Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prayer Request

blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular
blueeyedmanda
Posted

My sister Carrie, who is 21 has been dealing with some issues in her health for the past few months, for awhile it was headaches of no origin and stomach problems, which no scans and tests could ever prove or find anything. Lately, her stomach aches have been real bad and she is bleeding *in her feminine area* She is on that birth control shot where you never get a period...so we were thinking that it might be spotting or her bodys way of trying to have a period.

The other day she is in the ER with stomach cramps again, nothing found on CT scans, X-rays or ultrasounds.

Yesterday she had bloodwork done for hyplori, celiac (my request), and stools samples for Samenilla....probably spelled that wrong sorry.

For awhile she was having major "D" after eating but now it seems more "C" than anything, so maybe she has IBS and is stressed out...my mom and I think it is more....

Please keep her in your prayers, she is such a warm caring person and I hate seeing her this way. These should be her best years.

PS-she is finished with college tomorrow, she is graduating early due to great grades....her insurance runs out tomorrow....so that is another big concern.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted

I will defintely keep her in my prayers. And please keep us posted. Do you thinking maybe all the stress from grduating college would just been her trigger for celiac?

paula

jerseyangel Proficient
jerseyangel
Posted

Of course, Amanda, I'll keep your sister in my prayers. I hope it all gets figured out soon.

dandelionmom Enthusiast
dandelionmom
Posted

I just said a prayer for her. Is there a way to pay a little extra to extend her insurance coverage?

Cheri A Contributor
Cheri A
Posted

Saying a prayer for Carrie.

jennyj Collaborator
jennyj
Posted

She will be in mine.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Adding my prayers.

If I were in her shoes, I would discontinue the birth control IMMEDIATELY. Who knows what preservatives and adjuvants are in those shots in addition to hormones that your body should only be producing on its own.

Think about it--how many MEN would consent to injections of hormones? Oh, wait, that's right, the sports world already does--and look at all the steroid health risks that we hear about all the time:

* premature balding or hair loss

* dizziness

* mood swings, including anger, aggression, and depression

* seeing or hearing things that aren't there (hallucinations)

* extreme feelings of mistrust or fear (paranoia)

* problems sleeping

* nausea and vomiting

* trembling

* high blood pressure that can damage the heart or blood vessels over time

* aching joints

* greater chance of injuring muscles and tendons

* jaundice or yellowing of the skin; liver damage

* urinary problems

* shortening of final adult height

* increased risk of developing heart disease, stroke, and some types of cancer

But do we ever hear about the risks of birth-control hormones for women? Of course not--it's (again) big $$$ for the pharmaceutical industry. But compare the list of side effects of Depo-Provera:

Side Effects:

*70% of women using Depo Provera gain weight. Almost half of the women using Depo Provera gain more than 5 pounds after one year of use. Many women gain more than 10 pounds.

*Irregular, heavy, or no bleeding are common side effects of Depo Provera. After a year of use, many women stop having periods. Lack of a period becomes increasingly common with longer use.

*Other side effects of Depo Provera can include headaches, nervousness, mood changes, bloating, hot flashes, decreased interest in sex, breast tenderness, acne, hair loss, and back ache.

*After the last shot of Depo Provera, it can take over 6 months for the drug to leave the body. Side effects may linger until the drug is completely gone

The more research I do, the more I learn that if we swallow what the pharmaceutical industry feeds us (including their "medicines"), we pay a huge price...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

Oh Manda, your family has been through a lot this year, both happy and sad. I will keep your sister in my prayers and hope that they find something soon.

UR Groovy Explorer
UR Groovy
Posted

Amanda,

Also saying prayers for your sister.

I wanted to add that a few years ago when I was taking DEPO shots, my whole system went completely haywire - very irregular bleeding (of concern), huge moodswings, headaches (some migraines), I was very out of control on that stuff. All kinds of really nasty stuff happened to me. It may be the DEPO with your sister. I had to get off that stuff ASAP.

Hope she's doing better soon.

kat

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

I know she just started the BC shot. She had been having problem for some time before that. She is still pretty ill tonight and with the nasty winter weather I wont be able to get home to see her this weekend.

Green12 Enthusiast
Green12
Posted

Amanda,

I hope your sister finds some answers and gets to feeling better soon.

Green12 Enthusiast
Green12
Posted

Amanda,

I hope your sister finds some answers and gets to feeling better soon.

debmidge Rising Star
debmidge
Posted

Some health insurance advice....however I don't know if this applies to every state in US but it's worth checking out.

When a health policy is stopped or ends due to end of employment etc. your state might require that an employer offer a COBRA extension if the employer you work for is large enough and qualifies.

If coverage is thru school there might be a way to convert it to an "Individual Policy" for a premium cost of course.

Generally, in some states, if your health coverage lapsed more than 60 days, and you take out new insurance you are subject to a "pre-existing condition" rule. If you take a policy out within that 60 day window, a "pre-existing condition" rule does not apply. To verify if your state has this rule or not, you should talk to a health insurance agent in your state.

Manda, have your sister check with the school's Health Care Coverage Administrator about an extension and its cost; or call a local health insurance agent (but you have to bug them as an individual health policy doesn't make much commission and agents tend to ignore clients with lower premiums - for example, a business health policy could cost $30,000 per year and that's the phone call the agent would most likely call back immediately and not an individual whose coverage would cost only $2000 per year. Sorry to say this, but I know my own industry & how they think.)

She might want to call a Blue Cross/Blue Shield health insurance office in her state of permanent residence and get a quote from them directly.

If she's married, and her husband has coverage at work, he should add her to his work coverage immediately.

Now, having taken hormones and had bleeding as a young 20ish woman I can testify that you can get some really bad "breakthrough bleeding" on it. Estrogen does stimulate fibroids and makes them grow...and if a fibroid is located on an artery in uterus, the bleeding is more and sometimes never really stops after a menstrual period....(yeah, I had this going on too) perhaps she has these benign fibroid tumors?

ravenwoodglass Mentor
ravenwoodglass
Posted

I will pray that they get to the bottom of this quickly. Sounds like you aren't the only celiac in the family.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
I know she just started the BC shot. She had been having problem for some time before that. She is still pretty ill tonight and with the nasty winter weather I wont be able to get home to see her this weekend.

If she had problems before, her doctor should NEVER have started her on BC shots.

I think she needs a new doctor. And possibly a malpractice attorney.

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
I will pray that they get to the bottom of this quickly. Sounds like you aren't the only celiac in the family.

If she is celiac that will be interesting, my sisters were both adopted :) I have no biological siblings.

wolfie Enthusiast
wolfie
Posted

Saying a prayer for Carrie. I hope that she gets some answers and starts feeling better soon.

confused Community Regular
confused
Posted
If she is celiac that will be interesting, my sisters were both adopted :) I have no biological siblings.

its just like me and my stepson, no blood relation but are both celiac, so go figure lol.

paula

Guhlia Rising Star
Guhlia
Posted

Any updates on Carrie?

DingoGirl Enthusiast
DingoGirl
Posted

Amanda......I am late to this thread! I had no idea.....any updates?

Saying a prayer.....let us know.

hugs......

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

Still waiting on test results. I did talk to her and she is not in as much pain, no more bleeding but still not feeling well. She said when she is better she will go snow tubing with me and my Little Leah.

Little Leah is a child who was a baby in my parents foster home and she then got adopted when she was 3. We remained in close contact with her adoptive family who lives about 15 minutes away. She always said I was her best friend. She turned 8 yesterday. We are penpals now since she can read and write letters. I live 2 hrs away and don't get to see her as much now.

Judyin Philly Enthusiast
Judyin Philly
Posted

AMANDA, PRAYERS BEING SENT FOR YOU AND CARRIE

ravenwoodglass Mentor
ravenwoodglass
Posted
If she is celiac that will be interesting, my sisters were both adopted :) I have no biological siblings.

Well I have two children both biologically mine but with different biological fathers from opposite sides of the world. Both show up in blood work, I don't. They both got a celiac gene from their Dads also. This is really an extremely common genetic difference that does not follow the normal dominent - recessive pattern that other genes do. She sounds very much like she should be on the diet also, I am praying that if that is the case that she will show up in blood work. If she is not I hope they get to the bottom of her problems soon.

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

Carrie's Salmonela and Hpylori both came back negative....sorry for the misspellings.

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

Carrie went to a GI dr today, she has insurance coverage until Jan. 1st. So up until now the family dr was treating her, but said it would be a good idea to see a GI dr.

Carrie called me tonight in tears, she said the DR did not listen to her at all and just kept saying IBS IBS IBS.....well yea that could be an option but lets look at them all. She said he didnt seem to care about what she was describing. In part of the exam he did a rectal exam and she was very uncomfortable with that....I think that really upset her.

I suggested a new dr. She needs to see someone who will listen, she is young and the sooner we figure out the problem the better....

Celiac panel still pending....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease. Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease. Though having the genes for Celiac...
    2. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining...
    3. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    4. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    5. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748
    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      High TTG-IgG and Normal TTG-IgA

      By knitty kitty · Posted

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.