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Just Lost It

shan

By shan
in Related Issues & Disorders

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shan Contributor
shan
Posted

Just found out that there is no heartbeat, and i am going to lose my baby... do you think, even though i got a negative on the celiac blood work, that it is possible i am still a celiac? I know i am clutching at straws, but i guess i just need answers... I was gluten light for 7 weeks and then went back fully on gluten and lost it, or rather it stopped developing at 8 and half weeks. :(

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Electra Enthusiast
Electra
Posted

Oh I'm so very sorry. I don't even know what to say. Nothing can make up for what has just happened to you.

Blood tests will generally not show a positive if you were just eating gluten lightly.

Were you previously diagnosed with Celiac?

Ursa Major Collaborator
Ursa Major
Posted

Oh Shan, I am so sorry. I had eight miscarriages and had no clue what gluten was at the time. Yes, miscarriages are one common symptom of celiac disease. Your blood test result could well have been a false negative (those blood tests are not very accurate and yield false negatives all the time). I understand how sad you must be right now.

Please, before you try again, be on the gluten-free diet for at least six months beforehand to make sure your intestine can heal enough to actually absorb essential nutrients. Because miscarriages happen with women with celiac disease because they don't absorb the nutrients needed to support themselves and a baby at the same time.

kbtoyssni Contributor
kbtoyssni
Posted

I'm so sorry to hear about your loss. You are in my thoughts.

confusedks Enthusiast
confusedks
Posted

I'm so sorry you are going through this. I agree with Ursa about gluten/pregnancy.

horsegirl Enthusiast
horsegirl
Posted

I hope you don't mind me saying a prayer for you today.

I'm very sorry for what you're going through, & hope you take care of yourself in the days

& weeks to come.

My understanding is that gluten intolerance/celiac are often implicated in miscarriage or infertility.

I also know that tests can be falsely negative, as all of my blood tests were negative even though

I had been eating gluten heavily every day for over 6 weeks (after being gluten free for 4 months).

Good luck to you & your family.

Horsegirl

Offthegrid Explorer
Offthegrid
Posted

I'm so very sorry.

For your information, my brother's blood work and endoscopy came back normal. But if he eats gluten, he gets quite sick. I'd trust your body's response far more than I would a test. And you can't just go gluten light -- you have to be completely gluten-free at *LEAST* 3 weeks before you may notice a change. It took me 2 weeks initially to feel better, and then by 3 weeks it was a big change.

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shan Contributor
shan
Posted
  • Author

Thanks for your replies, i did actually go gluten free, and didn't see any change, and when i tried gluten again it didn't bother me, but when i had (less than a whiskey shot of) wine, that is when i knew what it was ;) I knew it was the alcohol that was bothering me and not gluten, so i just went back on gluten, just slowly, coz i actually liked the gluten free diet :)

Should i ask the gi for a biopsy, or is it not worth it and i am just overreacting coz of what is happening to my body?!

confusedks Enthusiast
confusedks
Posted

Everyone has different opinions about this, if you want to have a "real" diagnosis, you may want to get a biopsy. All people who have miscarriages aren't necessarily Celiac, BUT if you noticed a reaction to gluten, then you may want to try to get diagnosed. It's up to you!

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