Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

College


theycallmewheatthins

Recommended Posts

theycallmewheatthins Newbie

I am 19 and just got diagnosed with celiac, its been real hard on me and my body. I am a dedicated runner and went from being state champion in the 800m to a no body because of this disease. I find it extremely hard not to cheat and when i mean cheat i mean on accident. (ill feel the side effects later and know i ate wheat) i get really tired, too the point where i can sleep for 13 hours and feel like i didnt sleep at all. is anyone else going through similiar problems? because im having a hard time with coping with this. any suggestions/comments/concerns are appreciated. thanks so much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NorthernElf Enthusiast

Hi,

It's tough, I know. I often use exercise as a remedy for a glutening, mind you these days any glutenings are very accidental, usually just a cross contamination thing since I am very careful what I eat. Research is your best defense - I scour these forums and the internet for information. If I don't know if it is safe, I don't eat it. It did take me a couple of years to get to this point, accepting things rather than fighting them. I've told people that eating gluten is like choosing to have a combination of a flu and a bad hangover. Who wants to do that to themselves ? On purpose ? Knowledge is truly your best weapon to all but eliminate 'accidental' glutenings.

Stupid things...

Smarties in Canada are not gluten free, but M&Ms are.

Rice Krispies (and most other cereals) have barley malt in them.

Wheat starch can show up as a flavoring in canned icing.

A plain burger patty in a restaurant may not be enough since they may toast their buns on the same grill.

Fries are usually a no no because nuggets & onion rings use the same oil...so I eat New York fries but the risk is still there due to their toppings.

Most soy sauces have wheat in them - never made sense to me that Japanese cuisine would even include wheat.

Last but not least - other people don't get it. It just doesn't help us !

  • 2 weeks later...
LuvMoosic4life Collaborator

I am also a runner and in college. Although I don't compete and havent been diagnosed with celiacs, I have found the the reason behind half of my running problems is a reaction to gluten. I tried going gluten free and had so much energy to run it was amazing, and I just felt so great. Before I knew gluten was the problem, my main concern was making it through a run without having to run to the bathroom. This is not good being a distance runner. I also would get horrible fatigue in my muscles. It would take a good mile before endorphines would kick in and the pain would be gone. I also never understood why I couldnt make it up a flight of stairs without it feeling like I had burning bricks in my calves and legs. I tried taking days off from running at a time figuring I was over doing myself, but it never helped, the fatgued feeling wouldnt go away, I went like this for 7 years thinking it just must be the way I am... I've always wanted to train for a marathon, but i know there would be no possible way for me to make it through w/o having to stop ten millon times to go to the bathroom. I have no problem when I'm gluten free.

gfgypsyqueen Enthusiast

If you were a former state champ in running you must be very driven and goal oriented. This disease sucks at times. No one will disagree with that. But, this disease is a blessign in a way - no meds and no side effects to manage the disease. I had many meds with side effects that made it impossible to run or ride a bike let alone think through a problem.

Keep a log of what you ate and how you feel - it made a huge difference for me. Track your glutenings and what effects it has on you and how long until the reaction ends. Start a running log and set reasonable goals. You will see that remaining gluten-free will give you the strength and the ability that you used to have. Soon you will be back to the track meets and winning races again.

Search this site and find the carb loading meals that other Celiacs use for preping for a race.

Hope you feel better.

  • 3 months later...
ar8 Apprentice

Hey there- I am also a distance runner who had hope to train for a marathon this fall, but due to fatigue, and feeling like I am about to get injured/like I am overtraining everytime i try to Run hard two days in a row (more than 4-5 miles at 15-30 seconds/mile less than race pace), and just not getting "better" after a day of rest, I have almost given up. I don't seem to get faster despite incorporating various strategies to avoid overtraining (cross train, days of rest, etc) I have returned to a previous effort to go gluten free and see if it helps (I also have a bathroom issue that flares up often when i run-- bad diarrhea). I seems to have improved after a stint of gluten free and decreasing coffee consumption. I saw your april post and was wondering if you are currently gluten free and if your running has improved since then? How long did it take if so? Did you ever get tested? Did you take a lot of time off to recover or just push through?

I am hoping that I can continue to run (though at a decreased level) while I recover from what I believe is a gluten problem. I have a history of anemia, "IBS," and general fatigue, as well as blood sugar issues and elevated liver enzymes, all of which fits with gluten intolerance. I am actually hopeful that this is my problem as I can FIX it. My knees and hips hurt and my ankles have had many problems despite not doing more than maybe 25-30 miles/week, and often far less. I used to run 8 miles a day at an intense pace, no problem.

I was tested with enterolab, which reported I had gluten intolerance though of course this is not an accepted testing method. I just don't know. Anyway your post struck me in its similarity to my problems and I just wanted to touch base and ask a few q's!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Insomnia help

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      47

      My journey is it gluten or fiber?

    3. - Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      12

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,362
    • Most Online (within 30 mins)
      7,748

    Jac3
    Newest Member
    Jac3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nanny marley
      I do believe that people are under so much pressure up have a sleeping  pattern ,  with working and how households work these days , but in reality there is no wrong or right at to sleep , I believe your neighbour showed this with such a long life , I do exactly the same  at night many times so I hope I live into my nineties also , I have found one thing in life your body knows what's best so good to listen to wat it needs however unconventional that maybe 🤗
    • knitty kitty
      Try adding some Thiamine Hydrochloride (thiamine HCl) and see if there's any difference.  Thiamine HCl uses special thiamine transporters to get inside cells.  I take it myself.   Tryptophan will help heal the intestines.  Tryptophan is that amino acid in turkey that makes you sleepy after Thanksgiving dinner.  I take mine with magnesium before bedtime.
    • Known1
      I live in the upper mid-west and was just diagnosed with marsh 3c celiac less than a month ago.  As a 51 year old male, I now take a couple of different gluten free vitamins.  I have not noticed any reaction to either of these items.  Both were purchased from Amazon. 1.  Nature Made Multivitamin For Him with No Iron 2.  Gade Nutrition Organic Quercetin with Bromelain Vitamin C and Zinc Between those two, I am ingesting 2000 IU of vitamin D per day. Best of luck, Known1
    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.