Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By Bob's Mill?


elmuyloco5

Recommended Posts

elmuyloco5 Apprentice

x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mom23boys Contributor

In our house we would feel icky if we had so little protein.

jerseyangel Proficient

Hi,

Sorry you aren't feeling well. I don't use Bob's myself, as I've seen several on here that have had problems with it.

I know that they make both gluten and non gluten products and the ones labeled "Gluten Free" are made in a different room than the others.

I think you'll find that some can eat their products fine, and others can't--not much help, I know, but a lot of this is finding out what you, as an individual, can tolerate and what you can't.

I use Ener-g flours and potato starch--they are available on-line.

Respira Apprentice

Have you considered it may be the yeast in the product? I have a yeast intolerance and cannot eat any breads that contain yeast. Had to give up beer too :(

And the funny thing is I discovered the yeast intolerance before I found out I was gluten intolerant.

"Grains, yeast …

It is generally recognised these days that white flour does not have a high nutrition value. Less well known is the fact that most grains, like wheat, rye, oats and barley, contain the protein gluten, and people’s tolerance to this varies. Where there is a high intolerance, this can lead to celiac or abdominal disease, causing diarrhea and symptoms of vitamin deficiency, until the gluten intolerance gets discovered. "

"Another aspect of eating bread, pastry and drinking beer or fermented drinks is the growth of yeast. The consumption of many products containing yeast and sugar can alter the balance of the intestinal flora to the advantage of yeast, of which candida albicans is the most well known. Added to this, if antibiotics have been taken, then the balance is thrown off completely, which often shows up in bloating and itching, and in alternation between diarrhea and constipation, and related infections of the skin and nails."

gfp Enthusiast

Try contacting them....

In reality they can't guarantee gluten-free... companies that say they can are probably lying because stuff can always happen they miss or can't control. (I suppose if they charged $20 a mix its possible but given the way it grows and is transported its hard to be 100%)

To me its more how they respond and how much effort they make. If they ask you to send it in its a good sign, you might be asked to send in the bag etc.

At least if they do this they are serious... I guess if not then they are not?

oops: Forgot to say...

It could be all sorts of things, it might not be gluten, could be a tummy bug? It might be another intolerance (soy?) and it could be CC. You could have some lost gluten somewhere in the house like a hoover?? or it could be something you touched? Someones pet you handled eating gluten etc. etc.

This is one of the most frustrating things for me when I'm SURE I couldn't be glutened but am...

kbtoyssni Contributor

Bob's has two facilities: a gluten-free one and a non-gluten-free one. If a package says gluten-free, it is made in their gluten-free facility. Their soy flour is not made in the gluten-free facility so it does not say gluten-free because there would be a possibility of CC.

Takala Enthusiast

Some flavors of Tazo's green tea have... gluten.

Watch out also for seasoning mixes with spices that have mystery ingredients or use grain based fillers.

The only Bob's Red Mill product I've reacted to was the quinoa flour, which was a bummer, because it tasted really good, but it was definitely that after tested it for the third time by making flour and water tortillas and eating it by itself.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

That's right, if you go to the Bob's Red Mill website and read their story (I have checked out their whole site) you would find that their gluten-free products are made in a different facility from the gluten items. So, if it says gluten-free, it is just that.

I agree that with mixes, there are a lot of possibilities other than gluten that could cause a problem.

I have a package of their 'homemade wonderful bread mix' (I haven't made any yet, because I really shouldn't have a lot of the ingredients). The ingredients are:

Garbanzo flour (beans cause intestinal distress for me), potato starch (same thing with potato), corn starch (a grain, I don't do well with grains), sorghum flour, tapioca flour (I don't tolerate it well, either), turbinado sugar, fara flour (don't know what that is), xanthan gum, potato flour (potato again), sea salt, guar gum, soy lecithin (a problem for many), yeast packet.

So, even though there is no gluten in this mix, I know I would react to this bread for many reasons. I am intolerant to most of the ingredients to some degree!

I might still bake it for my husband, because I am making him (with limited success) gluten-free in this house. The reason he still brings gluten foods into the house is, that I am not baking him bread. At least that is what he claims is the reason.

So, I hope that if I manage to bake him bread and cookies that he will stop bringing gluten foods in.

elmuyloco5 Apprentice

x

gfp Enthusiast
That's right, if you go to the Bob's Red Mill website and read their story (I have checked out their whole site) you would find that their gluten-free products are made in a different facility from the gluten items. So, if it says gluten-free, it is just that.

That's OK and the best they can do and avoids CC in the mill but it doesn't help with the field itself or the bulk transport... this is pot luck...

My thoughts on this are that Rice is good because it doesn't grown in the same environment as wheat (or barley/rye) ... and quinoa is good for the same reasons but other grains can be contaminated in the field by outliers... when crops are rotated or just mother nature (birds etc.) bringing in seeds as nature intended (poop).

The risks are smallest in areas with mono-agroculture but this is (unluckily for us) usually the most chemically enhanced. The same goes for transport, the more the transporters carry in terms of diversity the greater chance of CC.

I agree that with mixes, there are a lot of possibilities other than gluten that could cause a problem.

I totally agree, the more in a mix the bigger the chance of one product being CC'd.

elmuyloco5 Apprentice

x

Tim-n-VA Contributor

This is always a problem because there are so many unknowns. A big one for me is that a lot of stores seem to think that all specialty flours belong together so the pure wheat gluten goes next to or on the shelf above the gluten-free packages.

Good thing those packages never leak isn't it.

RiceGuy Collaborator
One item stuck out as a culprit to the problem, guar gum. Apparently it has a laxative effect on some people.....and lucky us appear to be part of the "some". We'll know for sure when I can make some bread without it. I have a Pamela's and an Arrowhead mix. The Pamela's uses xanthan gum (which I guess can also have the laxative effect, but not as common), but the Arrowhead has neither. I think that should help determine the cause.

Thing is, using a different mix doesn't rule out CC. Now if you make some of your own mix, using separate ingredients to duplicate one of the suspect products, but leave out the guar gum in one batch and include it in another, then you'll have everything identical except the binding agent. I'd also try using baking powder instead of yeast.

It may take a few trials to figure out the culprit, but better to do that now than to keep getting sick at random, and not know why.

Ursa Major Collaborator
This is always a problem because there are so many unknowns. A big one for me is that a lot of stores seem to think that all specialty flours belong together so the pure wheat gluten goes next to or on the shelf above the gluten-free packages.

Good thing those packages never leak isn't it.

You're right. It irks me that at our store they have a lot of the Bob's Red Mill products. I would like it if they'd have the gluten-free ones on one side, and the gluten ones on the other. But of course, they couldn't care less. The gluten and gluten-free ones are right side by side and above or below each other.

Which shows that while the store managers have finally realized that money can be made from people with gluten intolerances, and they carry gluten-free products, they didn't bother finding out anything about celiac disease itself and don't care. It is all about money, as always.

RiceGuy Collaborator
You're right. It irks me that at our store they have a lot of the Bob's Red Mill products. I would like it if they'd have the gluten-free ones on one side, and the gluten ones on the other. But of course, they couldn't care less. The gluten and gluten-free ones are right side by side and above or below each other.

Which shows that while the store managers have finally realized that money can be made from people with gluten intolerances, and they carry gluten-free products, they didn't bother finding out anything about celiac disease itself and don't care. It is all about money, as always.

Well, then send them a message that they'll understand, like go to the manager and say you're not buying the products unless they keep them on a separate shelf. Maybe start a petition? Do they have a bulletin board in the store? Get every member of a local Celiac support group to call them?

If the items don't sell, they'll stop carrying them.

scotty Explorer

i just did a trial run on Bob's...

had the Quinoa and the Creamy Rice Farina....both did not do the best with me; although they did not destroy me; they did not fully make me feel right; bad gas, breaking out. i know it was them as see i was very specific and doing ok with this other Quinoa (no bad gas with that) til it ran out; then wanted to experiment with Bob's. seeing as how i had seen this post and was messed for the longest time and could not figure it out--thought it was carbs in general, candida flaring out of control--i wanted to give myself reassurance. i'm still messed but Bob's makes it worse decidely so. and well it is cleanse time again. no carbs at all. thought it was just the Rice stuff like i had intolerance to rice as i had seen that before some could certain grains but not others...

i wonder if Bob's changes machines. i need to research Quinoa and how it is harvested. i mean do they plow the wheat then go across the street and plow the quinoa with the same tools; ugh---should check to see how Quinoa grows and the whole process. talk to Bob's--can anyone help out?

  • 3 weeks later...
imhungry Rookie

Well, Bob's was making me suspicious because they make so many things that are and are not gluten free. So I was setting myself up for an experiment to see if I was going to react. Glad to know I am not the only one questioning it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.