Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endo Results - Duodenum With Focal Gastric Metaplasia


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

I had an endo a couple of weeks ago. After 5 years gluten-free there was no evidence of celiac so I guess I have healed nicely. However the biopsy report stated that they found Focal Gastric Metaplasia in the specimens. My doctor thinks they messed up at the lab and made a mistake and is comfortable waiting a year or so and then redoing the biopsy. He said visually everything looked fine. To my understanding the finding suggest either cancer or a precancerous condition but I don't want to jump to conclusions.

Would you want a second opinion? Do you think they can reuse the same slides or do I have to go through everything again. It was a horrible experience as the doc was in a hurry and started everything before the meds had a chance to take effect. Not something I want to repeat in a hurry unless needed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

I would totally get a second opinion or I'd be a basket case for a year.

Have the slides read by a different person/lab/technician, whatever is appropriate, and if the same results are found you can consider another biopsy (by a different doctor would be my suggestion).

Jestgar Rising Star

I just found someone's powerpoint presentation about this

FGM

It looks as if it's associated with H.pylori, focal has a low risk of progressing to anything more serious, and treating the H.pylori may have some benefit.

ravenwoodglass Mentor

Thanks for the reply and the link. Do you know how they test for H pylori, would it be likely in someone who only rarely has any signs of heartburn or reflux? I am assuming it would be prudent to ask for a test for it. The treatment is antibiotics, correct?

Jestgar Rising Star

I think it's a blood test to look for antibodies.

The treatment is (or was a couple years ago) antibiotics along with PPIs to decrease the acidity of your stomach and make the bacteria more susceptible to the antibiotics.

I read somewhere that H.pylori is really prevalent, but not everyone has symptoms from it.

Still, it's just a blood test...

ravenwoodglass Mentor

Good, I am going to call my GI Monday to find out if he tested for it. I should think he would have suggested testing but but then again this guy doesn't even know celiac can cause any symptoms other than GI. You set my mind at ease a bit. I guess I can stop labeling my treasures as to who gets what for a bit longer. :unsure: I don't know what I would do if I did have cancer, I would be afraid they would poison me with treatments or hospital food.

Jestgar Rising Star
I guess I can stop labeling my treasures as to who gets what for a bit longer. :unsure:

Put my name on your collection of gluten-free recipes! ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamabear Explorer
Thanks for the reply and the link. Do you know how they test for H pylori, would it be likely in someone who only rarely has any signs of heartburn or reflux? I am assuming it would be prudent to ask for a test for it. The treatment is antibiotics, correct?

Ravenwoodglass,

Ask for a copy of the pathology report. Most EGD biopsy specimens are stained for H Pylori as a routine. The report should state on there somewhere if it was done. Otherwise there are 2 available blood based tests..one is from a venipuncture and the other is a rapid fingerstick method similar to a strep test. Both test for antibodies to the bacteria.

ravenwoodglass Mentor
Ravenwoodglass,

Ask for a copy of the pathology report. Most EGD biopsy specimens are stained for H Pylori as a routine. The report should state on there somewhere if it was done. Otherwise there are 2 available blood based tests..one is from a venipuncture and the other is a rapid fingerstick method similar to a strep test. Both test for antibodies to the bacteria.

Thanks so much for the reply. I did get the actual report along with copies of all my labs. It does not mention any yes or no as far as the HP issue.

The microscopic finding were: 'partial gastric metaplasia with foveolar epithelium. Brunner's glands present. The segment with gastric metaplasia some of the glands show increased nuclear cytoplasmic ration and hyperchromasia. Also patchy inflammation.'

I will contact Monday and ask directly. Perhaps it is there and I missed it. Or he may not have tested for it because I haven't had any stomach pain. I have wondered if the ?discomfort? that I have been interpreting as hunger may actually be related to an ulcer. I had not felt hungry in years before my diagnosis. I have at times gone days without eating and lived off very little food for a long time. I think my brain learned how to just ignore hunger. Pain is perceived differently by different folks and I endured so much for so long that a couple occasional twinges seem pretty insignificant.

I wish the doctor and I could have spent more time discussing the findings but most of the visit was spent with me telling him the drugs didn't work and him telling me they did. He was supposed to not do the endo if there were problems with the colonoscopy but I think he thought I was out of it and wouldn't remember so he just went ahead anyway. I had nightmares for almost 3 weeks and some bruising on my jaw, arms and strained back and leg muscles. I, thank goodness, do not remember anything after they made me swallow the scope, at least not consiously.

They are doing a CT on Tuesday with water soluable (and I pray gluten-free) solution and no IV contrast so hopefully the 'tortuous' colon and the 'lump' that I have had growing for a while will no longer be a mystery after that. That was my main concern to begin with and the endo was just done IMHO to satisfy the doctors very long desire to do one on me. He brushed off IBS for years as I got sicker and sicker, insisting it was all in my head. I don't want him to just consider the biopsy report a mistake and ignore it.

mamabear Explorer

Ravenwoodglass,

I read the link provided by Jestgar and it looks like annual EGD is the best way to monitor the metaplasia. Getting the CT scan will add extra information...sometimes MRI's of the abdomen are also done . If H pylori is involved, looks like treatment lessens the chance of malignancy.

Let us know what your follow up tests show.

  • 10 years later...
Maddiecl Explorer

Hello Ravenwoodglass,

I know this is a verrry old thread but I recently got some biopsy results that also said I had Gastric Metaplasia.  Can you tell me what you are doing to monitor this condition, and what you know about it?  My doctor just told me not to worry about it, but the fact that it is considered a pre-cancerous condition is freaking me out. 

I really appreciate it.

Thanks!

cyclinglady Grand Master

@Maddiecl — Be patient!  Ravenwoodglass is still very active on the forum.  I am sure she will reply soon.  ?

Try not to worry.  I know, easier said than done!  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,861
    • Most Online (within 30 mins)
      7,748

    Priscilla Buxton
    Newest Member
    Priscilla Buxton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.