Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Strange Allergist Doc Visit


b91hd7fjk

Recommended Posts

b91hd7fjk Apprentice

I went to see the allergist doctor today to hopefully help find out why after going gluten-free I am still experiencing regular symptoms (constipation, D, and constant gas!). My scratch test came back completely clear so he explained to me that I am getting sick due to intolerences....then he proceeded to tell me there is no "test" for intolerences and suggested I see a nutritionist. I explained to him that places such as "enterolab" take samples to test for intolerences but he said its a total waste of money and there is no way to test for them other than maybe journaling food intake on an elimination diet. I REALLY dont have the money to spend on both a nutritionist and getting the lab tests done so I have to choose and was hoping anyone could shed some light with their experiences.

Also after leaving the tests I have had a terrible cough and my chest feels like its closing a little...could be just a coinsident but could this also be a reaction to something I was scratched with?

Please let me know if you can help.

-Staci


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Worriedtodeath Enthusiast

Do keep a watch on yourself. there are delayed ige allergies (skin scratch test for those) and not all drs believe in those. I have made a few believers out of drs when my skin tests went hyper 12 hrs after the test and I had to be hauled back in for violent reactions to mushrooms, dust,mold, and pollen. I also have a delayed onset of insect stings and will have an ige response nearly 12 hours after the insect sting.

Now the kids allergist also believes in IGG allergies which cause delayed stomach/intestional issues and his thinking seems to be rather new as well. But as far as I know, there is no realiable test for that and he has always reccomended the elimination diet to see what triggers those.

If you are 100% gluten-free and have checked all the weird hiding places, have you taken out diary? We are discovering that causes similiar signs to gluten. We all had a nice bag of peanut mms yesterday and I have many of the same symptoms as I do with gluten. The kids are having issues with all direct diary as well.

If you keep a food dairy for awhile, the nutrionist will be helpful in finding things in your diet that you may not realize on your own.

I have no experience with Entrolab so can't comment about them.

Stacie

Ginsou Explorer

I don't understand why your Dr. said there is no test for intolerance. Of course there is. In 1979 when I developed gas,constipation,severe abdominal pain, diarrhea, I was tested for lactose intolerance. It involved drinking lactose, then monitoring my blood and urine for about 6 hours. It was positive. Now, the test is simplified by simply drinking lactose and blowing into an instrument that "reads" your breath and will tell if you are lactose intolerant.

This past year I developed other severe health problems, and blood tests for celiac were negative. I then had Enterolab tests done, and I have both celiac and gluten genes, ( a double whammy), also casein sensitivity (another double whammy with the lactose intolerance) and a soy sensitivity.The egg test was negative.

I was stunned, never in a million years would I have suspected. When I start to have symptoms again, it takes some detective work to find the offending food. After being sick for 6 weeks recently, I found out that the product Rice Dream has barley in it. The barley was never listed before, apparently it is now being included in the labeling.

I've had no medical insurance, and had to do so much detective work. I'd strongly recommend Enterolab as a starting point for your symptoms.

I think the previous poster, worried to death, has the words diary and dairy mixed up. I think she is recommending removing all dairy products from your diet.

Mango04 Enthusiast

I actually think your allergist gave you good advice. Food diaries and elimination diets can actually be more useful and more accurate than "intolerance" testing. (They are less expensive too :) )

b91hd7fjk Apprentice

He actually said the words..."thats all BS" in regards to the stool tests done by enterolab. He is an older man so maybe things have progressed since his days in med school....well Thanks for the advice. I also wanted to know what test did u check off to have the intolerences tested...I have already been diagnosed celiac diseasse and have been on a gluten-free diet for almost 3 years. Ok, thanks!

jerseyangel Proficient

Yep--I agree that your allergist gave you great advice. It was exactly the same thing my allergist told me.

I did an elimination diet (it took a while) and when I finally was able to cut out the foods that caused my symptoms, I began to heal.

b91hd7fjk Apprentice

im willing to do the diet but... what elimination diet did u follow?? they all seem to be different to me...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
im willing to do the diet but... what elimination diet did u follow?? they all seem to be different to me...

Did your allergist offer to help you formulate one? That would be the easiest way to go. Mine started mine the day I had the skin tests done. You could also simply eliminate gluten and dairy and eat a whole foods for sure gluten free diet for a while and then, if you need to, do a short gluten challenge to see if you react.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,931
    • Most Online (within 30 mins)
      7,748

    JoJo0611
    Newest Member
    JoJo0611
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.