Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

504 Plans


buffettbride

Recommended Posts

buffettbride Enthusiast

Well, this thread is starting with some great news. My daughter was accepted into a local public school with an arts focus. She'll get to spend 90 minutes a day in a theatre class, in addition to a rigorous academic program. She has attended a private, Catholic school up to this point, where a 504 plan would not apply.

If it was just a "normal" public school, I would probably address the issue of exposure to gluten the way I have now--by working with the teachers and staff directly.

However, because of the arts-focus of the school, they will be doing work with face makeup as well as visual arts programs (I have visions of mass-flour floating around from paper machier projects), I think it is just a gluten-disaster waiting to happen. Not to mention a lot of other activities, such as travel, that happen as part of this program. So, we're thinking a 504 plan might be for us, to ensure she has a safe environment as well as ensure her teachers know (as well as they possibly can) the true risk gluten exposure can cause and finding alternative activities and products for her, if necessary. We might ask for the use of a microwave during lunch to eat up that ever-so-awful-cold gluten-free food.

I've seen a few samples of 504 plans I really like, so I think I know what direction I want to go with it. This is a really great opportunity for her (she auditioned against over 100 other students to get 1 of 14 spots in the theatre program).

Any experiences, good and bad you want to share about your 504 plan, or why you chose not to go that route?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

Congrats to your daughter on getting into such a great school! That's quite an achievement. That said, I know nothing about 504 plans :) Hopefully someone who knows something about them will reply soon.

buffettbride Enthusiast
Congrats to your daughter on getting into such a great school! That's quite an achievement. That said, I know nothing about 504 plans :) Hopefully someone who knows something about them will reply soon.

Thanks so much! (I guess no one is in the mood to discuss 504 plans, and I'm scouring the earth for gluten-free stage makeup!)

She had to write an essay on why she wanted to go to school there, and the theme was that as isolating as celiac can be, when she is on stage, she gets to be like everyone else and that performing makes her feel normal and free from the disease.

I am a very, very proud mama. (what's even better is since it is a public magnet school, it is not tuition-based, so it was like getting a $600 raise per month when she starts!). So, now we'll have more money to buy her gluten-free food. LOL.

dbmamaz Explorer

My son has an iep due to emotional difficulties, so I dont really know much about a 504, but I can tell you, getting an IEP was a total fight - the school kept saying that if his disability didnt get in the way of his education, they were not obligated to give him any specail treatment. Finally he failed out of the gifted program, and they agreed to help him :huh:

Anyways, there's a website called wrightslaw, i think, which is all about IEP and I believe also 504, you might want to check there.

Also, with or without a 504, you'll still have to work with the teachers a lot - no matter what the IEP (or 504) says, if its not enforced, or there's no buy-in, the teachers will feel free to ignore it or 'forget'.

good luck and congrads to your daughter

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.