Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Twitches And Spasms


Joe Hoffman

Recommended Posts

Joe Hoffman Rookie

This past week I have been experiencing twitching and minor spasms in my legs. This morning I noticed the muscle spasms increasing in both frequency and strength. One hour ago I had this severe twitching in my left leg that felt like live electricity running through my leg. I tried to walk, but I couldn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star

I had a dreadful time with this and I believe it was related to a magnesium deficiency because once I started taking magnesium supplements regularly it all went away. Fluid intake (i.e. not enough water) could also affect things, but I've read that magnesium deficiency is a huge problem in this country. I posted a long article about it (magnesium) in another thread in this section.

This past week I have been experiencing twitching and minor spasms in my legs. This morning I noticed the muscle spasms increasing in both frequency and strength. One hour ago I had this severe twitching in my left leg that felt like live electricity running through my leg. I tried to walk, but I couldn
jarrett5292 Newbie

I use to be a fitness instructor so I have seen a lot of people with muscle issues. First thing you can try is drinking a lot of water to loosen the muscle. It can take about two days but hopefully you should see in one.

TrillumHunter Enthusiast

I would second the water and magnesium. I take magnesium three times a week.

ravenwoodglass Mentor

For those of us with neuro features this can be a sign of CC. I see this in my DH when he is CC'd. He will twitch for up to two weeks after accidental gluten injestion. In additon to increasing your water intake and adding magnesium be sure to check for possible sources of CC.

darlindeb25 Collaborator

Be careful with magnesium though, too much causes diarrhea, so if you feel better and get diarrhea, back off a little on the magnesuim. This was how my mom's doctor told her to adjust her magnesuim intake, by trial and error.

GlutenWrangler Contributor

Joe,

It could definitely be a lack of fluid or a magnesium deficiency. My fingers twitch when I'm low in magnesium. Please be careful if you plan to take magnesium supplements. You don't want to take too much. I was told to take magnesium supplements by my doctor, but at the time, I was also taking a lot of Mylanta, which has magnesium in it. The result was a dangerous level of magnesium in my body which caused heart palpitations and difficulty breathing. But you definitely want to make sure your fluid and electrolyte levels are in balance. The body doesn't work too well when your electrolytes are out of whack.

The other possibility is cross contamination. Celiac Disease causes neurological manifestations in many people, and it might also be the case with you. Make sure you're not consuming hidden gluten. But if you are 100% sure that you're not, then it is definitely a water/electrolyte problem. I hope it goes away soon. Good luck!

-Brian


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

Had the same problem Joe, so much so that they thought it is Parkinsons are started me on a different med before the celiac was diagnosed. It was from the gluten and went away when I was totally gluten-free. They said it was from the lack of hormones. I spent a month where I could only walk with a cane -- when I could walk at all from it.

It took almost a year before I regained muscle mass and was able to climb around the mountains here.

Ken

This past week I have been experiencing twitching and minor spasms in my legs. This morning I noticed the muscle spasms increasing in both frequency and strength. One hour ago I had this severe twitching in my left leg that felt like live electricity running through my leg. I tried to walk, but I couldn
debmidge Rising Star

Also review your Vitamin B intake (you may need supplements).

My husband has Restless Leg and it can cause some daytime twitching too. But again, he has neurological issues from the misdiagosed celiac.

cyberprof Enthusiast

Magnesium sulfate is what they give pregnant women to stop labor. I'd try supplements, making sure not to get too much as people have indicated. It can also cause diarrhea, so be careful.

If you haven't already started sub-lingual B-12 vitamins, you should. I know of no side-effects (someone correct me if I'm wrong). Put one pill under your tongue each morning.

I found that since I'm gluten-free I crave water. I've never liked drinking water but now I do. Getting low on water gives me a headache.

Good luck, Joe. You need a few symptom-free days!

~Laura

  • 5 weeks later...
confused Community Regular

How much magneisum is too much to supplement. For the last two days i have had muscle twitching in my thigh, yesterday i had thought it was an twitch in my blood vessels but today i had hubby feel them and he said no they are muscle spasms, boy did that make me feel better.

I am glad to see that others have this porblem, i thought i was all alone in this.

I also take epson salt baths so i dont want to take too much magnesium to become toxic fom it.

paula

JodiC Apprentice

This could also be due to a Vitamin D and C deficiency. That is my problem. Have these levels tested.

Aidans Grandma Newbie

Have you tried eating bananas? My mother, my husband and myself frequently get horrible cramps in our feet. It's a very simple and easy solution for us.

Our motto, "A banana a day keeps the cramps away."

I know that bananas have potassium, B6 and vitamin C. I'm not sure which of these helps the cramps but, they've never failed me.

Hope this helps!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,818
    • Most Online (within 30 mins)
      7,748

    STy
    Newest Member
    STy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.