Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nerve Issues And Diet?

daniella

By daniella
in Coping with Celiac Disease

Recommended Posts

daniella Newbie
daniella
Posted

About 2 months ago I developed a severe pain in my inner ankle/foot area and within a week or so was in the worst pain of my life. I have been in bed most of 6 weeks. I first thought it was an injury and had bone scans,xrays but it turned out not. I was reffered to a neurologist and was given emg tests and now have an mri on sat. I have sharp pains in my foot and tingling,numbing. I can barely walk and am in aircast when I do. I was also given a nerve block shot and am on nerve meds along with vicadin for pain. Anyhow I have been tested in the past for celiec and it didn't show but I have a lot of the symptoms including very high liver enzymes,low white blood count,bloating and cramping,usually constipated but when I go its a lot, and now this nerve issue. Before this nerve issue I always had sore joints and pains. I'm in my late 20's. I'm under the care of 3 plus docs right now but was wondering if anyone had any input and found a wheat free diet to help. Thank you and I hope this was the proper place to post.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GeoffCJ Enthusiast
GeoffCJ
Posted
About 2 months ago I developed a severe pain in my inner ankle/foot area and within a week or so was in the worst pain of my life. I have been in bed most of 6 weeks. I first thought it was an injury and had bone scans,xrays but it turned out not. I was reffered to a neurologist and was given emg tests and now have an mri on sat. I have sharp pains in my foot and tingling,numbing. I can barely walk and am in aircast when I do. I was also given a nerve block shot and am on nerve meds along with vicadin for pain. Anyhow I have been tested in the past for celiec and it didn't show but I have a lot of the symptoms including very high liver enzymes,low white blood count,bloating and cramping,usually constipated but when I go its a lot, and now this nerve issue. Before this nerve issue I always had sore joints and pains. I'm in my late 20's. I'm under the care of 3 plus docs right now but was wondering if anyone had any input and found a wheat free diet to help. Thank you and I hope this was the proper place to post.

I had nerve issues in my feet and hands, for 7-10 years. Tingling and numbness. It doesn't sound as severe as yours, mine is rarely debilitating, though on occasion it makes walking or doing simple manual tasks very difficult or uncomfortable.

I have seen some improvement in frequency since going gluten free 4 months ago, but not much improvement in severity. I am still experiencing some GI issues, I'm trying to eliminate corn now, and am starting to wonder about diary.

Geoff

RiceGuy Collaborator
RiceGuy
Posted

Two things in particular have helped me greatly with nerve function and such. A sublingual methylcobalamin supplement (vitamin B12), and a magnesium supplement. I recommend them most highly.

JNBunnie1 Community Regular
JNBunnie1
Posted

I have to bring something up that's very unpleasant, however unlikely. Has any of your doctors considered MS?

daniella Newbie
daniella
Posted
  • Author

Thank you for your replies. I feel very lonely,confused,and scared along with the pain. Thank you for the suggestions and personal experience. I have not been tested I don't think for ms. Unless that would show in my mri tomorrow. I did have bone scan,emg,and doppler,xrays and complete blood work. I'm very frustrated with docs at this point because one sends me to another or like the neurolgist who sent me to pt that overstretched me and now I'm in worse pain then before and why I started to take vicodin. I'm very concerned that all the waiting to get in for tests or for the doc to order more after waiting to see if the meds help or what the previous test shows is making things worse. I'm trying to not get ahead. On the note of stomach issues like last night I was up all night with cramping,bloating and feeling like I need to go.Also would it make a difference if not intolerant but sensitive if you just limit but not take away? Thank you again its very appreciated.

marciab Enthusiast
marciab
Posted

Your digestive issues could be from the Vicodan. All pain meds tear up my stomach. And make me feel like I am disconnected.

I hate it when doctors make me feel worse. I have pain in my right hip and foot from a herniated disk, but the excercises the PT has me doing actually make it feel better, not worse. Did your PT help you with these to make sure you were doing only the ones that did not cause you pain ? Lite stretching excercises are best.

Rotating ice and heat, 20 minutes on and 20 minutes off is actually better for pain than most drugs.

Gluten lite will still cause problems for a lot of people. I can't have any gluten whatsoever or else I will get my myoclonus and insomnia back.

Marcia

daniella Newbie
daniella
Posted
  • Author

Thanks well my stomach symptoms were before the meds but I do agree it has made it worse. I always though that celiec disease came with more diareah and I'm so constipated but when I do go its a lot and I feel drained like again I was up all night with such stomach bloating and still constipated.This is regardless of fiber intake. I saw a nutritionist because I eat a lot and though I don't feel hungry I feel malnurished if that makes sense. I have a bug appetite though regardless of hunger. As for pt actually I saw another doc yesterday and for my issue it aggrevates it. I had my mri today so will see and a nerve shot yesterday. If the next set of shots doesn't help and these tests don't show anything they think they will do surgery to release a nerve. So sick of this and it really teaches you how health is so important.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748
    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Low iron and vitamin d

      By Scott Adams · Posted

      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      Healthy Gluten Free Foods low sugar that you found?

      By Scott Adams · Posted

      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
    • Scott Adams
      Trip to Anaheim/Disney

      By Scott Adams · Posted

      This article is a few of years old, but my still be helpful.  
    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.