Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Strange Allergist Doc Visit


b91hd7fjk

Recommended Posts

b91hd7fjk Apprentice

I went to see the allergist doctor today to hopefully help find out why after going gluten-free I am still experiencing regular symptoms (constipation, D, and constant gas!). My scratch test came back completely clear so he explained to me that I am getting sick due to intolerences....then he proceeded to tell me there is no "test" for intolerences and suggested I see a nutritionist. I explained to him that places such as "enterolab" take samples to test for intolerences but he said its a total waste of money and there is no way to test for them other than maybe journaling food intake on an elimination diet. I REALLY dont have the money to spend on both a nutritionist and getting the lab tests done so I have to choose and was hoping anyone could shed some light with their experiences.

Also after leaving the tests I have had a terrible cough and my chest feels like its closing a little...could be just a coinsident but could this also be a reaction to something I was scratched with?

Please let me know if you can help.

-Staci


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Worriedtodeath Enthusiast

Do keep a watch on yourself. there are delayed ige allergies (skin scratch test for those) and not all drs believe in those. I have made a few believers out of drs when my skin tests went hyper 12 hrs after the test and I had to be hauled back in for violent reactions to mushrooms, dust,mold, and pollen. I also have a delayed onset of insect stings and will have an ige response nearly 12 hours after the insect sting.

Now the kids allergist also believes in IGG allergies which cause delayed stomach/intestional issues and his thinking seems to be rather new as well. But as far as I know, there is no realiable test for that and he has always reccomended the elimination diet to see what triggers those.

If you are 100% gluten-free and have checked all the weird hiding places, have you taken out diary? We are discovering that causes similiar signs to gluten. We all had a nice bag of peanut mms yesterday and I have many of the same symptoms as I do with gluten. The kids are having issues with all direct diary as well.

If you keep a food dairy for awhile, the nutrionist will be helpful in finding things in your diet that you may not realize on your own.

I have no experience with Entrolab so can't comment about them.

Stacie

Ginsou Explorer

I don't understand why your Dr. said there is no test for intolerance. Of course there is. In 1979 when I developed gas,constipation,severe abdominal pain, diarrhea, I was tested for lactose intolerance. It involved drinking lactose, then monitoring my blood and urine for about 6 hours. It was positive. Now, the test is simplified by simply drinking lactose and blowing into an instrument that "reads" your breath and will tell if you are lactose intolerant.

This past year I developed other severe health problems, and blood tests for celiac were negative. I then had Enterolab tests done, and I have both celiac and gluten genes, ( a double whammy), also casein sensitivity (another double whammy with the lactose intolerance) and a soy sensitivity.The egg test was negative.

I was stunned, never in a million years would I have suspected. When I start to have symptoms again, it takes some detective work to find the offending food. After being sick for 6 weeks recently, I found out that the product Rice Dream has barley in it. The barley was never listed before, apparently it is now being included in the labeling.

I've had no medical insurance, and had to do so much detective work. I'd strongly recommend Enterolab as a starting point for your symptoms.

I think the previous poster, worried to death, has the words diary and dairy mixed up. I think she is recommending removing all dairy products from your diet.

Mango04 Enthusiast

I actually think your allergist gave you good advice. Food diaries and elimination diets can actually be more useful and more accurate than "intolerance" testing. (They are less expensive too :) )

b91hd7fjk Apprentice

He actually said the words..."thats all BS" in regards to the stool tests done by enterolab. He is an older man so maybe things have progressed since his days in med school....well Thanks for the advice. I also wanted to know what test did u check off to have the intolerences tested...I have already been diagnosed celiac diseasse and have been on a gluten-free diet for almost 3 years. Ok, thanks!

jerseyangel Proficient

Yep--I agree that your allergist gave you great advice. It was exactly the same thing my allergist told me.

I did an elimination diet (it took a while) and when I finally was able to cut out the foods that caused my symptoms, I began to heal.

b91hd7fjk Apprentice

im willing to do the diet but... what elimination diet did u follow?? they all seem to be different to me...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
im willing to do the diet but... what elimination diet did u follow?? they all seem to be different to me...

Did your allergist offer to help you formulate one? That would be the easiest way to go. Mine started mine the day I had the skin tests done. You could also simply eliminate gluten and dairy and eat a whole foods for sure gluten free diet for a while and then, if you need to, do a short gluten challenge to see if you react.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    3. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

    4. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    5. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,266
    • Most Online (within 30 mins)
      7,748

    Barbara lynn
    Newest Member
    Barbara lynn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.