products.)

It works well for me! It's a little expensive. about $30 for 30 day supply, but it's so worth it to me! Truthfully, I don't remember to take it every day, but when I start to get that blegh "ibs" feeling, I start taking it again, and within 2-3 days I feel much better. I try to take it then at least for a couple of weeks straight.

Flora Q info:

Manufacturer - Kenwood Therapeutics

label information:

GLUTEN FREE

contains: lactobacillus, bifodobacterium, lactobacillus paracesei, streotococcus thermophilus

other ingredients: maltodextrin, hypromellose, microcrystalline cellulose, sodium alginate, silicon dioxide, magnesium stearate, titanium dioxide, FD&C blue 2

This product is free of the following allergens: milk, wheat gluten, egg, fish, crustacean shellfish, soybean, tree nuts, and peanuts

Flora Q is an OTC, but I've never found it on the shelf with the other priobiotics in any pharmacy. I have to ask a pharmacist because it's always behind the counter eventhough it's an over-the-counter.

Judyin Philly Enthusiast

thanks so much for the post...sounds like a good product and a Dr. that knows what's UP!

CAN'T WAIT TO HEAR HOW BEV'S TEST WENT

JUDY

Mtndog Collaborator

Thanks jaten. My test came back negative but think I am going to restart probiotics. I still LOVE LOVE LOVE your dog and now I have one too!!!!!!!!!!!!!!!

Mtndog Collaborator
I'm kind of cautiously excited--I'm going to see a new gastroenterologist in early April. She's younger, and over the phone said that she would talk to me about my additional food intolerances and continued, intermittant IBS-type symptoms.

My current gastro refuses to address this--saying I only need to stay away from gluten. <_< I was supposed to see him again in February, but I can't see going in and getting the same speil.

My allergist is more helpful, really, but with Bev and Judy as my inspiration :D , I'm going to go and see if there's anything else at play here.

Wish me luck.... :unsure:

Wondering how it went today Patti! Hope you got some answers!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

    2. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748

    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.