Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just When I Thought I'd Figured It All Out

hathor

Recommended Posts

hathor Contributor
hathor
Posted

I was researching something else & found this list of what is allowed, to be questioned, or not allowed on a gluten free diet. It is from the University of Rochester Medical Center:

Open Original Shared Link

It includes dried fruit, canola oil, & cooking sprays as items to be avoided. Huh? Other than the cooking sprays that include flour, what am I missing? If anything :rolleyes: I can't recall ever seeing these items on other lists.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I just came back from the store and read that Pam contains grain alcohol, it does not list wheat as required by law, so my assumption would be that it is corn derived. But, with that being said, I bought Crisco l00% extra virgin Olive Oil spray.

Some dried fruit are dusted to reduce sticking together. I buy dried dates all the time when my sweet tooth kicks in and it is listed as only Dried Dates.

Some people here do react to canola oil at times, but I do not think that it is gluten related.

It does get confusing at times.

Lisa Mentor
Lisa
Posted
I just came back from the store and read that Pam contains grain alcohol, it does not list wheat as required by law, so my assumption would be that it is corn derived. But, with that being said, I bought Crisco l00% extra virgin Olive Oil spray.

Some dried fruit are dusted to reduce sticking together. I buy dried dates all the time when my sweet tooth kicks in and it is listed as only Dried Dates.

Some people here do react to canola oil at times, but I do not think that it is gluten related.

It does get confusing at times.

I just called ConAgra 1 (800) 726-4968, regarding the grain alcohol source in Pan's ingredient listing. They will also list the top 8 allergens in the ingredient list as well as below, list whatever common allergens would be present. Wheat is not listed.

hathor Contributor
hathor
Posted
  • Author

A little more research --

Someone elsewhere also mentioned that sometimes dried fruit is dusted. But why wouldn't the law require this to be listed in ingredients? Besides the list I posted said never to eat dried fruit, not to check it out or make sure it isn't dusted with flour. (Wheat flour would seem a poor choice for this since wheat is a common allergen.)

I've googled the subject and all I get are indications that dried fruit is gluten-free.

My cooking spray doesn't have alcohol listed, but rather soy lecithin (which I can have despite my soy intolerance, or so I've been told) and an unnamed propellant. But, aren't people now saying that grain alcohol is OK, wherever it is from, because no gluten makes it through the distillation process?

I did find an article mentioning that some had proclaimed that canola oil was unsafe for celiacs, but there is no explanation for why. The author thought this was a mistake. All the lists I've seen, until this one, did not single this oil out. So maybe this list is something that was developed some time ago? Perhaps someone who has been gluten-free longer than I can explain this one.

I also now notice that the top of the list says one must avoid millet & buckwheat, but that this is corrected when you get to the food lists.

I'm wondering if there is controversy over what is or isn't gluten-free that I, newbie as I am, have been unaware of. Yes, I know about the whole oats thing, but these other categories are news to me. Of course, this list could simply be wrong.

Jestgar Rising Star
Jestgar
Posted

I don't think the fruit is dusted, but the conveyor belts may be. Since it isn't added to the food it isn't required to list it. Buy from a reputable company and it shouldn't be an issue.

Juliebove Rising Star
Juliebove
Posted
I don't think the fruit is dusted, but the conveyor belts may be. Since it isn't added to the food it isn't required to list it. Buy from a reputable company and it shouldn't be an issue.

I have seen date bits that are dusted with oats. But the oats are clearly listed.

lovegrov Collaborator
lovegrov
Posted

I checked out the link and it also says to avoid buckwheat. We've known for many, many years now that buckwheat is perfectly safe as long as wheat flour isn't added. Canola is perfectly safe. Sprays are perfectly safe except a "baker's" one that very clearly lists wheat. "Dusting" a line with wheat flour would now require that it be listed, but honestly I haven't seen lines "dusted" with wheat flour in 5 years.

Ignore that web site.

richard

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GRUMP 1 Contributor
GRUMP 1
Posted

Part of the problem as I see it is that there seems to be so many list out there that say different things are safe or not safe. You look at one and it will say Buck wheat is safe or Oats are safe. But then you look at another list and they are not safe. Which list are we suppose to rely on?

I went to a gluten free store the other day and they have GLUTEN FREE OATS in there. But my understanding has always been Oats are bad. So again what list do we go by?

tarnalberry Community Regular
tarnalberry
Posted
So again what list do we go by?

You take *no* list as gospel, but rather understand the concepts that put things on the list (or have them removed) so that you understand what makes something gluten free or not. For instance, the oats question isnt answered by something being on the gluten-free list or not, you need to know about the chance of cross reactivity amongst celiacs and contamination in the field.

happygirl Collaborator
happygirl
Posted

I don't use lists of specific products ... I go by food labeling laws and the companies that we know clearly will disclose any gluten source.

hathor-that list is unreliable. You don't need a list if you go by the theory that you read everything equally before you put it in your mouth.

Osteogal (Karen) Newbie
Osteogal (Karen)
Posted

Hi, all. I live in Canada and I understand that labelling laws here are not very strict concerning the term "gluten-free". I have read that our food safety governing body feels that there are acceptable levels of exposure so that any product coming in under a certain level can be labelled gluten-free, even though it contains gluten. So, like many of you, I don't trust lists completely, just as a guideline.

I have only been gluten-free on a doctor's orders for a couple of weeks. I am still discovering what is safe and what is not for me.

I can tell you that dried fruit purchased from a bulk food store is NOT safe! I ate some 2 days ago and had a huge reaction. Everything else I ate that day was safe so it had to have been that. Like many of you, I have also read that dried fruit is dusted with wheat flour to prevent clumping (as are potato chips). I also have been warned about cross-contamination in bulk food stores where scoops from one bin may be used in another.

I guess it all just comes down to maintaining your vigilance. To vary a well-known dieting phrase: "A moment on the lips, a lifetime of DH?" SO not worth it!!!

Karen

Nancym Enthusiast
Nancym
Posted

I have got to question the logic of this. Wheat flour, in particular gluten, is EXTREMELY sticky stuff if it comes into contact with water or moisture. And even "dried fruit" is pretty moist. Using it to prevent sticking would be like using glue to prevent sticking. I'd suspect they'd use some sort of starch like corn starch to prevent sticking, like you'd use to prevent chaffing. Wheat flour just wouldn't work.

  • 2 weeks later...
Lola B Rookie
Lola B
Posted

Hello All - I'm relatively new to this whole gluten free life style, so I'm hoping that someone can help me out with some advice.

I'm wondering about soy - specifically soybean oil found in peanut butter. Is this safe to consume? My daughter has DH and lately it's been flaring up alot and I'm wondering if I'm inadvertantly glutening her by giving her peanut butter on a rice cake for lunch. Any advice would be welcome - thanks!

Mango04 Enthusiast
Mango04
Posted

I've heard of canola presenting some sort of cross reactivity issue, but I think that's a pretty outdated belief. Millet and buckwheat are fine (buckwheat isn't even a grain), unless of course you react to them for another reason. I honestly am starting to think this whole gluten-free thing is made to sound a whole heck of a lot more complicated than it really has to be. :)

hathor Contributor
hathor
Posted
  • Author

B)-->

QUOTE(Lola B @ May 17 2007, 11:47 AM) <{POST_SNAPBACK}>
Hello All - I'm relatively new to this whole gluten free life style, so I'm hoping that someone can help me out with some advice.

I'm wondering about soy - specifically soybean oil found in peanut butter. Is this safe to consume? My daughter has DH and lately it's been flaring up alot and I'm wondering if I'm inadvertantly glutening her by giving her peanut butter on a rice cake for lunch. Any advice would be welcome - thanks!

I don't know about soybean oil, peanut butter or rice cakes being particularly susceptible to cross-contamination with gluten. It is possible that your daughter reacts to soy, however. Skin problems are a common reaction for those who are intolerant to soy, I've read. It is how I react, I know.

SunnyDyRain Enthusiast
SunnyDyRain
Posted

I am really turning into the type of person who rather do it a little harder than have unknown chemicals in my products. So I figured I'd share my newest find!

Open Original Shared Link

It takes regular canola, olive, or anykind of oil and sprays it! no more "propellants" or "grain alchohol" and chemicals you have no idea what it is!

Pampered Chef also has one too, I love mine!

Yeah I get way too excited over kitchen gadgets!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    2. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    4. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    5. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748
    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.