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What Immediate Symptoms Do You Have From Gluten

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I was just wondering about something I keep hearing. I have not been diagnosed as celiac - I go to the GI at the end of this month. I have been trying to cut out all gluten products, and have messed up almost everyday in small amounts. Boy am I surpised how much it bothers me even in small amounts.

Okay, Okay, My question - I keep hearing from others that many celiacs can tell immediately if there is gluten in something they are eating. How is this possible? Does this happen to anyone? If so what are your symptoms.

When I had more gluten in my diet, my face was flushed and tingling and it would start tingling within 15 minutes of eating something with gluten. Now that I have cut back it isn't doing that anymore and my face is much clearer - Thank you Jesus! The other thing is that my throat would get sore. Well, my throat is always sore anymore - I guess I'm thinking maybe I just have a bug right now causing a sore throat. Other than that, all of my symptoms happen a little later (30 minutes to 3 hours later) - brain fog, diareah, stomach bloating, cramping, etc.

So again what are your immediate gluten responses?

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I don't know if you would call it "immediate" but within 20 minutes, I have dizziness, a slight headache, and bowel sounds (rumble in my abdomen). Usually followed by diarrhea within 5 mintues of that, and a THROBBING headache within 5 minutes. I then get some muscle cramps, usually in my legs. That is all general. There are more specific series' of events for certian foods (ie: cross contamination, just those symptoms, and some mild depression for 2 days following, but when I tried a Gluten challenge, the depression was terrible, and I had sucidal thoughts. The more gluten, the more severe the depression, for me, and the longer it lasts.)

Just my experiences.

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My reactions weren't immediate to start with. It used to take about two hours to know that I had ingested something I shouldn't have.

But after a year and a half of being gluten free, I think my reaction time has moved to almost immediately, well withing 10 minutes, after I have eaten a meal containing gluten. It starts off with my stomach doing sumersaults and then a general ache and bloated feeling. Then for the following week I feel a bit delicate and my stomach feels a bit out of sorts. My reactions are changing, but I still get the blues with gluten, probably worse now. It is the blues that puts me off gluten the most, and not so much the sore stomach. I can handle that, but I can't handle the depression.

It is always hard for me to tell whether it is gluten or not. I presume it is. I don't deliberately eat gluten, and often it is hard to tell what the offending food was, apart from the fact it was something I'd eaten in the last meal. I presume it is gluten but I can never prove exactly what it was.

Cathy

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I believe the symptoms are very individual For example in my family My daughter gets very ill within about 20 min. She vomits and has diarreah as if she has had food poisoning. She also is bent over in pain. People who are not familiar with this want to drive her to the ER. Myself I have cramping and diarreah also within about 20 min, but not as severe as she has. I have a nephew who just gets headaches, another nephew who acts hyper from gluten. Long term reactions. My father lost weight. I gained weight (bloating) and had severe joint pain along with fatigue. My daughter didn't really gain or lose weight but had trouble focusing and severe abdominal cramps, vomiting, and diarreah. My daughter and I never tested positive through blood tests. She has a gene for gluten sensitivity. I have had no official positive testing but felt immediate improvement through gluten free diet. My father was diagnosed with celiac through biopsy as well as my two nephews.

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I did find myself even more sensitive from gluten after I went gluten free. For some reason my left eye gets kind of watery if I ingest gluten almost immediately. My other reactions take longer. The worse is the feeling of body feeling really hot and tingly. I am trying to recover of a week of eating here and there. I was trying to be so careful, but I'm sure CC got me bigtime. I had to go to a graduation party yesterday. I only ate strawberries, watermelon and grapes.

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I get headaches, and my eyes ache. They almost feel like they are swollen too big for their sockets, though I'm sure that's not the case. That's within 20 minutes of eating. My stomach will be rumbling soon after, and I'll need to use the restroom quickly.

Sometimes, I think in CC situations, I get the headaches and the eyes, but no real immediate stomach issues. When I accidently ate a gluten-filled sauce a few months ago, I was puking within 1/2 hour.

Even a small amount seems to take a day or two to get over. I need to stop eating out, as I seem to be getting glutened every couple weeks.

Geoff

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I haven't actually eaten any gluten on purpose, but I'm pretty sensitive and react to cross contamination.

It takes about 2-3 hours for me to begin to feel the effects. My stomach will begin to rumble, and I will be in the bathroom soon thereafter. This will go on for a day or two.

About the time my stomach is settling down, the anxiety, clumsiness, moodiness, brain fog and general fatigue set in, along with reflux. It takes at least a couple weeks for this to abate.

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Guest micah

I'm still learning, but I think my immediate reaction is severe brain fog and dizziness. Later I get C, and headaches. I walk around feeling like heavy lead is going through my veins, and my brain feels heavy for the rest of the day at least.

Micah

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Within a few minutes if I have injested enough I will have the room jerk suddenly, it feels like I am falling but I am not. My tummy will start to rumble also in the first hour or so. Within 24 hours I will usually have stomach and back pain, a migraine and deep depression. This will lift by day 3 when the D hits full force. I then have about 2 more weeks of being off balance and tired.

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I usually break out within 10 minutes. Small blisters and rash on my hands that move up the arms.

Within a half hour I get cramps and become lethargic. In my case it's always been accidental over the past 1.5 years. I try to track down the problem so as not to repeat it. The last csae a week ago from which i'm still recovering was from a 1/4 cup of milk in a recipe. The dairy here in Hawaii started adding wheat to some of their milk!.

Ken

I was just wondering about something I keep hearing. I have not been diagnosed as celiac - I go to the GI at the end of this month. I have been trying to cut out all gluten products, and have messed up almost everyday in small amounts. Boy am I surpised how much it bothers me even in small amounts.

Okay, Okay, My question - I keep hearing from others that many celiacs can tell immediately if there is gluten in something they are eating. How is this possible? Does this happen to anyone? If so what are your symptoms.

When I had more gluten in my diet, my face was flushed and tingling and it would start tingling within 15 minutes of eating something with gluten. Now that I have cut back it isn't doing that anymore and my face is much clearer - Thank you Jesus! The other thing is that my throat would get sore. Well, my throat is always sore anymore - I guess I'm thinking maybe I just have a bug right now causing a sore throat. Other than that, all of my symptoms happen a little later (30 minutes to 3 hours later) - brain fog, diareah, stomach bloating, cramping, etc.

So again what are your immediate gluten responses?

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My reactions are severe. Yesterday, I had lunch and 15 minutes later my stomach started to hurt. 30 min later I was throwing up and my stomach hurt so bad I wanted to die. By an hour I was still throwing up and had D. Stomach hurts so bad that I want to go to the ER, although for what??? nothing they can do. I am still in pain, not throwing up, but still have D. I have no idea what I ate, It seems that every week, month there is something else that makes me sick. I can no longer eat eggs, fresh fruit/veggies. It seems that eventually I won't be able to eat at all. I find that most gluten free foods ordered have a lot of eggs, dairy, etc in them. Anyways, typically it takes a good week to stop feeling pain, tired, depression, irritability, etc. Frustration is always there. My GI basically gave up and said there is nothing more they can do for me. Any ideas.

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Within 30 minutes, my belly will swell up, and I will appear pregnant even though I am in my 50's.   I will also have moderate pain in my feet, but more so in the right foot.   These are the two immediate things that stick out to me.  Since I am new to the gluten-free lifestyle, everyday, I mess up and eat something wrong!  It's highly frustrating. Later on, other lovely symptoms kick in, such as anxiety, migraines, restless leg syndrome, the list goes on and on.  When I first found out I was Gluten intolerant, I could eat a cheat and I wouldn't know until the next day. now it's about under 30 min. 

Edited by Gma of 3

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51 minutes ago, Gma of 3 said:

Within 30 minutes, my belly will swell up, and I will appear pregnant even though I am in my 50's.   I will also have moderate pain in my feet, but more so in the right foot.   These are the two immediate things that stick out to me.  Since I am new to the gluten-free lifestyle, everyday, I mess up and eat something wrong!  It's highly frustrating. Later on, other lovely symptoms kick in, such as anxiety, migraines, restless leg syndrome, the list goes on and on.  When I first found out I was Gluten intolerant, I could eat a cheat and I wouldn't know until the next day. now it's about under 30 min. 

Hi and welcome :)

You've posted on quite an old thread so most of the users above may no longer be active.

You mention you're new to being gluten-free. Have you had any testing for celiac? That may be something you want to consider before you go fully gluten free?

Either way this is a good site for info and support. Hope you enjoy your time here!

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Hi Gma,

I bloat/swell/inflame with the characteristic pregnancy like look too within 30-45 minutes of exposure as well.

It as if once it hits my small intestine I feel a huge painful wham of a 2 x 4 with a bunch of fine needles slam down on the first part of my small intestine, I bloat, get shortness of breath, eyes water, I get tired, and my upper and lower back begins to hurt.

as you describe as the hours go on the dominos fall. Joint pain, migraines, my large intestine tries to expel the evil gluten and then my nerves just shut down my gi tract comes to a halt. then a day or 2 later my mood , my brain fog and my left upper arm and big toes go numb. Scary stuff until I found out it wasn't IBS as I was told 20 years ago.

my body reacts worse to smaller amounts since I went gluten-free. I am still s l o w l y healing from my 2016 gluten challenge since I went gluten-free prior to diagnosis. Not ideal but heck I was missed for longer than I ever want to admit.

you said you could cheat in the past likely now the body once gluten-free will remind you there  is no cheat and even cc is dealt with extremely

i hope you haven't had too bad a time lately

as jmg said if you post your question or comment as a new topic you'll get more traffic.

welcome and you found the right place.

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Thanks JMG, I just posted a question about Celiac testing.  I had hoped to get tested next week for the blood tests, have an appointment Monday.  Thanks for the heads up about the thread being older.  I'm just so excited and happy that I am learning more about what's wrong with me and all the support of course. Thank you! 

 

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2 hours ago, Awol cast iron stomach said:

Hi Gma,

I bloat/swell/inflame with the characteristic pregnancy like look too within 30-45 minutes of exposure as well.

It as if once it hits my small intestine I feel a huge painful wham of a 2 x 4 with a bunch of fine needles slam down on the first part of my small intestine, I bloat, get shortness of breath, eyes water, I get tired, and my upper and lower back begins to hurt.

as you describe as the hours go on the dominos fall. Joint pain, migraines, my large intestine tries to expel the evil gluten and then my nerves just shut down my gi tract comes to a halt. then a day or 2 later my mood , my brain fog and my left upper arm and big toes go numb. Scary stuff until I found out it wasn't IBS as I was told 20 years ago.

my body reacts worse to smaller amounts since I went gluten-free. I am still s l o w l y healing from my 2016 gluten challenge since I went gluten-free prior to diagnosis. Not ideal but heck I was missed for longer than I ever want to admit.

you said you could cheat in the past likely now the body once gluten-free will remind you there  is no cheat and even cc is dealt with extremely

i hope you haven't had too bad a time lately

as jmg said if you post your question or comment as a new topic you'll get more traffic.

welcome and you found the right place.

Hi Awol, Wow you really go through a lot!  I can imagine you have somewhat of a relief actually finding out it's not IBS so that you could at least know...  I'm tired of being so careful thanks so very much for your welcome!!!

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1 hour ago, Gma of 3 said:

Thanks JMG, I just posted a question about Celiac testing.  I had hoped to get tested next week for the blood tests, have an appointment Monday.  Thanks for the heads up about the thread being older.  I'm just so excited and happy that I am learning more about what's wrong with me and all the support of course. Thank you! 

 

In as little as two weeks, antibodies can return to normal for some on a gluten free diet.  Learn more about a gluten challenge here:

http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/

You could attempt testing, but make sure your doctor is aware that you could get a negative on the test and if he is willing to re-run it (could be insurance restrictions, etc.) after a challenge.

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I have been gluten-free for several years.  However, there is one symptom which shows up if I ever accidently eat any gluten.  In less that 2 minutes, I become severely bloated.  If that ever happens, I immediately stop what I am eating.

 

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