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Just Have To Shout For Joy!


crittermom

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crittermom Enthusiast

Hi Everybody,

:D I just have to shout out I am so happy! :D I received my shipment of gluten free crackers and graham crackers today. Glutino ritz style, Glutano soda crackers, and Jo Sef graham crackers, honey and chocolate. I opened them up, my kids tried one and it was like a shark feeding frenzy! Michael LOVED the crackers and graham crackers and Katharine loved the graham crackers (she wasn't a cracker girl even with gluten). Theywere stealing them out of the package while my bacwas turned. It was wonderful, I found stuff they love my heart is just singing. Now I can take Michael gluten free without having to tell him he can't have crackers and we have replaced Katharine's graham crackers she used to like. They completely forgot about the fresh chocolate chip cookies I baked yesterday! I know that food shouldn't be the center of our life or my happiness, but gosh I just love it when you can make your kids happy and healthy at the same time.

BTW update on Michael, we are not giving him the antispasmadic meds, they have terrible side effects. However he has been gluten free for basically 2 days. He had a normal bm which was wonderful. No complaints of stomach aches either. I gave him some crackers at dinner last night so we will see what the bm is tonight. He is pretty sensitive again today. We have decided, especially now that we have snacks to substitute his favorites, we are going gluten free now. Why wait, I know what he has been like for the past 5 months, I don't need to document it for the doctor. If he is better gluten free I will know, if he isn't we keep searching while being gluten free.

Thanks for listening to the ranting of a mad woman ( the fact that it is 22 and sunny and feels warm today after negative temps I think is helping with the giddiness) Have a great day!!!!! :D


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dbmamaz Explorer

That was a really cute post - glad your kids have their happy gluten-free snacks, it does make a difference!

Darn210 Enthusiast

:lol::lol: Hooray!!!!

In order to be successful with the gluten-free diet, I think it is all about not feeling deprived. As long as there is some gluten-free alternative out there that will scratch that "favorite gluten product" itch, then success is just around the corner!!!

Ursa Major Collaborator

That is great news! It is so much easier when you have substitutes, then Michael won't feel you force him to be gluten-free against his will. If he has food he loves, he won't even care.

crittermom Enthusiast

BM hit just after the original post. After the crackers last night Michael returned to large green poop with food pieces present... I think we have our answer, no more gluten for us! :)

HAK1031 Enthusiast

Before celiac, I never appreciated a good cookie. Now, nothing makes me happier than amazing baked goods or other substitute foods :D

dionnek Enthusiast

crittermom, do you mind me asking what are your son's symptoms? I haven't been keeping up here, so probably missed it somewhere, but I was just wondering. My 3 year old daughter has horrible constipation (alleviated by Glycolax now) and had reflux as an infant, and my new baby has reflux really bad (however I am gluten free - dx celiac - and he hasn't had any gluten (breastfed), so I don't think that could be related). We had my daughter tested a few months ago for celiac (negative), but I know the tests aren't very reliable, especially at her age.


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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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