Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Celebrate Your Celiac Diagnosis Day?

gfgypsyqueen

Recommended Posts

gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

It seems that my past life was the life that I got to eat whatever I want where ever I wanted. Food was just something that tasted great and I craved different things at different times, like chocolate . . . I never read a label, execpt to look at the fat content and probably buy it anyway. Now after years of being sick and never knwoing what the problem was I found out about Celiacs. After the Celiac diagnosis I go through phases of missing the old days - pre-celiacs.

So I was wondering does anyone else celebrate their diagnosis day? Or am I just a tad crazy :rolleyes: I try to remember the day by going out to eat to my favorite gluten-free restaturant (PF Chang's) and really enjoying a good meal out with friends.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I don't celebrate it, as such, but last year on June 2nd (my first gluten-free anniversary), I did stop and remember how far I'd come and how much things had changed since before I was diagnosed. :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Oh yea, it's my other 'birthday'. Being a twinless twin I don't usually celebrate my real one so my Diagnosis day is a day to feel good and treat myself. It will be 5 years 11/20 :)

angel-jd1 Community Regular
angel-jd1
Posted

Mine is New Years Eve Day.........sooo EVERYBODY celebrates mine :P Didn't you realize that is what the party in New York's Times Square is all about.........my gluten-free anniversary?! ! haha :lol:

-Jessica :rolleyes:

miles2go Contributor
miles2go
Posted

Absolutely! And I got a kind of nebulous dx, so I celebrate that day in September and also the day I went completely gluten-free in January, so I get two days. :) We can eat anything we want, just as long as we know how to substitute.

It is great to feel well!

Partay on!

:D :D :D

celiacgirls Apprentice
celiacgirls
Posted

Mine was yesterday! I thought I would celebrate but I forgot about it. I take that as a positive since being gluten-free is fading into the background now and is just a part of my life.

happygirl Collaborator
happygirl
Posted

We celebrate it at my house! :) Getting the diagnosis gave me my life back....

This summer will be three years for me! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfp Enthusiast
gfp
Posted

??

I don't even celebrate my birthday... if I can get away with it.

Indeed, Im a bit embarassed to say but when I moved I had 5yrs worth of unopened birthday and XMas cards...to throw away.,..

kbtoyssni Contributor
kbtoyssni
Posted
Oh yea, it's my other 'birthday'. Being a twinless twin I don't usually celebrate my real one so my Diagnosis day is a day to feel good and treat myself. It will be 5 years 11/20 :)

I treat mine as a second birthday, too! Why not celebrate the fact that I've got my life back? Last year (my one-year) I had my friends over for a gluten-free dinner.

chocolatelover Contributor
chocolatelover
Posted

I definitely will--it's only been a couple of months, but I really do feel like the day I went off gluten was the day I regained my life. I feel better now than I have for the past 20 years.

I love the idea of celebrating going gluten free!

:P

aikiducky Apprentice
aikiducky
Posted

I don't have a diagnosis, and I don't actually remember when exactly I went gluten free any more. It was somewhere in October or November 2004, but other than that... maybe I should just celebrate for two months straight. :D

Pauliina

mamabear Explorer
mamabear
Posted

Well, considering my biopsy was done on April Fool's Day and the GI didn't tell me he had added a biopsy for celiac disease, so I didn't get the chance to eat one more piece of real birthday cake.... And I thought it was just an extended April Fool's joke....no, I don't celebrate the day. I do however celebrate my heightenned awareness of celiac disease and gluten sensitivity on a daily basis.....personally and professionally.

Generic Apprentice
Generic
Posted

Nope, I have no idea what day I was diagnosed. All I remember was it was 1988, I was at a restaurant with my mom eating a huge stack of pancakes and she dropped the bomb.

Nantzie Collaborator
Nantzie
Posted

I don't, but I think it's a neat idea. Mine was a few days after Christmas '05, not sure exactly when though... Considering my biopsy was in mid-Feb, it's no wonder I had a negative biopsy. :P

By the time Christmas was over I could barely make myself eat any of the "goodies". So I just threw in the towel and went gluten-free because I knew I wasn't eating enough gluten for a positive biopsy as it was. I just couldn't make myself eat it anymore.

Nancy

sugarlust Newbie
sugarlust
Posted

you all have such good storys about going gluten free, it makes me feel very positive about celebrating my 1 year anni of being gluten free on the 25th april 2008! (yes went gluten free 2 days ago!)

doctor did 1 celiac blood test and decided i dont have it, apparently i have IBS and anxiety..... but i know i have a history of feeling 'better' after going gluten free in the past (was very young at the time tho and didnt stick with it for long, even tho it it made me feel Heaps better in only 2 weeks! kids eh ;) )

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    yfuvhg
    Newest Member
    yfuvhg
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.