Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Informal Poll

L.A.

By L.A.
in Coping with Celiac Disease

Recommended Posts

L.A. Contributor
L.A.
Posted

Hi Everyone: I really miss oatmeal...and was wondering who eats oats and who doesn't. Too many conflicting reports on whether oats are safe and I'm afraid to try them for fear of getting sick. Would love your input. Just leaving work now, but will check back in the morning. Thanks, L.A.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Luisa2552 Apprentice
Luisa2552
Posted

I'm still healing and afraid to try them. I'm going to look into the guaranteed gluten-free ones.

burdee Enthusiast
burdee
Posted

There are several varieties of certified gluten free oats (grown in oats only fields, processed in oats only factories and verified gluten free). I tried and like "Gifts of Nature" and "Gluten Free Oats". I'm VERY sensitive to gluten (react with painful cramps and bloating). I did not react to either of those.

BURDEE

sickchick Community Regular
sickchick
Posted

I eat oats. Oat flour. :)

MaryJones2 Enthusiast
MaryJones2
Posted

I've tried several brands of gluten free oats and can say that oats cause the worst reaction of all the glutens for me.

happygirl Collaborator
happygirl
Posted

I have successfully eaten certified gluten free oats.

NWLAX36Mom Rookie
NWLAX36Mom
Posted
I've tried several brands of gluten free oats and can say that oats cause the worst reaction of all the glutens for me.

Does that mean that gluten free oats do cause the worst reaction or all or regular oats?

I miss oats more than anything but I'm still too afraid to try even the gluten free ones yet. If I test well once I have follow-up medical tests, I am planning to try them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rsm Newbie
rsm
Posted

I have purchased some guaranteed gluten free oats but have been too afraid to try them. I love oatmeal, but raw oats have always been a problem for me. When I get the courage up I'll try them. They are very expensive! The brand I have is also Gifts of nature.

mamaw Community Regular
mamaw
Posted

I have been gluten-free for over 4 years now , I started eating oats when they first became available.If you are new to the diet & not recovered yet I would say don't eat them until you have been gluten-free totally for over two years. If you are one of the very sensitives ones , I would say DO NOT eat them.

Everyone is different so you might just have to take a chance but I would not eat the non gluten-free oats ever.

I eat only a 1/2 cup serving to this date. I think again this can be a product that many will eat & eat until it causes a reaction so go very slowly starting out maybe once a week.....I never thought I would say I miss Oats but I did...

I love the Lara's oats the best but I'm using the gluten-free oats from Powell, Wy as shipping was cheaper at the time. Now Lara's can be found in the US fairly easy.....

mamaw

melrobsings Contributor
melrobsings
Posted

I'm crazy allergic to them. If you touch them and then touch me I'm in hives! but I LOVE LOVE LOVE THEM!!! i think it got worse cause as a child I could somewhat tolerate them and would eat them all the time....I just kept getting worse and worse and worse...now I can't even touch them...

Yellow Rose Explorer
Yellow Rose
Posted

The problem with oats is not gluten as oats don't have gluten it is the contamination of oats. There are only a few factories that process oats in the US but these places also process other grains like wheat. So if you can find a place that grows oats without growing other gluten grains in the same field and then find a place that processes without processing other grains you will be ok to eat oats.

Yellow Rose

Luisa2552 Apprentice
Luisa2552
Posted
I've tried several brands of gluten free oats and can say that oats cause the worst reaction of all the glutens for me.

I'm confused. Oats don't have gluten. Do you think the gluten-free oats are contaminated or do you have an allergy or intolerance to oats?

confusedks Enthusiast
confusedks
Posted

I just wanted to make a suggestion, have you tried quinoa flakes? I know they're not the same thing, but they are a similar idea to oats. I have them in the morning with banana, brown sugar and cinnamon. I don't eat oats. I get too worried about CC in my own home, I couldn't imagine glutening myself! EEK.

Kassandra

sickchick Community Regular
sickchick
Posted

Something I have tried recently (that has a similar texture to cream of wheat) is Polenta. If you are just craving something warm and hearty and sweet, I made mine with milk, honey and sliced bananas!

They were yuuuuuuuum :)

Ursa Major Collaborator
Ursa Major
Posted

Somehow oats don't agree with me. The protein in oats is very similar to gluten, and some people aren't just having a reaction because of contamination, but rather because they are intolerant to the protein in oats as well.

ENF Enthusiast
ENF
Posted

I'm OK with Lara's Creamhill oats for the most part, but they do cause a major cleaning out of my digestive system. The reaction isn't exactly the same as when I had problematic celiac digestive symptoms before going gluten-free - but makes me wonder if it's only because of the fiber in oats, which is one reason some people eat them, or if something else is going on, since I do not have a problem with C whether I eat oats or not.

darlindeb25 Collaborator
darlindeb25
Posted
The problem with oats is not gluten as oats don't have gluten it is the contamination of oats
The problem is, that all grains do have their own type of gluten, it's not necessarily called gluten as in wheat, rye, and barley--which, if I recall, isn't really technically called gluten anyways. Some of us just tend to react to all grains and when the monies are there and and full force research gets going on celiac disease, I think they will find there are different varients of gluten. Just like now, there are gluten sensitive, gluten intolerant, and celiacs--these levels will become much closer defined in time.

I think it will someday be proven that there are definitely celiacs who absolutely can not have oats either and I know I am one. I reacted to oats in foods long before we knew anything about gluten. Long before we knew anything about celiac disease, I reacted to meatloaf, which my mom added oatmeal, oatmeal cookies, apple crisp--anything with oatmeal bothered me. Now, I will not try oatmeal, I still react to oatmeal in lotions and such, so I am positive I can't eat it anyways, I can't eat any other grains anyhow. It's just not worth upsetting the balance. :(

L.A. Contributor
L.A.
Posted
  • Author

Thanks for the input--think I will stick with my Cream of Rice cereal. You guys are great! L.A. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.