Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Informal Poll


L.A.

Recommended Posts

L.A. Contributor

Hi Everyone: I really miss oatmeal...and was wondering who eats oats and who doesn't. Too many conflicting reports on whether oats are safe and I'm afraid to try them for fear of getting sick. Would love your input. Just leaving work now, but will check back in the morning. Thanks, L.A.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Luisa2552 Apprentice

I'm still healing and afraid to try them. I'm going to look into the guaranteed gluten-free ones.

burdee Enthusiast

There are several varieties of certified gluten free oats (grown in oats only fields, processed in oats only factories and verified gluten free). I tried and like "Gifts of Nature" and "Gluten Free Oats". I'm VERY sensitive to gluten (react with painful cramps and bloating). I did not react to either of those.

BURDEE

sickchick Community Regular

I eat oats. Oat flour. :)

MaryJones2 Enthusiast

I've tried several brands of gluten free oats and can say that oats cause the worst reaction of all the glutens for me.

happygirl Collaborator

I have successfully eaten certified gluten free oats.

NWLAX36Mom Rookie
I've tried several brands of gluten free oats and can say that oats cause the worst reaction of all the glutens for me.

Does that mean that gluten free oats do cause the worst reaction or all or regular oats?

I miss oats more than anything but I'm still too afraid to try even the gluten free ones yet. If I test well once I have follow-up medical tests, I am planning to try them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rsm Newbie

I have purchased some guaranteed gluten free oats but have been too afraid to try them. I love oatmeal, but raw oats have always been a problem for me. When I get the courage up I'll try them. They are very expensive! The brand I have is also Gifts of nature.

mamaw Community Regular

I have been gluten-free for over 4 years now , I started eating oats when they first became available.If you are new to the diet & not recovered yet I would say don't eat them until you have been gluten-free totally for over two years. If you are one of the very sensitives ones , I would say DO NOT eat them.

Everyone is different so you might just have to take a chance but I would not eat the non gluten-free oats ever.

I eat only a 1/2 cup serving to this date. I think again this can be a product that many will eat & eat until it causes a reaction so go very slowly starting out maybe once a week.....I never thought I would say I miss Oats but I did...

I love the Lara's oats the best but I'm using the gluten-free oats from Powell, Wy as shipping was cheaper at the time. Now Lara's can be found in the US fairly easy.....

mamaw

melrobsings Contributor

I'm crazy allergic to them. If you touch them and then touch me I'm in hives! but I LOVE LOVE LOVE THEM!!! i think it got worse cause as a child I could somewhat tolerate them and would eat them all the time....I just kept getting worse and worse and worse...now I can't even touch them...

Yellow Rose Explorer

The problem with oats is not gluten as oats don't have gluten it is the contamination of oats. There are only a few factories that process oats in the US but these places also process other grains like wheat. So if you can find a place that grows oats without growing other gluten grains in the same field and then find a place that processes without processing other grains you will be ok to eat oats.

Yellow Rose

Luisa2552 Apprentice
I've tried several brands of gluten free oats and can say that oats cause the worst reaction of all the glutens for me.

I'm confused. Oats don't have gluten. Do you think the gluten-free oats are contaminated or do you have an allergy or intolerance to oats?

confusedks Enthusiast

I just wanted to make a suggestion, have you tried quinoa flakes? I know they're not the same thing, but they are a similar idea to oats. I have them in the morning with banana, brown sugar and cinnamon. I don't eat oats. I get too worried about CC in my own home, I couldn't imagine glutening myself! EEK.

Kassandra

sickchick Community Regular

Something I have tried recently (that has a similar texture to cream of wheat) is Polenta. If you are just craving something warm and hearty and sweet, I made mine with milk, honey and sliced bananas!

They were yuuuuuuuum :)

Ursa Major Collaborator

Somehow oats don't agree with me. The protein in oats is very similar to gluten, and some people aren't just having a reaction because of contamination, but rather because they are intolerant to the protein in oats as well.

ENF Enthusiast

I'm OK with Lara's Creamhill oats for the most part, but they do cause a major cleaning out of my digestive system. The reaction isn't exactly the same as when I had problematic celiac digestive symptoms before going gluten-free - but makes me wonder if it's only because of the fiber in oats, which is one reason some people eat them, or if something else is going on, since I do not have a problem with C whether I eat oats or not.

darlindeb25 Collaborator
The problem with oats is not gluten as oats don't have gluten it is the contamination of oats
The problem is, that all grains do have their own type of gluten, it's not necessarily called gluten as in wheat, rye, and barley--which, if I recall, isn't really technically called gluten anyways. Some of us just tend to react to all grains and when the monies are there and and full force research gets going on celiac disease, I think they will find there are different varients of gluten. Just like now, there are gluten sensitive, gluten intolerant, and celiacs--these levels will become much closer defined in time.

I think it will someday be proven that there are definitely celiacs who absolutely can not have oats either and I know I am one. I reacted to oats in foods long before we knew anything about gluten. Long before we knew anything about celiac disease, I reacted to meatloaf, which my mom added oatmeal, oatmeal cookies, apple crisp--anything with oatmeal bothered me. Now, I will not try oatmeal, I still react to oatmeal in lotions and such, so I am positive I can't eat it anyways, I can't eat any other grains anyhow. It's just not worth upsetting the balance. :(

L.A. Contributor

Thanks for the input--think I will stick with my Cream of Rice cereal. You guys are great! L.A. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    2. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    3. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    4. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    5. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.