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SunnyDyRain

Good Thoughts Please...

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I am just asking for positive vibes and energy for my father, he was slightly out of it this Sunday, Monday things got worse, he fell, so my mom took him to the ER, they say it was probably minor stokes. He isn't completely aware of what is going on, but they ran lots of tests. They are keeping him in the hospital, but i'm worried about him. Yesterday he couldn't find his car in the parking lot so I had to go pick him up at work. Just now talking with him he told me to make sure I did my homework... I've been out of school for 4 years. I'm very worried and scared.

When thinking about my celiac it seems so trivial when thinking about the stuff that going on in my dad's head.


Dx 3/23/07

Gluten free 3/27/07

Intolerant:

Gluten

MSG

Allergies:

Ragweed

Honeydew

Cantalope

Nickel (jewelry)

Dx'd Lymphocytic Colitis 6/16/08

I am a bad silly-yak!

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thinking about your dad. we went threw years of that happening to my grandpa.

paula


gluten, casein and soy free

on low carb/low sugar diet

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I will keep your dad and the rest of your family in our prayers. Hope things get better. Did you come back home or are you still up there?


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

36_22_10[1].gif

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I know how worried you must be. Please know that I'll keep your dad in my thoughts and prayers :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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I will keep your Dad in my thoughts and prayers. Please let us know how he is doing.


Kim

"Life isn't about how to survive the storm

but how to dance in the rain."

Positive bloodwork 1/9/06

gluten-free since 1/12/06

Very positive dietary response

DS (12 years old)

Biopsy 7/7/06 ~ Diagnosed Celiac 7/12/2006

gluten-free since 7/15/2006

DD (almost 6)

HLA-DQ2 positive

Celiac Bloodwork negative 2 different times

Still eating gluten for now.

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I will keep your dad and the rest of your family in our prayers. Hope things get better. Did you come back home or are you still up there?

I'm still down here, my mom told me there is nothing I can do if I were to come home. He is in CMC still, they keeping him until they know for sure what It was and if it was some new meds they but him on that caused it. I was home on monday when he couldn't find his car in the parking lot at work so i had to pick him up. I will probally be coming home again this weekend, unless my mom tells me not to. I have the 4-8th off so I will be home for a long time then.

My mom said that they were expecting more news from the nurologist this morning, but haven't heard yet.


Dx 3/23/07

Gluten free 3/27/07

Intolerant:

Gluten

MSG

Allergies:

Ragweed

Honeydew

Cantalope

Nickel (jewelry)

Dx'd Lymphocytic Colitis 6/16/08

I am a bad silly-yak!

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I'll definately be thinking of you and your dad. Keep us posted on his recovery.


Jillian

Positive Blood test and Biopsy

Inflamed stomach lining

Gluten free since July 6, 2005

Tarrytown, NY

"Sometimes being a b$tch is all a woman has to hold onto." - Dolores Claiborne

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Hope your Dad gets his strength back and doctors give him treatment/meds which will keep him from having another episode.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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It's day 3 and they still have no answers on what happened. They arn't even sure that it was a stroke anymore. They ran lots and lots of tests, and the best they can say is they think that some drug he was taking interfered with another drug, and caused his blood pressure to drop and loose his balance. They arn't addressing the fact he has no memory of monday at all, or that he ever was confused. They can't even tell us what drugs interacted... he's on almost 10 prescriptions. My mom hasn't been able to talk to the nurologist, she gets there 7 in the morning, but the doc has allready come in and out.. they tell my dad stuff, and by the time she gets there, he can't remember it all. His other doctors have come by, but mostly just to check in. She dosen't think that any of them are talking to each other, so no one is really understanding all his problems. I am getting so frustrated, I keep telling my mom to go and ask to see his chart. She needs to find out what he is being tested for, make sure he is being tested for things like B12 deficency or celiac! (had to throw that in). I am about 2 hours away, I can't go see him and demand these things for him, I need to work. Just really frustrated.

On the plus side, my mom had her Dr appointment today and she has blood test script for the Celiac Panel. My mom is not too happy with it, but our doc told her "Dr Anna" (that's me) insisted that she get tested. She is having really bad leg cramps, and while she is avoiding wheat, she isn't gluten-free at all. Tuesday she ate a PBJ sandwich, and the next day she woke up with a migrane and vomiting. I told her it was the wheat, my mom said just stress over my dad.

Anyway thanks for letting me rant... I am really stressed over this!


Dx 3/23/07

Gluten free 3/27/07

Intolerant:

Gluten

MSG

Allergies:

Ragweed

Honeydew

Cantalope

Nickel (jewelry)

Dx'd Lymphocytic Colitis 6/16/08

I am a bad silly-yak!

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Sunny,

Sorry to hear your having such a time of it :( We had problems with communications when my dad was in hospital with a head injury. Pin the doctors down by phone if you have too to get information or have your mom do it. She needs to get the info directly from them instead of through your dad under the circumstances. Give the nurses what for on the lack of communication and demand to be put into touch with someone that knows what's going on and what's been tested. Sometimes you have to be really witchy to get info out of hospitals.

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Will be saying prayers for you and your family. Please keep us posted how your dad is doing.

God-Bless you during this trying time.


Feb 9, 07 - Positive gene test D2 -Celiac Disease and Positive D3 for Gluten Sensitivity-Double Whammy!

Positive blood test for antibodies for celiac

SEVERE Gluten Ataxia - trouble speaking - could not even turn my head side to side - almost bedridden

March 07 - 2 different doctors have documented my records as confirmed Celiac

Oct 07 - found a secret to feeling better - no processed foods - The healing comes from eating raw vegetables, and fruits!

Husband - tested = celiac gene+diabetes gene

3 children-

youngest - doc wont test has w/ Hashimoto Disease

middle- tested = celiac gene+lymphoma gene - dx-celiac

oldest - ignores warnings

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Hey all, my dad came home yesterday. They say they don't actually think it is a stroke, they are just going on the assumption that his BP medication was too high and this new medication they put him on interacted with some other medication he was on, and he got disoriented and dizzy. I don't like how they are saying, we can't find anything else wrong, so this is what we assume happened. But he is home and my mom says he is getting back to normal (which wasn't too great to begin with actually). Thanks everyone for letting me vent and sending your prayers and support.


Dx 3/23/07

Gluten free 3/27/07

Intolerant:

Gluten

MSG

Allergies:

Ragweed

Honeydew

Cantalope

Nickel (jewelry)

Dx'd Lymphocytic Colitis 6/16/08

I am a bad silly-yak!

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Sunny

My daughter and I will still say our night night prayer for you and your family

donna


Fecal Antigliadin IgA 21 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 13 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 12 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 0501

Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)

You can teach an old dog new tricks!!!

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