Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Gluten Intolerance Mean Celiac's Disease?


kristn

Recommended Posts

kristn Newbie

This past June I had food allergy testing done through a stool analysis. The results stated that I had an allergy/intolerance to gluten. Does this automatically mean that I have Celiac Disease? I have been on a strict gluten-free diet for 2 weeks, and am feeling much better, though not 100%. I am wondering if knowing I have a gluten intolerance is enough to justify a life-long gluten-free diet, or if I should still consider getting tested for Celiac Disease. My main problem right now is that I do not have health insurance and cannot afford testing. It will be 1-2 years before I expect to have health insurance again, and am not sure if I should stick to a gluten-free diet until I can get tested? Also, I am wondering if anyone knows of a (relatively) inexpensive way to test for Celiac Disease? Thank you for any help you can offer me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mom23boys Contributor

An allergy to gluten is not the same as Celiac.

Our nutritionist did tell us that milk and wheat issues of any kind are not to be toyed with because they do things in the body unlike other allergens.

Two weeks is a short time. I believe it can take about 6 months (or longer) to completely get gluten out of the system. The fact that you are feeling much better says a lot. I wouldn't throw away 2 years of health waiting to be tested.

kbtoyssni Contributor

I'm not quite sure why the results said allergy/intolerance. I thought an allergy is an immediate reaction while intolerance is more long-term (and autoimmune in the case of celiac).

I've always felt that gluten intolerance is the first step on your way to celiac. Celiac is diagnosed only after you have a lot of damage to th intestines; with gluten intolerance you are only just starting to get damage. Either way you should be on a gluten-free diet.

If you go gluten-free now and test in 1-2 years via traditional medical testing (blood test or scope) you will probably get a negative result. For these tests to work you have to be eating gluten - 4 servings a day for 3-6 months (probably 6 months in your case if you've had 1-2 years to heal). If you feel better it's probably not worth eating gluten again just to have a doctor say you have it. If you feel better, dietary response is a legitimate diagnosis.

If you want a more formal diagnosis, some here have gone through enterolab. I think it's around $200-300. BUT, I'm wondering what kind of testing you had done in June? Why not go with those results? Give it time to see results. It can take months to heal 100%.

aprilh Apprentice

Gluten Intolerance can come from many underlying issues. Since dairy and wheat (gluten) are hard to digest in the first place, its usually the first to develop intolerances when there are underlying issues.

For me, I had a candida overgrowth and this caused leaky gut. I could not tolerate gluten or dairy at all! Now i can tolerate in small doses.

You could do the genetic testing for celiac through enterolab.

Is this your only issue or do you have some other underlying issues? Also bioset testing can be helpful.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748

    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.