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Zelnorm Withdrawn

jerseyangel

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jerseyangel Proficient
jerseyangel
Posted

I just saw this and thought I'd pass it on--

Open Original Shared Link

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HawkFire Explorer
HawkFire
Posted

Just one of hundreds of mass chemical experiments going on with the fda today. I'm sad for all the people taking this poison. When will Americans understand how corrupt the fda is? :(

Lisa Mentor
Lisa
Posted

Patti:

They are being pulled off the market today as of the 5 o'clock news. You're on top of things.

Lisa

Nantzie Collaborator
Nantzie
Posted

Makes ya leary about that celiac pill they're working on too. It seems like the first couple years on the market is really the last "phase" of finding out what a pill really does to people.

Nancy

wolfie Enthusiast
wolfie
Posted

My dr tried to get me to take this years ago for my "IBS". Glad I didn't. I am always very leary of taking new drugs as it is and I knew there had to be a better way to handle my "IBS". I was right.

Same thing happened with Vioxx....dr wanted me to take it for sinus headaches, I didn't and glad that I didn't now that it was pulled off the market as well.

key Contributor
key
Posted

My mom was just taking this and weaned off of it, because it quit working after a few weeks. Anyway, My doctor wanted me to take it. HE sort of gave me a hard time, like it would "fix" all my problems!! I told him I was trying natural stuff, which he did give me some advice reguarding probiotics, etc. It must make doctors feel badly to have prescribed something they were SO confident about and then have no "treatment" for their patients!

Monica

Judyin Philly Enthusiast
Judyin Philly
Posted

PATTI

THANKS FOR POSTING.

I'M WONDERING IF THE OTHER NEW DRUG (THAT BEV AND I ARE LOOKING AT) :blink:

IF THEY KNEW ABOUT THIS ONE NOT WORKING?

BOY ----THOSES DRUG COMPANIES... :ph34r::blink:

I'M SURE IN THE 'HOLD' PATTERN FOR NOW.

MY PERSONAL 'DAIRY CHALLANGE' :o YEP....THE gluten-free ICE CREAM SUNDAY.....MADE ME REMEMBER WHAT A 'FIBRO FLARE' WAS AND THE 'IBS' TOO.

THANKS PATTI

YEP, THAT'S OUR ...."""ALWAYS ON TOP OF IT GAL""""....PATTI

WE'RE SO LUCKY TO HAVE YOU ON THIS BOARD!!!!!!!

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Clark Bent as Stupor-Man Contributor
Clark Bent as Stupor-Man
Posted

I think this is now the 3rd medication my sister has been on long-term that has been pulled off the market...

I think I remember somebody posting on this board about others using zelnorm a few weeks ago in relation to some health issues they had... can't remember exactly what the post was about, whether it was about heart or chest pain or not...

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    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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