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No Very Noticable Reaction

Piesmom

By Piesmom
in Coping with Celiac Disease

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Piesmom Apprentice
Piesmom
Posted

I

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RiceGuy Collaborator
RiceGuy
Posted

It may be that the difficulty swallowing is the most immediate symptom. It can be helpful to keep a food journal, wherein every day he notes everything he eats and how he feels. In a few weeks or so, a pattern may emerge. The swallowing problem might be from gluten, only manifesting some amount of time after ingestion. Some members here have stated that there reactions begin days later. Also, depending on what he eats, there may still be hidden gluten that you aren't aware of. Odd as it may seem, symptoms are often much more pronounced once the body has had enough time gluten-free.

So I think the journal would be a good idea, as well as avoiding dairy, since that's a very common intolerance along with gluten. He may be able to add dairy back later. In time I'd hope you'd have the signs of glutening figured out.

Considering the fact that many of us grow up eating gluten, never figuring it as having anything to do with our health issues, it isn't surprising that not everyone has obvious and immediate reactions.

lizard00 Enthusiast
lizard00
Posted

A woman I know that has Celiac found out because she was losing weight ( 5'2" @85 lbs- YIKES!) and didn't know why. She had no other "typical" symptoms. She found out later that the difficulty swallowing was a symptom and those were the only two she had. She is totally gluten-free and doesn't cheat because she knows the consequences, but she too says she never had GI upset, so she really doesn't know if she ever gets CC'd.

So, it's possible, like the other poster said, that IS his reaction to gluten. But tell him he's definitely not alone on that. Personally, I don't get GI upset either. I'll get a headache and my energy is sapped for a day or so, but to cause distress I have to have a decent amount of it. And usually my symptoms hit the next day, just took me paying attention to find out... and the occasional glutenings (which usually happen at night). I have also realized that a tiny amount can trigger those two symptoms.

WendyG Explorer
WendyG
Posted

I also do not react much. When I was first sick I had more symptoms as time went by I started cheating and seemed fine. Now more than 5 years later my hair is so thin it sent me to the Dr. and sure enough my iron is low and my Ferretin is 2. So even if you are not having symptoms the gluten is still causing damage to your body. I am going to the Dr tomorrow to try and get my blood back in order so I can start absorbing nutrients again. I Have been gluten free for a week and a half and am going to stay that way... no matter what. Remember what you cant see and sometimes feel can really be hurting your body.

Take care

Wendy

Lisa Mentor
Lisa
Posted

Kelly,

I think that after some time gluten free you have healed your intestines. For some, it might take repetitive exposure to be symptomatic again. After two and a half years, I consider myself in remission.

Tim-n-VA Contributor
Tim-n-VA
Posted

A couple of other things to consider.

I was diagnosed because of liver function tests, not because I was getting sick. Or that is what I thought. It is hard to do a retrospective test but over a few years before the diagnosis I would wake up occasionally feeling sick and think that I'd gotten mild food poisoning or a 24-hour-virus. I also got really sick if I drank more than one wheat-beer when in Germany but I just assumed it was a hangover. Did he have occasional unexplained GI symptoms.

While I still don't have the extreme symptoms described by some people on this site, I do get an upset stomach after only a little gluten now. That seems to be a common trend - being off gluten maked the occasional accidental things more symptomatic.

  • 2 weeks later...
Piesmom Apprentice
Piesmom
Posted
  • Author

Thank you everyone for your responses. I feel so bad for him - I was hoping I could find another way just to see if he was being glutened. Now I see there are more people who don't always know right away either.

Thank you again!

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happygirl Collaborator
happygirl
Posted

You may want to have his Celiac bloodwork run at more frequent intervals to make sure that his levels have come down, and remain down.

Piesmom Apprentice
Piesmom
Posted
  • Author
You may want to have his Celiac bloodwork run at more frequent intervals to make sure that his levels have come down, and remain down.

That's a very good idea - thank you!

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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