Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medicinal Mushrooms And Autoimmune Disorders


Cinnamon

Recommended Posts

Cinnamon Apprentice

I've been searching around for some supplements that might help my gluten sensitive family. I think Slippery Elm is good because it's supposed to coat and protect the intestinal lining, and so far it seems pretty good. But my main concern is that, having gone off gluten, everyone's confused immune systems will turn on other organs or go after other foods which previously were no problem. It seems like it's a common thing for someone to go off gluten and feel great, only to find that now other foods are intolerable. Other autoimmune diseases are more likely once you've had one, as well. So I've been trying to research things that might help the immune system.

One of the things I've been reading about is that medicinal mushrooms have substances in them that both stimulate and help modulate the immune system. But I really don't want to stimulate it, just modulate it. I essentially want to say, "look, Mr. Small Intestine is your friend. Yes, he was harboring your enemy, that gluten guy, for a while. Don't take it personally. And Mr. Thyroid, well he had nothing to do with this, you didn't have to punch his lights out. Take a deep breath and just relax." I don't want to make the immune system stronger, just smarter.

Has anyone tried the mushrooms? I was in the health food store the other day and saw them in a powdered capsule form and bought them, but I'm kind of afraid to try them. I don't want to stimulate the immune system and make things worse, but if they would modulate the immune system, it might prevent other diseases and maybe other intolerances, and perhaps make accidental glutening reactions less severe.

Anyone have any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moldlady Rookie

Hi Cinnamon,

A few mushrooms/fungi have been found to fight other fungi. They will kill off with their mycotoxins the fungus that is living in your body and therefore help your immune system recover. This is a good thing but do go slow as the killing off of fungus in the body no matter how you do it will cause some die off reactions.

Go slow and remember to drink plenty of good clean water, have AC on hand, take a detox bath, eat plenty of good fiber in veggies and low sugar fruits to bind with the toxins released. All of that will speed up the detox process and bind with toxins and take them out of the body.

ML

VioletBlue Contributor

I use Slippery Elm because of it's anti-inflamatory properties. I also take Elderberry daily. Elderberry is considered by some to be a type of natural anti-biotic and it naturally contains a good dose of A B and C vitamins. Most common medicinal herbs in the daisy family cause a reaction for me, but the Slippery Elm and the Elderberry have yet to be an issue.

gluten15 Apprentice

I'm kinda confused about the mushroom thing right now. I had been taking Garden Of Life RM-10..but stopped taking it because I was also trying to work a candida into things and I thought that mushrooms weren't allowed for this..plus..aren't mushrooms overall sort of something we are warned to stay away from because of fungal type stuff?

Or would the mushrooms in the Garden Of Life RM-10 completely different. Am I way off base and overthinking this?

I have always sort of been confused by mushroom supps. On one hand they sound exciting..yet other things I read about mushrooms make me want to stay away from all mushrooms.

Thoughts and opinions would be very much appreciated please.

Thanks again.

moldlady Rookie

I agree, it is confusing. I do not eat mushrooms and I do not eat foods that contain fungus in them. Just as a precaution in case the spores or mycelia decide to morph into something that starts to become a problem.

There are certain rare types of fungus however that do kill other fungi. These are the specific ones I think that can actually help the immune system fight off systemic fungus. Nystatin is derived from a fungus and kills fungus in the intestinal tract.

ML

Cinnamon Apprentice

Thank you for your replies. I guess it's hard to know whether they are a good thing or a bad thing. It's probably better not to take the powdered capsule kind, since it gives you many times as much as you'd get if you just ate some mushrooms. I guess the jury is still out on this one.

BramelyHall Newbie
Thank you for your replies. I guess it's hard to know whether they are a good thing or a bad thing. It's probably better not to take the powdered capsule kind, since it gives you many times as much as you'd get if you just ate some mushrooms. I guess the jury is still out on this one.

I haven't used mushrooms but just wanted to tell you Slippery Elm can be dangerous for pregnant women. It relaxes smooth walled muscle tissue and can cause miscarrriages. It has a a history of use as an abortificant too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CJS Rookie
Hi Cinnamon,

A few mushrooms/fungi have been found to fight other fungi. They will kill off with their mycotoxins the fungus that is living in your body and therefore help your immune system recover. This is a good thing but do go slow as the killing off of fungus in the body no matter how you do it will cause some die off reactions.

Go slow and remember to drink plenty of good clean water, have AC on hand, take a detox bath, eat plenty of good fiber in veggies and low sugar fruits to bind with the toxins released. All of that will speed up the detox process and bind with toxins and take them out of the body.

ML

CJS Rookie

What is AC?

CJS

[
Hi Cinnamon,

A few mushrooms/fungi have been found to fight other fungi. They will kill off with their mycotoxins the fungus that is living in your body and therefore help your immune system recover. This is a good thing but do go slow as the killing off of fungus in the body no matter how you do it will cause some die off reactions.

Go slow and remember to drink plenty of good clean water, have AC on hand, take a detox bath, eat plenty of good fiber in veggies and low sugar fruits to bind with the toxins released. All of that will speed up the detox process and bind with toxins and take them out of the body.

ML

moldlady Rookie
What is AC?

CJS

[

Hi CJS,

AC is activated charcoal. Absorbs toxins very well and also gas/bloat. If you are on meds it will absorb that too so do be careful. Take at least 4 hours after meds.

ml

Cinnamon Apprentice

Thanks so much for your help. I think I'll try Goji Berries instead of the mushrooms. Supposedly they help the immune system distinguish between what is self and what is not self, as well as a whole bunch of other things. Sounds safer. And thanks for telling me about the Slippery Elm causing miscarriages. I didn't know that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

    2. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,166
    • Most Online (within 30 mins)
      7,748

    AmynDevyn
    Newest Member
    AmynDevyn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. Both of these conditions would thrive on carbs and you do say you feel better when you don't eat a lot of carbs. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done? You have had over 1 foot of your small bowel removed by that surgery in 2022 so that would certainly challenge digestion and nutrient absorption.  Edited
    • Seabeemee
      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea).  I also have been diagnosed with GERD and some associated issues hence the endoscopy. I also was diagnosed with NAFLD after an abdominal CT scan in December - which surprises me because I gave up alcohol 5 years ago, workout 5 days a week, cardio / weights and cook from scratch every night. Anecdotally,  I do feel better when I do not eat a lot of carbs and have been staying away from gluten 95% of the time until my follow up.  History: I had an emergency bowel obstruction operation in August 2021 for a double closed loop obstruction, open surgery removed 40 cm of my small intestine, my appendix, cecal valve and illeocectomy. Beside the fact that this put me in the situation of no longer being able to absorb Vitamin B12  from my diet and having to  inject Vit B 12 2x a month, I also became Iron deficient and am on EOD iron to keep my levels high enough to support my Vitamin B12 injections, as well as daily folic acid. I tested positive for pernicious anemia in 2022 but most recently that same test came back negative. Negative Intrinsic Factor. My results from the biopsies showed 2nd part of Duodenum, small bowel Mildly patch increased intraepithelial lymphocytes with intact villious architecture. Comment: Duodenal biopsies with normal villous architecture and increased intrepithelial lymphocytes (Marsh I lesion) are found in 1-3% of patients undergoing duodenal biopsy, and an association with celiac disease is well established however the specificity remains low. Similar histologic findings may be seen in H pylori gastritis, NSAID and other medication use including olmesartan, bacterial overgrowth, tropical sprue and certain autoimmune disorders. So my GI ordered Labs for Celiac confirmation: Sorry I couldn’t upload a photo or pdf so typed below: TEST NAME                               IN RANGE and/or RESULTS RESULTS:  IMMUNOGLOBULIN A :           110 GLIADIN (DEAMIDATED) AB (IGG, IGA)                            <1.0 GLIADIN (DEAMIDATED) AB (IGA)                                     <1.0 GLIADIN (DEAMIDATED) AB (IGG)                                    <1.0 TISSUE TRANSGLUTAMINASE ANTIBODY, IGG, IGA TISSUE TRANSGLUTAMINASE AB, IGG                                     <1.0 TISSUE TRANSGLUTAMINASE AB, IGA                                     <1.0 INTERPRETATION: <15.0 ANTIBODY NOT DETECTED  > OR = 15.0 ANTIBODY DETECTED RESULTS: HLA TYPING FOR CELIAC DISEASE INTERPRETATION (note The patient does not have the HLA-DQ associated with celiac disease variants) More than 97% of celiac patients carry either HLA-DQ2 (DQA1*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302) or both. Genetic counseling as needed. HLA DQ2 : NEGATIVE HLA D08: NEGATIVE HLA VARIANTS DETECTED: HLA DA1* : 01 HLA DA1* : 05 HLA DQB1*: 0301 HLA DQB1*: 0501 RESULTS REVIEWED BY: Benjamin A Hilton, Ph.D., FACMG I appreciate any input, thank you.         
    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.