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writerspice

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writerspice Newbie

Hi everyone - I have found my way to this forum, with lots of questions (and more and more as time goes by!) So I thought I would start by introducing myself...

I came to the realization that I have a gluten problem after trying to get pregnant for four years with no luck and no explanation other than a thyroid problem (but meds created other problems). My naturopath finally suggested that I go off gluten "just to see" and I was amazed. After suffering from chronic constipation, exhaustion, stomach pains, headaches and the like for the past, um, life, it was incredible to suddenly feel so great.... That was nice, but, like many here, I am not feeling so hot these days, since the first few weeks.

So, I have a few questions.

First, I'm wondering about chili powder and curry powder. Are there some safe versions? I haven't given much thought to these sort-of secondary things like spices, shampoos, make-up, and tea. Can those all present problems? I'm a regular black tea drinker - can it possibly have gluten in it??!

I'm also wondering about nutritional support - if I should be taking something to help heal my intestines. I am eating well (but probably not getting enough exercise) and am still having problems with constipation (this came back, after everything being okay for awhile)....

Also wondering if there are some good news stories about anyone struggling with infertility who went off gluten and ended up getting pregnant.

Thanks so much. This has been so overwhelming. Even tonight, I think I ate okay but am getting these weird tight pains in my abdomen that are new to me. At least I don't feel like I'm going to throw up, though. that's an improvement.

Thanks :)


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cyberprof Enthusiast
Hi everyone - I have found my way to this forum, with lots of questions (and more and more as time goes by!) So I thought I would start by introducing myself...

I came to the realization that I have a gluten problem after trying to get pregnant for four years with no luck and no explanation other than a thyroid problem (but meds created other problems). My naturopath finally suggested that I go off gluten "just to see" and I was amazed. After suffering from chronic constipation, exhaustion, stomach pains, headaches and the like for the past, um, life, it was incredible to suddenly feel so great.... That was nice, but, like many here, I am not feeling so hot these days, since the first few weeks.

So, I have a few questions.

First, I'm wondering about chili powder and curry powder. Are there some safe versions? I haven't given much thought to these sort-of secondary things like spices, shampoos, make-up, and tea. Can those all present problems? I'm a regular black tea drinker - can it possibly have gluten in it??!

I'm also wondering about nutritional support - if I should be taking something to help heal my intestines. I am eating well (but probably not getting enough exercise) and am still having problems with constipation (this came back, after everything being okay for awhile)....

Also wondering if there are some good news stories about anyone struggling with infertility who went off gluten and ended up getting pregnant.

Thanks so much. This has been so overwhelming. Even tonight, I think I ate okay but am getting these weird tight pains in my abdomen that are new to me. At least I don't feel like I'm going to throw up, though. that's an improvement.

Thanks :)

Hi Writerspice, welcome!

It does, sometimes, get worse after going gluten free before getting better. Hang in there. I also got stomach cramps/weird pains after going gluten free but they are mostly gone now.

McCormicks' spices are always gluten free (or they will say that they are not gluten-free on the label). I use their chili powder and curry powder all the time. I also drink Lipton's black tea and green tea and they are both gluten free. Some teas do have gluten (there was a recent thread about Tzao teas on the "Products" forum of this site) and flavored teas especially can be suspect. So check out your brand/flavor by calling the manufacturer or looking on their website.

I can't remember where I read about pregnancy success w/previous infertility after going gluten-free...maybe search this forum under the "pregnancy" topic. I read that some infertility specialists test all patients and that in Europe it is common to test infertile couples. Good luck to you!

~Laura

writerspice Newbie

Thanks so much, Laura. I appreciate the reply. Will try the spices you recommended, if I can get them up here in Canada. I looked at the ingredients on my fave tea (black tea) and there was nothing listed but tea. Does that mean there's no gluten in it or is it sometimes not mentioned or does this depend on the labelling laws (like I said, I'm in Canada, so maybe it's different if you're in the U.S...) Anyway, any thoughts you have would help... Thanks again :)

kevsmom Contributor

Welcome, Writerspice! Please feel free to ask any questions that you have. Someone here is bound to have the answer. If they don't - they will find out for you.

When you first go gluten-free, you will find so much information - don't let it overwhelm you. You can only absorb so much at one time. Don't worry - after a while it will seem like second nature.

Cindy

writerspice Newbie

Thanks, Cindy. The questions just keep coming...

Daughter-of-TheLight Apprentice

Welcome! Ah... about the supplements.

I don't really know a lot, but I do know this. Because our intestines are not absorbing nutrients properly, we sometimes need to take supplements. I take Iron, Calcium, and some Teen Girls multivitamin. I suggest you research the topic and get some input from your doctor on which nutrients are deficient. I was anemic... though since i'm "growing" (HA!) I need to take calcium to prevent calcium deficency... but I have no idea what your needs are, so I can't suggest anything.

Light

gdobson Explorer

Hi Writerspice and welcome.

I had 2 miscarriages before going gluten free, but I managed to have 2 wonderful children - although both premature and one is celiac.

I have heard of many other women who had difficulties getting pregnant before going gluten-free, and then were able to conceive after.

I wish you a lot of luck, happiness, and health.

Gina


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mftnchn Explorer

Welcome writerspice. I have also had some signs of improvement, then got worse. For me it has been a number of things.

Stopping use of gluten containing personal products helped. Starting l-glutamine to help with the gut healing has helped.

Are you also milk-free? If you are celiac, many many cannot tolerate milk, at least early on in the healing process.

I had to go both milk and soy free. I figured out the latter by doing an elimination diet. Soy can also cause damage to the villi of the intestine, according to research.

Also my lyme disease recurred after doing Gluten-free Casein-free, so I am having to treat that again which complicates the healing process.

Re the constipation, for me it has been an intestinal motility issue...where the gluten and perhaps other things, just shuts things down. The weird tight pains for me I think are a sign of the intestines "waking up" and starting to work. After 6 months, I have some amount of daily stool with the help of a morning and evening dose of buffered vitamin C powder that also has magnesium in it. I now take half of the dose of that I was taking in the early summer. I also now have diarrhea much more often than I used to. I was bloated before but rarely uncomfortable, I am now more aware of the discomfort. My sense is that this is simply a gradual healing process and I need to be patient.

One other thing, have you done any other treatment for parasites?

kevsmom Contributor

Writerspice,

When I first went gluten free, I thought I was doing really well...and then I realized that my vitamins contained gluten! It even said so right on the label.

You also need to check to see if any medication that you take is gluten free. You can check this website: http:/www.glutenfreedrugs.com or write/phone the manufacturer directly.

Cindy

cyberprof Enthusiast
Thanks so much, Laura. I appreciate the reply. Will try the spices you recommended, if I can get them up here in Canada. I looked at the ingredients on my fave tea (black tea) and there was nothing listed but tea. Does that mean there's no gluten in it or is it sometimes not mentioned or does this depend on the labelling laws (like I said, I'm in Canada, so maybe it's different if you're in the U.S...) Anyway, any thoughts you have would help... Thanks again :)

Canadian products can be quite different, I hear. There are a lot of Canadians on this board, so I'd post a question on the "Products" part of this forum. I'm sure you'll get some good help on that.

~Laura

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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