Can Anyone Tell Me How This Works?

[Kenpo89]

I was diagnosed with celiac in Feb. of 2007. All my relatives have been tested for it and NONE of them came back positive, yet the doctors keep telling me that the reason I have it is because someone else in my family has/had it. I am full celiac is what the docs say(I have no villie in my intestines at all) and I am still trying to get it under control.

[hathor]

I hope you are feeling better the longer you have been gluten-free. If you continue to have symptoms, you may wish to cut out dairy and soy. Both are hard to digest and the damage to your small intestine sounds extreme.

It isn't enough to have the genes. Many more have the celiac genes who don't have the disease than those who do. So there are obviously other genes involved (which haven't been identified) or there are environmental triggers of some sort.

How were your relatives tested? If by blood, they should know that there is a significant false negative rate. It can take a while for antibodies to show up in one's blood, for instance. If any have unexplained symptoms, it might be worthwhile for them to do a gluten-free trial and/or be tested by Enterolab (more sensitive testing where the antibodies show up earlier).

I take it you like Kenpo? I've been doing an exercise program (P90X) for some months now that works in Kenpo once a week. I think it is my favorite. I don't know how well I could punch, block or kick actual people, though. My coordination isn't that great. I blame all those decades of gluten Seriously, some people here have said they are more coordinated off gluten. I'm curious if you've found this to be the case ... assuming I'm right about you and Kenpo.

This is a wonderful board. You will be able to find all sorts of information and support.

[kbtoyssni]

I agree with Hathor. You probably have relatives who have the genes and the disease either hasn't been triggered yet or isn't bad enough to show up on a blood test yet.

[buffettbride]

I was diagnosed with celiac in Feb. of 2007. All my relatives have been tested for it and NONE of them came back positive, yet the doctors keep telling me that the reason I have it is because someone else in my family has/had it. I am full celiac is what the docs say(I have no villie in my intestines at all) and I am still trying to get it under control.

My daughter was diagnosed in May and NO ONE in my family or my husband's family has it.

[Ridgewalker]

I was diagnosed with celiac in Feb. of 2007. All my relatives have been tested for it and NONE of them came back positive, yet the doctors keep telling me that the reason I have it is because someone else in my family has/had it. I am full celiac is what the docs say(I have no villie in my intestines at all) and I am still trying to get it under control.

Anyone in your family have IBS? Bad teeth? Eczema of unknown cause? Migraines? Dark circles under the eyes? Constipation? Joint pain?

You can have any or all of the symptoms without showing high enough numbers on the blood test to officially call it "Celiac."

[Kenpo89]

I hope you are feeling better the longer you have been gluten-free. If you continue to have symptoms, you may wish to cut out dairy and soy. Both are hard to digest and the damage to your small intestine sounds extreme.

It isn't enough to have the genes. Many more have the celiac genes who don't have the disease than those who do. So there are obviously other genes involved (which haven't been identified) or there are environmental triggers of some sort.

How were your relatives tested? If by blood, they should know that there is a significant false negative rate. It can take a while for antibodies to show up in one's blood, for instance. If any have unexplained symptoms, it might be worthwhile for them to do a gluten-free trial and/or be tested by Enterolab (more sensitive testing where the antibodies show up earlier).

I take it you like Kenpo? I've been doing an exercise program (P90X) for some months now that works in Kenpo once a week. I think it is my favorite. I don't know how well I could punch, block or kick actual people, though. My coordination isn't that great. I blame all those decades of gluten Seriously, some people here have said they are more coordinated off gluten. I'm curious if you've found this to be the case ... assuming I'm right about you and Kenpo.

This is a wonderful board. You will be able to find all sorts of information and support.

My family was tested by blood and no one came back positive but me.

I do like kenpo. I have been studying it for about 6 years. P90X is a good program for exercise, but when it comes down to martial arts it realy doesnt teach you much.

[Kenpo89]

Anyone in your family have IBS? Bad teeth? Eczema of unknown cause? Migraines? Dark circles under the eyes? Constipation? Joint pain?

You can have any or all of the symptoms without showing high enough numbers on the blood test to officially call it "Celiac."

The people in my family who have Bad Teeth, Exzema, Migranes, Constipation, and Joint pain are the ones who have been tested by blood and have come back negative, but I know what you are saying.