Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Can You Test A 2 Year Old?


ItchyMeredith

Recommended Posts

ItchyMeredith Contributor

Okay- I have celiac. I am concerned about my son. He does not have digestive issues but then again, neither do I. He is very thin. He has eczema and food allergies. AND...I think he may have issues with his tooth enamel too!

He is the only one in our family with any food allergies. He is allergic to milk, beef, and blueberries and is generally very sensitive to all kinds of things.

I don't know what to do. We did the blood panel and it came back negative but he hadn't had much gluten the month prior to the test. He is also only 2 and I heard that the blood panel is very inaccurate for kids under 5. What would you do?

Thanks

Meredith


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nic Collaborator

Hi, I guess you have a couple of options. You can make him gluten heavy for a while (I am not sure how long) and then test again. Or, you can try the gluten free diet and see if he reacts positively. Being you are a Celiac there is a good chance he is carrying the gene as well so it could be likely that he is Celiac also. At 2 he is still young enough that he won't miss the gluten if you take it away now.

dadoffiveboys Rookie
Okay- I have celiac. I am concerned about my son. He does not have digestive issues but then again, neither do I. He is very thin. He has eczema and food allergies. AND...I think he may have issues with his tooth enamel too!

He is the only one in our family with any food allergies. He is allergic to milk, beef, and blueberries and is generally very sensitive to all kinds of things.

I don't know what to do. We did the blood panel and it came back negative but he hadn't had much gluten the month prior to the test. He is also only 2 and I heard that the blood panel is very inaccurate for kids under 5. What would you do?

Thanks

Meredith

I had my 3 year old tested and was negative yet he was already at the 'failure to thrive' point and not eating much. My 1 year old was experiencing several symptoms above - eczema to the point of bleeding :(... and I found the gluten-free diet is a MUCH MUCH better idea.... if the symptoms 'go away'.. which they did COMPLETELY with both my 3 year old and 1 year old.. then you know that is what it is!!

I do not however have the additional complications of milk/beef/blueberry allergies. Blueberry you can deal with .. milk is tougher. It is possible too that he is not allergic to gluten and the gene 'crossed' or mutate - who knows! It never hurts to try the diet though - but I HIGHLY do not recommend heavily glutening him. We did that with my 3 year old and he converted to a liquid only diet of pediatric gluten free drinks!!! (Never going to listen to a doctor about that again!)

celiac-mommy Collaborator
Okay- I have celiac. I am concerned about my son. He does not have digestive issues but then again, neither do I. He is very thin. He has eczema and food allergies. AND...I think he may have issues with his tooth enamel too!

He is the only one in our family with any food allergies. He is allergic to milk, beef, and blueberries and is generally very sensitive to all kinds of things.

I don't know what to do. We did the blood panel and it came back negative but he hadn't had much gluten the month prior to the test. He is also only 2 and I heard that the blood panel is very inaccurate for kids under 5. What would you do?

Thanks

Meredith

Our daughter was 4 when she was tested, our son had just been born (I think it was her 'trigger'). Our ped's GI wanted to wait until he was 2--which was last week. I dreaded taking him in to have the blood draw, but our lab is SOOO great and although he cried and wouldn't look at me for 2 hours (he also had his HepA shot), he did great and the test came back negative yesterday! He also has eczema, is very thin and has chronic diaper rashes. It's worth the 5 minutes of seeing them in pain for the test results. I realize I will probably have to retest him at a later date, but we're good for now.

heather larson Newbie

My son is 2-1/2 years old and going through the process of being tested for Celiac. Th blood test came back negative and our first appointment with the Pediatric GI is on the 22nd - at this appointment I fully intend to schedule the 2nd test or the intestinal scrapping test.

Once the blood results came in we changed to a wheat/gluten free diet. The doctors have told us that 1) the blood test is inconclusive and even with a positive result they usually go ahead with the 2nd test, 2) as long as you have the 2nd test done in 6 months or less changing the childs diet should have no effect on the results, and 3) i can't imagine not finding out for sure this is Celiac. Their are a lot of other medical issues a person could have that exhibit the same symptoms as Celiac, some decidedly worse and yet others can even be reversible/corrected. It is proven that wheat is very difficult for the body to digest and can exacerbate other problems in the digestive trac. My thought is why stop the process once you've begun than you can difinitively treat the problem insteading of possibly masking it. This is the path we are on. Good Luck. :)

par18 Apprentice
My son is 2-1/2 years old and going through the process of being tested for Celiac. Th blood test came back negative and our first appointment with the Pediatric GI is on the 22nd - at this appointment I fully intend to schedule the 2nd test or the intestinal scrapping test.

Once the blood results came in we changed to a wheat/gluten free diet. The doctors have told us that 1) the blood test is inconclusive and even with a positive result they usually go ahead with the 2nd test, 2) as long as you have the 2nd test done in 6 months or less changing the childs diet should have no effect on the results, and 3) i can't imagine not finding out for sure this is Celiac. Their are a lot of other medical issues a person could have that exhibit the same symptoms as Celiac, some decidedly worse and yet others can even be reversible/corrected. It is proven that wheat is very difficult for the body to digest and can exacerbate other problems in the digestive trac. My thought is why stop the process once you've begun than you can difinitively treat the problem insteading of possibly masking it. This is the path we are on. Good Luck. :)

Heather,

I take it from your post you are going gluten-free on your 2 1/2 old in order to see if you can eliminate some or all of his symptoms. If this is true then that would seem a more systematic (if not logical) approach. Because Celiac can present so many symptoms there is a good possibility that you can identify/correct more than one with a simple gluten-free diet trial. If you notice improvement in some or all areas of symptoms then you can definitely make a connection between "those" symptoms and gluten. At that point further testing for Celiac, etc. is still an option. If not all of his issues are corrected with the diet then other testing can resume on those unresolved issues. I think the presence of gluten in someone who has issues with it can definitely "mask" those other issues. It is only when we start to eliminate certain issues through treatment (medicine,diet etc.) and see what is left can we realize some level of progress. I have always felt that "no" response to the gluten-free diet is just as vaild an indication that Celiac/gluten intolerance is not the problem as a postive response that it is. One thing at a time in testing/treatment has always been my favored approach. Good luck.

Tom

gfgypsyqueen Enthusiast

I have to say we tried the blood tests and then the biopsy. After that my 2 yr old became Dairy free then she had a reaction to shellfish. Big argument with the Gastro abou the fact I put her on gluten-free diet. well almost 6 mths later and the dairy free diet only helped so much. She has been gluten-free now for almost 3 weeks and already seems to be doing better. Of course she just got into something two day ago and the diarrhea and itchy rach are back! I think we have another silly in the family :rolleyes:

So, in my opinion, try the diet. You'll see some small changes pretty quickly.

Best of luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mother2gf3 Newbie

hi. well I have a 2,4 and 6 year old w/ celiac . My 2 year old just had her biopsy last week, which confirmed celiac. A month ago she had her blood tests that showed positive for celiac. My childrens GI dr did tell me prior to the blood work that they usually test children at 3 or older unless lots of symptoms are there, because before 3 they are more likely to get a false negative. My child was having so many symptoms we tested her early.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.