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Zelnorm Withdrawn


jerseyangel

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jerseyangel Proficient

I just saw this and thought I'd pass it on--

Open Original Shared Link


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HawkFire Explorer

Just one of hundreds of mass chemical experiments going on with the fda today. I'm sad for all the people taking this poison. When will Americans understand how corrupt the fda is? :(

Lisa Mentor

Patti:

They are being pulled off the market today as of the 5 o'clock news. You're on top of things.

Lisa

Nantzie Collaborator

Makes ya leary about that celiac pill they're working on too. It seems like the first couple years on the market is really the last "phase" of finding out what a pill really does to people.

Nancy

wolfie Enthusiast

My dr tried to get me to take this years ago for my "IBS". Glad I didn't. I am always very leary of taking new drugs as it is and I knew there had to be a better way to handle my "IBS". I was right.

Same thing happened with Vioxx....dr wanted me to take it for sinus headaches, I didn't and glad that I didn't now that it was pulled off the market as well.

key Contributor

My mom was just taking this and weaned off of it, because it quit working after a few weeks. Anyway, My doctor wanted me to take it. HE sort of gave me a hard time, like it would "fix" all my problems!! I told him I was trying natural stuff, which he did give me some advice reguarding probiotics, etc. It must make doctors feel badly to have prescribed something they were SO confident about and then have no "treatment" for their patients!

Monica

Judyin Philly Enthusiast

PATTI

THANKS FOR POSTING.

I'M WONDERING IF THE OTHER NEW DRUG (THAT BEV AND I ARE LOOKING AT) :blink:

IF THEY KNEW ABOUT THIS ONE NOT WORKING?

BOY ----THOSES DRUG COMPANIES... :ph34r::blink:

I'M SURE IN THE 'HOLD' PATTERN FOR NOW.

MY PERSONAL 'DAIRY CHALLANGE' :o YEP....THE gluten-free ICE CREAM SUNDAY.....MADE ME REMEMBER WHAT A 'FIBRO FLARE' WAS AND THE 'IBS' TOO.

THANKS PATTI

YEP, THAT'S OUR ...."""ALWAYS ON TOP OF IT GAL""""....PATTI

WE'RE SO LUCKY TO HAVE YOU ON THIS BOARD!!!!!!!


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Clark Bent as Stupor-Man Contributor

I think this is now the 3rd medication my sister has been on long-term that has been pulled off the market...

I think I remember somebody posting on this board about others using zelnorm a few weeks ago in relation to some health issues they had... can't remember exactly what the post was about, whether it was about heart or chest pain or not...

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    • trents
      It would be interesting to see if you were tested again for blood antibodies after abandoning the gluten free diet for several weeks to a few months what the results would be. Don't misunderstand me. I'm not necessarily suggesting you do this but it is an option to think about. I guess I'm saying there is a question in my mind as to whether you actually ever had celiac disease. As I said above, the blood antibody testing can yield false positives. And it is also true that celiac-like symptoms can be produced by other medical conditions.
    • numike
      Thank you for the reply In the early 2000's I did not have the endoscopy nor the biopsy I do not have those initial records I have only consulted a GI drs in the USA 
    • trents
      Welcome to the forum, @numike! We sometimes get reports like yours from community members who believe their celiac disease has "gone away." We think there can sometimes be cases of remission but not long term healing and that continued consumption of gluten will eventually result in a relapse. This is the state of our knowledge at this point but there is still a lot we don't know and celiac disease continues to surprise us with new findings on a frequent basis. So, we would not advise you to abandon a strict gluten-free diet. Perhaps you can draw consolation from the fact that at the present time you seem to be able to consume gluten without consequences when in situations where you do not have the option to eat gluten-free. But I would advise you to not generalize your recent experience such that you throw caution to the wind. But I want to go back to what you said about being diagnosed by blood test in the early 2000's. Did you not also have that confirmed with an endoscopy and biopsy of the small bowel lining? Normally, a celiac disease diagnosis is not concluded based on a blood test alone because there can be false positives. What kind of doctor did this testing? Was it done in the U.S. or overseas? In the last few years, it has become common in the U.K. to grant a celiac diagnosis from blood testing alone if the antibody test scores are 10x normal or greater. But that practice has not caught on in the U.S. yet and was not in place internationally in the early 2000's. Do you have a record of the tests that were done, the scores and also the reference ranges for negative vs. positive for the tests?
    • numike
      Check out this celiac story  I was diagnosed early 2000s with the blood test  since then I have for the most part maintained a gluten-free diet  Recently (August 2025) I drove from Southern Illinois to Lake Erie Ohio On the drive back I was extremely hungry and I had a coupon at a hamburger chain and I stopped and forgot to request gluten-free bun etc and quickly consumed two hamburgers. I promptly ate both of them and had absolutely no problem since then I've been eating plenty of gluten  Is my celiac gone?  Insert: No, celiac disease cannot just end because there is no cure for it; however, a strict, lifelong gluten-free diet allows the small intestine to heal and symptoms to go away. To manage the condition effectively, you must strictly avoid all sources of gluten, including wheat, barley, and rye, which are common in the American diet. Sticking to the diet can lead to significant symptom improvement and intestinal healing, but it requires ongoing commitment and monitoring with a healthcare professional  Regarding medical test I had My stools analyzed Giardia Ag Cryptosporidium Ag and they came back negative  I had the lactulose test and it came back high so I'm on two weeks of heavy antibiotics That still has not stopped me from eating gluten. Here's what I think is going on and I hope to have your opinion regarding it  Since I've been gluten-free for so long my intestinal tract has repaired itself consequently anything I eat with gluten now just bounces right off with no damage to my gut  however  when I asked AI what was going on the reply was celiac has not gone away and  if I continue to eat gluten I'm going to have problems   I look forward to your sage advice as to what the heck is going on with me Thank you for reading Mike 09112025
    • Scott Adams
      I agree, and generally it means that it isn't working in a high enough percentage of participants to continue pursuing it.
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